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- Much Much Spectrum | BTS’ Jungkook opens up about his ADHD on livestream
The confession has raised bigger questions about how we treat neurodivergent people < Back Neurodiversity, News, Media BTS’ Jungkook opens up about his ADHD on livestream The confession has raised bigger questions about how we treat neurodivergent people MMS Staff 2 Sept 2025 4-min read On a recent Weverse livestream, BTS’ youngest member, Jeon Jungkook, did what he’s known for: showing up for his fans in his most unfiltered form. He joked, wandered around his home, revealed a new piercing (and the chipped tooth it came with), and wished ARMY members a happy birthday. But in the middle of that playful chaos, the tone shifted. A comment from a viewer asked Jungkook to “stop moving so much.” And in response, the 28-year-old global superstar offered something rare in the world of hyper-curated celebrity: honesty. “I can’t help it,” Jungkook said. “I kind of have adult ADHD. I have it so I keep moving like this.” Just like that, a livestream became a moment of representation. What is ADHD, really? ADHD stands for Attention Deficit Hyperactivity Disorder. It’s a neurodevelopmental condition that affects how people process attention, regulate movement, and navigate everyday tasks. While often misunderstood as simply being “distracted” or “hyper,” ADHD shows up differently in every person — and isn’t just limited to children. Symptoms can include restlessness, impulsivity, difficulty focusing or staying still, emotional dysregulation, or needing stimulation to stay engaged. Many adults with ADHD go undiagnosed for years, especially in cultures where mental health is still stigmatized or poorly understood. Jungkook’s simple comment — "I can’t help it" — wasn’t just a personal truth. It was a powerful reframing of what neurodivergence looks like in real time. A moment of neurodivergent visibility on a global stage What made Jungkook’s revelation especially significant was not just what he said, but how he said it. There was no dramatic pause. No planned statement. No viral tweet. Just a quiet, almost offhand acknowledgment that he lives with adult ADHD. In that moment, millions of viewers, especially neurodivergent ones, saw themselves reflected. Social media quickly lit up with support. Fans rallied behind him, praising his candour and criticising the comment that prompted the disclosure. One fan wrote, “If he wants to rock a bit, he will, if he wants to stay still, he will. Why are they pressed even about that?” Another added, “JK can be himself. He’s at his home. If he wants to move, he can.” This wasn’t just about defending an idol. It was about standing up for the right to move, exist, and express without shame. ADHD, ableism, and the constant policing of movement To many neurodivergent people, especially those with ADHD, autism, or tic disorders, the world can feel like a minefield of unspoken rules. Don’t rock. Don’t stim. Don’t speak too fast. Don’t get distracted. Don’t be too much. Jungkook’s body language during the livestream - his pacing, fidgeting, and energy - wasn’t unusual. But the discomfort expressed in that single fan comment reflected a broader pattern: how often society expects neurodivergent people to “perform normal.” In truth, many people with ADHD learn to mask their natural tendencies to avoid judgment. That masking can be exhausting... and harmful. What Jungkook did, intentionally or not, was deconstruct that expectation in real time. Why this matters: Representation beyond hashtags Mental health in the K-pop industry has long been a sensitive topic. Idols often face intense scrutiny over their appearance, behavior, and private lives. In South Korea, conversations around neurodivergence are still emerging, and stigma remains high -especially for adults. For Jungkook, arguably one of the most visible faces in pop culture today, to speak openly about living with ADHD was no small thing. It challenges narrow stereotypes of what neurodivergence “looks like” and opens space for fans - especially those across Asia - to start conversations in their own homes. It also helps dismantle the myth that success and neurodivergence are mutually exclusive. You can be thriving and still fidget. You can be beloved and still stim. You can be at the top of your game, and still be figuring out how your brain works. A softer world is possible Jungkook’s livestream was many things: funny, chaotic, endearing. But it was also a reminder that visibility can happen in the quietest moments. No dramatic headlines. No campaign. Just a young man, in his home, being himself. At Much Much Spectrum, we believe these moments matter. Because they build a world where more people can say, “I can’t help it. And I don’t need to.” If you’ve ever been told to sit still, stop fidgeting, or be “less”, you’re not alone. Your movement isn’t a flaw. Your brain isn’t broken. You’re not “too much.” You’re just wired differently. And that’s more than okay. 💬 Join the conversation: What did Jungkook’s words mean to you? Have you ever felt the pressure to mask your neurodivergence or mental health? Tell us in the comments or share your story using #MuchMuchNeurodivergent Let’s create a world where we all get to move, think, and feel without apology! Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Kerala unveils its first neurodivergent friendly coworking space
Here's a model that could shape the future of work in India < Back Neurodiversity, Work, News Kerala unveils its first neurodivergent friendly coworking space Here's a model that could shape the future of work in India MMS Staff 12 Aug 2025 3-min read In a move that could redefine workplace inclusion in India, Kerala has launched the country’s first neurodiversity-friendly coworking hub. And it’s located in an unexpected spot: inside the Ernakulam South Metro Station in Kochi. Called ‘i by Infopark’, the 48,000-square-foot facility spans the 3rd to 9th floors of the metro complex and will open to the public in September 2025. With space for over 580 professionals, the project is being hailed as a first-of-its-kind model for accessible, sensory-friendly workplace design in the country. A workspace built for brains that work differently At the heart of ‘i by Infopark’ is the globally recognised ‘Spectra’ design concept - an approach that acknowledges neurodiversity as a natural and valuable variation in human brains. The design specifically supports individuals with autism, ADHD, dyslexia, dyspraxia, Tourette syndrome, and other conditions by creating an environment that reduces sensory overwhelm and maximizes focus. Each floor has a distinct sensory focus, with thoughtful attention to lighting, colour palettes, textures, and noise levels. This allows professionals to choose workspaces that align with their comfort and productivity needs - a stark contrast to the one-size-fits-all environments that dominate most offices. “ Variation in human brains is biologically normal and adaptive,” said Susanth Kurunthil, CEO of Infopark. “Our design fosters innovation by embracing those differences, and ensuring every individual is comfortable, focused, and included.” Beyond accessibility: world-class amenities While accessibility is central, the facility also competes on par with high-end coworking spaces. It offers high-speed internet, professional reception services, office pods, meeting zones, cafeterias, 24/7 security, and 100% power backup. A flexible rental system allows gig workers, freelancers, multinational companies, and startups to lease space according to their needs, making it a viable option for everyone from solo entrepreneurs to global capability centres. The project also addresses the long-standing issue of space shortage at Infopark, providing a strategic expansion point right in the city. Government-backed inclusion Kerala’s Chief Minister Pinarayi Vijayan has called the facility a model for the future of work. He indicated that if successful, similar centres will be established across the state. This makes ‘i by Infopark’ a rare example of government-led workplace inclusion, where accessibility is integrated into design from the start rather than retrofitted as an afterthought. In a country where nearly 20 per cent of the population is estimated to be neurodivergent, this step signals a recognition that workplace accessibility is not just a CSR checkbox, it’s an economic and social necessity. Why this matters For too long, workplaces have placed the burden of “adjusting” on employees, particularly those who are neurodivergent or disabled. This often forces talented individuals to navigate environments that aren’t built for them, leading to burnout, exclusion, and lost opportunities for innovation. By flipping the script and creating a space that adapts to its people, ‘i by Infopark’ demonstrates what inclusion can look like in practice. More than adding ramps or quiet rooms, this is about fundamentally rethinking how we design for the full range of human needs. A template for the future Whether ‘i by Infopark’ becomes the blueprint for other Indian cities will depend on more than just its amenities. Sustained success will require ongoing input from the neurodivergent community, training for staff, and policies that ensure accessibility isn’t diluted over time. But if Kerala’s model takes root, it could change the way India thinks about both coworking spaces and workplace design, proving that accessibility can be ambitious, scalable, and profitable. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | “In 27 Years, I’ve Never Seen My Mother Cry”: Ira Khan
Ira reflects on parenting, mental health, and emotional silences in Indian homes < Back Health, Parenting, News “In 27 Years, I’ve Never Seen My Mother Cry”: Ira Khan Ira reflects on parenting, mental health, and emotional silences in Indian homes MMS Staff 5 Aug 2025 4-min read In the very first episode of Parenting Aaj Kal, a new Hindi podcast by Much Much Media, mental health advocate Ira Khan shared something striking. “In 27 years, I’ve never seen my mother cry,” she said. Ira Khan on Parenting Aaj Kal The moment was quiet but heavy. It touched on something deeply familiar to many Indian families: the absence of emotional expression, the silence around vulnerability, and the quiet expectation to always “hold it together.” Ira Khan has publicly spoken about her own mental health journey before. But on Parenting Aaj Kal, she went deeper, describing what depression looked like for her and how it was received at home. “I would either sleep for 18 hours or not at all. Until I stopped eating food, I didn’t ask for help,” she shared. Ira also shared the mental health journey of her parents actor Aamir Khan and producer Reena Dutta. What stood out in Ira’s reflection wasn’t the lack of love, but the emotional distance that can exist even in supportive households. “My mother never cried. Not for a movie, not for a death, not for anything. And four weeks ago, I realised this for the first time. So I called her and asked: what is happening?” Reena’s response? “My therapist told me to show my emotions, but I was scared you would be scared again.” This fear, of burdening children, of making them anxious, leads many Indian parents to suppress their own emotions. But in doing so, they often model emotional silence as the norm. And children learn quickly: Don’t cry. Don’t talk. Don’t feel too much. The mirror effect: when parents don’t emote, children won’t either Dr Vibha Krishnamurthy, host of Parenting Aaj Kal and one of India’s most respected developmental paediatricians, emphasises how emotional expression, or the lack of it, shapes a child’s emotional literacy. Dr Vibha Krishnamurthy on Parenting Aaj Kal “Parents tell me, ‘In our time, we never had therapy. We had thappad (slap) therapy or hawaii chappal (slipper) therapy.’ But what is therapy, really?” she asks with a wry smile. “If we never talk about sadness, grief, anxiety, how will children learn that these feelings are okay to have?” This learned emotional suppression, often seen as resilience, can be counterproductive. It can delay intervention, isolate children, and perpetuate cycles of silence. Depression doesn’t always look like sadness Child and adolescent psychiatrist Dr Pervin Dadachanji, who joins the episode alongside Ira and Dr Vibha, offers clinical insights into how mental health often goes unnoticed in young people. “Children don’t always ‘look’ sad when they’re struggling,” she explains. Dr Pervin Dadachanji on Parenting Aaj Kal “It often shows up as irritation, boredom, or disinterest. What we dismiss as bad behaviour or laziness could be a sign of emotional distress.” She recounts how many parents come in when their child’s academic performance drops, not realising that emotional wellbeing is often the underlying issue. “The first thing I ask is: what’s going on in this child’s life?” Why conversations around mental health in families matter At its heart, Parenting Aaj Kal is a show about making space. For questions, for emotions, and for a kind of parenting that’s rooted in presence not perfection. The show is created in Hindi, specifically to reach Indian households that might shy away from conversations around mental health because they feel “too Western” or “too dramatic.” Ira’s honesty, paired with the clinical wisdom of Dr Vibha and Dr Pervin, makes the first episode a powerful listen. It’s not just about one person’s story... it’s about breaking patterns many of us have grown up with. As Ira puts it: “There’s too much pressure to be good at everything. To make my parents happy, I thought I had to come first. Earlier, it was 50 people. Now, because of social media, it feels like I’m competing with the whole world.” Dr Pervin and Ira Khan on Parenting Aaj Kal Rewriting what strength looks like at home In India, we’ve long mistaken emotional withholding for maturity, and silence for strength. But children, like all of us, need models. If their parents never express sadness, they might grow up believing that feeling sad is wrong. If their parents never cry, they may think crying is a weakness. And if no one ever talks about what’s hard, they may never learn how to ask for help. As Dr Pervin says: “There’s a saying in English: Name it to tame it. If we talk about our feelings, they don’t spiral. But if we don’t express them, no one will know, and support never arrives.” Watch the Full Episode Parenting Aaj Kal is available in Hindi on YouTube, Apple Podcasts, Amazon Music, and Spotify The first episode features Ira Khan, Dr. Vibha Krishnamurthy, and Dr. Pervin Dadachanji, and is a must-watch for parents, educators, and anyone looking to make emotional safety a part of everyday life. Because maybe the most powerful thing we can give our children… is the permission to feel. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | The Chatter
An explainer series that demystifies neurodiversity & disability for a broad-based audience < Back Explainers The Chatter An explainer series that demystifies neurodiversity & disability for a broad-based audience The Chatter is hosted by Aditi Gangrade, Co-founder Much Much Media, filmmaker, entrepreneur, creator, and an Indian neurodivergent self-advocate. कई लोग ऑटिस्टिक लोगों को कहते हैं "लेकिन आप ऑटिस्टिक दिखते नहीं"। इस विडीओ में जानिए ऑटिज़म के बारे में ऐसे 6 सच जिनके बारे में ज़्यादा बात नहीं होती। इस एपिसोड में हम लेट डाइयग्नोस्ड ऑटिस्टिक अडल्ट्स के बारे में बात करेंगे। यह जानना ज़रूरी है कि ऑटिज़म दिखायी देने वाली डिसबिलिटी नहीं है। कई लोग हमें कॉमेंट्स में पूछते है कि उनके ऑटिस्टिक बच्चे कब बोलना शुरू करेंगे। इस विडीओ में हम बात करेंगे कम्यूनिकेशन के अलग अलग तरीक़ों पर और आपके इन ही कुछ सवालों का जवाब देंगे। इस एपिसोड में हम ऑटिज़म के बारे में सभी अफ़वाहों और मिथ्याओं के बारे में बात करेंगे। ऑटिज़म के बारे सभी सही जानकारी के लिए ये विडीओ पूरा देखें और अपने दोस्त, परिवार, कॉलीग्ज़ के साथ शेयर करें। Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back ORIGINALS
- Much Much Spectrum | IIT KGP to offer course on disability accessible design
Centre partners with institute for early integration of accessibility into education < Back Disability, News, Education IIT KGP to offer course on disability accessible design Centre partners with institute for early integration of accessibility into education MMS Staff 15 Jul 2024 2-min read Civil engineering students at Indian Institute of Technology Kharagpur (IIT-KGP) will soon have the opportunity to study accessible building design, thanks to a new partnership between the Centre’s disability affairs department and the institute. This course - currently an elective - will be available to students in the sixth and seventh semesters starting from the 2024-25 academic session. Two professors from the institute’s Department of Architecture and Regional Planning, Subrata Chattopadhyay and Haimenti Banerjee, are reportedly working on developing the Accessible Built Environment course, along with the Department of Empowerment of Persons with Disabilities (DEPwD). The course will cover such topics as smart and inclusive habitats, accessibility and infrastructure-driven liveability, and inclusive urban planning. The Centre subsequently plans to introduce the course in 27 other institutes, including other IITs. Presently, the course will carry 30 credits, and it aims to integrate accessibility into education early so that future engineers can incorporate it into their building designs. Accessible infrastructure - the need of the hour - still remains a distant dream in India despite the Rights for Persons with Disabilities Act of 2016 (RPwD Act) mandating all existing public buildings become accessible within five years of the passing of the act. Over the next three years, the course will be an elective at IIT-Kharagpur and will likely become a mandatory subject thereafter. Rajesh Aggarwal, Disability Affairs Secretary, emphasised the importance of this initiative, stating, “The objective is to integrate accessibility into education early so that students incorporate it into building design.” Previously, IIT-Kharagpur collaborated with the National Institute of Urban Affairs (NIUA) on the Building Accessible Safe and Inclusive Indian Cities (BASIIC) initiative. In addition to IIT-Kharagpur, the disability affairs department is in discussions with the Council of Architecture to include this subject in their curriculum as well. A senior official from IIT-Kharagpur highlighted the need for this course, saying, “Constructing accessible buildings needs experts and it is important that our future infrastructure builders have professional training about the same.” This initiative is part of the government’s Accessible India 2.0 campaign, which aims to achieve universal accessibility for persons with disabilities (PwDs). The Accessible India campaign focuses on making buildings and transport systems across the country accessible for people with disabilities. Under this campaign, access audits were conducted on 1,671 buildings across 48 cities, and retrofitting work has been sanctioned for 1,314 buildings, with 623 buildings already retrofitted in 20 states. The norms for retrofitting, as specified in section 44 of the Persons with Disabilities Act, include creating ramps in public buildings, modifying toilets for wheelchair users, and installing Braille symbols in elevators. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | The significance of Pride for neurodivergent LGBTQIA people
This Pride month, our community reflects on embracing both neurodivergence and queerness < Back Community, Neurodiversity, LGBTQIA+ The significance of Pride for neurodivergent LGBTQIA people This Pride month, our community reflects on embracing both neurodivergence and queerness MMS Staff 21 Jun 2024 3-min read Every June, Pride Month celebrates the diversity and strength of the LGBTQIA+ community. But within this collective coming together, it's important to remember that Pride could mean different things for different people. The essence of Pride is the diverse voices and lived experiences it represents and stands by, particularly for those at the intersections of multiple identities — such as neurodivergence, disability and LGBTQIA+. To fully honour the spirit of Pride, we need to embrace an intersectional approach that acknowledges and addresses the varied and complex realities of the entire community. And so we asked our community to share what Pride means to them, as neurodivergent and LGBTQIA+ folx. Here’s what #MuchMuchSays : Embracing my neurodivergence and queerness. Unmasking with people who feel like home! 💖 Saving my spoons by not engaging with people who are judgy, ableist or dull my sparkle ✨ - @aditigangrade_ Learning how both these parts of me overlap and create an unique experience for me. Finding a community with more neuro-queer folx. Trying to understand ways to better support myself in allistic spaces. - @ usri.be _ing In theory, I 💯 support everything Pride stands for. I’m queer, nonbinary and autistic. Neuroqueer is also how I describe myself. I advocate for neurodivergent LGBTQ+ people in my job, and I live the values of Pride year-round. But I live in San Antonio, Texas, where Pride is celebrated outdoors in the 100 degree F summer heat. That heat is dangerous for me because of my fibromyalgia and because of the meds I take. Even when the parade starts at 9 pm, it usually hasn’t cooled off that much. - @stardust_silkys Embracing yourself and everyone for who they are. Love my autism and my LGBTQ+ identity. Love has no limits. - @_irigeorge_iridizontas Celebrating love with understanding inclusive people (I'm in a straight marriage, but I love love and it should always be celebrated!). Showing my respect to those who have suffered from discrimination just for wanting to be loved and understood x - @debworth88 There are lots of ways of existing as a happy healthy human that isn’t the standard path society tells us are the norm - @peachnpumpkin Being actually included by queer groups 🥰🥰🥰 - @yagamilight3000 As a straight and cisgendered autistic man, I feel connected to other people who I think are also neurodivergent. I believe that the areas of the brain where sexual orientation and gender identity exist are their own distinct neurotypes. When someone isn’t straight or cisgender, those neurotype ares are the result of neurodivergent brain structures. While I don’t have the experiential empathy of being someone of the LGBTQIA+, I share a more generalized experience of not being what everyone wanted me to be and being misunderstood throughout my life; it’s from this that I can draw up empathy for LGBTQIA+ people. The must be treated with dignity, respect, compassion, understanding and visibility. - @bradcotter002 A proof that it is NOT illegal or “sinful” to love sby of your own gender or both!! 🥳🍾🎊🎉🏳️🌈💜💙 #itsokaytobegay 😎🌈 - @mariksen Rainbows and parties 🌈 🌈🌈😂 I don’t need a special month to live the “pride lifestyle”. - @_katbls_ Almost all of my neurospicy friends are queer.. theyre inextricably linked. There is pride in accepting our neurodivergence and our sexuality and gender identities. Its just another thing to celebrate and be proud of. To stand up for and speak out about. Let our voices be heard - @hanami_dango_ Pride is more than a celebration; it's a pivotal moment of visibility and acceptance for those who often navigate multiple layers of marginalisation. By listening to the voices of the neurodivergent LGBTQIA+ community and implementing inclusive practices, we can ensure that Pride is an empowering experience for everyone involved. PS: Our Community series stories are unedited for grammar or spelling, and posted as received on our socials. The original comments can be found on our Instagram . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Down syndrome actor-activist to be first disabled guest editor at UN News
Nick Herd from Canada to make history at landmark disability conference COSP17 in New York < Back Disability, News Down syndrome actor-activist to be first disabled guest editor at UN News Nick Herd from Canada to make history at landmark disability conference COSP17 in New York MMS Staff 10 Jun 2024 2-min read Global disability advocate Nick Herd is set to make history as the first-ever guest editor for UN News. This development comes as the world convenes for the 17th session of the Conference of States Parties (COSP17) to the Convention on the Rights of Persons with Disabilities (CRPD) in New York over June 11th, 12th and 13th. Herd, a passionate advocate for disability rights, said he is excited to use his platform to amplify the voices of people with disabilities around the world, in this story published on the UN News portal yesterday. This year's COSP17 focuses on critical themes including jobs, technology, and humanitarian responses in times of crisis, all viewed through the lens of disability inclusion. "I'm most looking forward to connecting with others and meeting people who care about the same things I do," Herd said, highlighting the importance of accessibility and inclusion, throwing back to how discussions at last year's COSP emphasised making things easier for people with disabilities. Herd, a member of the L'Arche community in Toronto - which “(works) with others to build a world where everyone belongs” - says: "Technology plays a crucial role in enhancing my life… from social media to communication apps, it lets me connect, communicate and comprehend information more easily." Herd also shared personal stories about how his work as a creative director, actor, and artist has been enriched by technology. Discussions at COSP17 will tackle significant challenges faced by people with disabilities, exploring issues such as how to overcome barriers to employment, ensure access to essential services during crises, and leverage technology for inclusion. Herd, whose animated film "Freebird" was long-listed for the 94th Academy Award, talks about how people with disabilities can excel in the workplace, stressing the importance of inclusion, collaboration, and self-expression in the job market. He highlights the vulnerability of people with disabilities in conflict zones, drawing from his experience with L'Arche communities in areas like Haiti and Ukraine. "Living a dignified life means having all the rights that make us human," Herd said. Encouraging everyone to join the conversation at COSP17, Herd added: “Let's work together to make sure everyone has the rights and opportunities we deserve. Tune in to the UN News live blog on Tuesday, June 11th, at 8 am to follow Herd's coverage. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Celebrating World Vitiligo Day: Stories of Indian creators with Vitiligo
The rise of Vitiligo representation in media is smashing conventional beauty standards < Back Health, Gender, News Celebrating World Vitiligo Day: Stories of Indian creators with Vitiligo The rise of Vitiligo representation in media is smashing conventional beauty standards MMS Staff 25 Jun 2024 4-min read Millions of people worldwide live with Vitiligo, a condition characterised by the loss of skin pigment. This condition causes the skin to turn white or appear lighter than one's natural skin tone due to the destruction of melanocytes, the cells that produce melanin. On World Vitiligo Day, we celebrate the stories of creators with vitiligo who use their platforms to spread awareness and promote self-love, showing the world that beauty comes in all forms. But before that, a quick fact. According to this study done by the National Institutes of Health (NIH), the prevalence of vitiligo in India ranges from 0.25% to 4% among dermatology outpatients, with higher rates reported in certain regions like Gujarat and Rajasthan, reaching up to 8.8%. Despite this, there remains a significant lack of awareness and representation, leading to social stigma and psychological challenges for those with the condition. Many people with vitiligo face ostracization, bullying, and severe social and psychological impacts, particularly young women who are pressured to meet conventional beauty standards. However, representation and inclusivity in the media and fashion industries are slowly beginning to change perceptions. In recent years, the media has begun to embrace a more inclusive and diverse representation of beauty, prominently featuring individuals with vitiligo. This shift marks a significant departure from the past, where vitiligo was often stigmatised and misunderstood. Influencers like Winnie Harlow have played a crucial role in this transformation, using their platforms to challenge conventional beauty standards and inspire others. Harlow's rise to fame as a model with vitiligo has opened doors for many others, showcasing the unique beauty and resilience of those with this skin condition. Television shows, fashion campaigns, and social media platforms are now more frequently highlighting the stories and experiences of individuals with vitiligo. This increased visibility helps to normalise the condition and educate the public, paving the way for more acceptance and understanding. Campaigns by major brands, such as the inclusive beauty initiatives by Dove and CoverGirl , have also contributed to this positive trend by featuring models with vitiligo in their advertisements. But despite these advancements, there is still a long way to go. Continued efforts to amplify the voices of people with vitiligo in the media are essential for dismantling stereotypes and promoting a broader definition of beauty. By celebrating diversity and advocating for inclusivity, the media can play a powerful role in changing perceptions and supporting those with vitiligo to live their lives without fear of discrimination or prejudice. Here are the stories of six remarkable Indian creators who are redefining beauty standards and breaking down the stigma associated with vitiligo. Mamta Mohandas The last decade has been incredibly challenging for South Indian actress Mamta Mohandas , as she battled Hodgkin’s lymphoma, a type of cancer. True to her style, when she shared her journey with vitiligo, it was with a poetic and hopeful tone that embraced her condition. In a selfie shared with her two million followers, she wrote, “Dear sun, I embrace you now like I have never before. So spotted, I’m losing color… I rise even before you every morning, to see you glimmer your first ray through the haze. Give me all you’ve got for I will be indebted, here on out and forever by your grace.” Aastha Shah Aastha Shah is a Mumbai-based content creator who has captivated audiences with her empowering messages of self-acceptance. Diagnosed with vitiligo at 8, Aastha faced many challenges, including societal judgement and a difficult medical journey. “For years, I struggled with feeling beautiful because of my vitiligo. Today, I walked the red carpet at Cannes, not in spite of my vitiligo but because of it. I want to show everyone that beauty comes in all shades and patterns,” says Aastha. She boasts a following of one million on social media, where she shares her journey and motivates others. Aastha recently made history as the first Indian with vitiligo to walk the red carpet at the 77th Cannes Film Festival. Prarthana Jagan Prarthana Jagan , a model and social media influencer based in Bangalore, developed vitiligo at the age of 11. She faced severe bullying and social isolation due to her condition, which greatly affected her self-confidence. Prarthana wore makeup to conceal her vitiligo for many years until a life-changing surgery in 2016 helped her embrace her natural skin. “I stepped out bare-skinned into the sunlight and I just can’t express what I felt on that day. I felt sunlight on my bare skin after years. It was just a moment of self-reflection,” Prarthana recalls in a post on her Instagram. Prarthana now shares her story on Instagram and YouTube, inspiring others to embrace their unique appearances. She has modelled for Elle and Grazia and works with Blunt Model Agency, continuing to raise awareness about vitiligo. Jasroop Kaur Singh Jasroop Kaur Singh , a London-based British-Indian model and influencer, creatively expresses her journey with vitiligo through her artwork. Jasroop combines her passion for art with advocacy, creating pieces that highlight the beauty of vitiligo. Despite facing bullying and social isolation growing up, she found confidence in herself and has worked with Vogue, Burberry, and other high-end fashion brands. Kirpal Bhogal Kirpal Bhogal is a London-based content creator and advocate for vitiligo awareness. Known for his vibrant personality and stylish content, Kirpal uses his social media presence to educate others about vitiligo and promote inclusivity. His efforts have garnered a supportive community that celebrates individuality and encourages open conversations about skin conditions. Ranjani Ramakrishnan Based in Chennai, India, Ranjani Ramakrishnan is a motivational speaker and digital creator who has been very vocal about her journey with vitiligo. Diagnosed at age 11, Ranjani struggled with self-acceptance but came to embrace her unique appearance. She now works with brands promoting inclusivity and models for Another Life Collective . Shantanu Gosavi Shantanu Gosavi , an Ahmedabad-based model and influencer, uses his platform to challenge stereotypes about vitiligo. A graduate in Textile Design from NIFT Gandhinagar, Gujarat, Gosavi is trained in Kathak and works as a freelance textile designer, photographer and model. He began his modelling journey with local brands, and now collaborates with photographers and fashion brands. The stories of these creators serve as a reminder that beauty is diverse and multifaceted. On World Vitiligo Day, we celebrate their stories and dedication to spreading awareness and representation. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Deafblind Awareness Week: Significance, history and advocacy
Honouring the legacy of Helen Keller on her birth anniversary < Back Disability Deafblind Awareness Week: Significance, history and advocacy Honouring the legacy of Helen Keller on her birth anniversary MMS Staff 24 Jun 2024 2-min read Deafblind Awareness Week (June 24 - June 30) is a week dedicated to raise awareness about individuals with multi-sensory impairments, also known as deafblindness. This week focuses on learning about the lived experiences of those who are deafblind, challenging misconceptions, celebrating achievements, and finding ways to support and advocate for the deafblind community. It also coincides with Helen Keller ’s birthday on June 27th, honouring her legacy as a pioneering disability advocate. Understanding deafblindness Deafblindness is a disability characterised by the combined loss of sight and hearing, which significantly impacts daily life. Being deafblind does not necessarily mean complete deafness and blindness. Most people who are deafblind have some degree of both sight and hearing. There are two main types of deafblindness: Congenital Deafblindness: When a person is born with both sight and hearing impairments. Acquired Deafblindness: When a person develops sight and hearing impairments later in life, often due to illness, injury, or age-related factors. People with deafblindness can lead fulfilling and successful lives with the right support and resources. Life with Deafblindness People with deafblindness use various methods to communicate and interact with their environment, such as tactile signing, braille, assistive technology, and support service providers. Celebrating Helen Keller Deafblind Awareness Week marks Helen Keller’s birth anniversary, June 27th. Helen Keller was an influential author, educator, and disability rights advocate. Born in 1880, Keller lost her sight and hearing at 19 months old due to an illness. With the help of her teacher Anne Sullivan, Keller learned to communicate using tactile sign language and braille. She was the first deafblind person to earn a Bachelor of Arts degree. Keller travelled worldwide, delivering lectures, working to improve the lives of individuals with disabilities. Advocating and supporting the Deafblind community Here are some ways you can advocate for and support individuals with deafblindness: Learn about deafblindness and share accurate information to help dispel myths and raise awareness. Advocate for accessible public spaces, transportation, and digital content to ensure inclusivity. Encourage educational institutions and workplaces to implement accommodations and inclusive practices, creating opportunities for individuals with deafblindness. Offer your time and resources to organisations that support the deafblind community. Push for the development and availability of assistive technology that enhances independence and communication for those who are deafblind. Listen to the experiences of the deafblind community and help amplify their voices in public discussions and advocacy efforts. Deafblind Awareness Week is also a time to celebrate the remarkable contributions to society that individuals with deafblindness have made in various fields such as education, arts, advocacy, and technology. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Sisterhood with Neurodivergence: Shreya & Roshni’s lived experience
A candid conversation with two siblings about rivalry, breaking societal norms, and understanding each other < Back Gender, Neurodiversity Sisterhood with Neurodivergence: Shreya & Roshni’s lived experience A candid conversation with two siblings about rivalry, breaking societal norms, and understanding each other Swara Swami 23 Aug 2024 11-min read Shreya (33, she/ her, neurodivergent) and her sister Roshni (30, she/ her, allistic) speak to Much Much Spectrum about their growing up years. Interviewer: Can you both share a little bit about yourselves and your relationship as sisters growing up and how has your bond evolved over the years? Shreya: Well, I think I should start with the story of this picture. When Roshni was just born, she was on Amma's lap. Actually she's supposed to be on Amma's lap, but I have pushed her away and she's crying and I have taken my place on my mother's lap and I'm feeling very happy about it. So essentially that kind of sums up our childhood. We used to fight a lot. Because that's what siblings do. But we also used to chill a lot together and play on the computer and have Shrewsbury biscuits while we did it. So we had a lot of these rituals, like making midnight snacks together and things like that. But we also fought a lot. But when I moved to Ahmedabad to do my master's, I think that is when we became really close when we started living in different cities. Roshni would come and visit me and stay with me on campus and then in the various other cities I have lived in. So I think that is when we became super close and we both are the first person we go to. At least for me, she's the first person I go to with any major issue. We are very similar yet very, very different people. So I think it is a little complementary and also we have a lot of shared interests. So we definitely bond on that. Roshni introduced me to Taylor Swift. We, in general, all of us enjoy food that is one of the things we bond over. And dogs, books. Yes. A lot of books. Interviewer: Roshni, do you also have something to share about your relationship with Shreya? Roshni: I definitely agree with most of the things that she has said. We were not very close while growing up because I'm the younger sister. Distance makes the heart grow fonder, so I genuinely feel like we had those special special moments when we would be cooking together, rather, Shreya would be cooking and I would be cleaning. Before I became a teenager, things were quite different. I was a little bit scared of her, but we got very, very close and actually became friends after she moved out. Shreya: I forgot to say that I was not nice to Roshni when we grew up. I thought, “Oh, you must bully your younger sister. And it was… not nice. It's an important thing to mention because there are not really very great templates around there for sibling relationships, which are not opposing genders. Roshni: On that note, as Shreya mentioned in the picture, she has pushed me off. You can see I'm crying. And she's very, very happy. Interviewer: Could you tell us about your neurodivergence discovery and the journey? Shreya: It was mostly me reading up. I would say it is thanks to the Internet, but because I was reading a lot about the Autism Awareness Month and I read up a couple of articles and I thought that those behavioural traits in adults correlated to our father. I spoke to Roshni about it, and when we spoke to Amma about it, we were like, ‘Oh my God, this makes sense.’ But this was a year before I asked to be assessed and then I didn't think about it. But it was like a niggling thing in the back of my head. Then I started correlating that behaviour across generations of my family. So then I asked my therapist if she could do an assessment and she was like, sure. And I didn't know what to think going in. And I was like, I don't know why I'm asking for this because do I even deserve to take this? What is this? What am I thinking? So then when the results came, it surprised both of us. I think also my therapist, because she'd been my therapist for four years. Once I got assessed as being autistic, I read up a lot and that also made a lot of sense to me. I understood a lot about my childhood and I read a bunch of books, starting with ‘Aspergirls’ by Rudy Simone and then ‘Unmasking Autism’ by Devon Price. I would share all of this with Roshni and Amma and they would be like, yes, okay, this makes a lot more sense. About a year or so later, I took on the ADHD assessments and that also came about and I was like, this is very true. Interviewer: So Roshni, how has Shreya's discovery/ diagnosis changed your dynamic with her? Roshni: I think this conversation is when I think I really started thinking about autism. And so many years of the last few years have been spent in just educating myself. I am also a music educator. I work in a private capacity, so I do work with a few children with diverse needs. So her assessment really, really did help in a professional sense for me to kind of work with the kids that I do, but, wow, sorry, I'm… I feel like I'm blabbering. Shreya: No, you're not. It's okay. It's completely fine. What you're saying is very relevant. Roshni: I think the biggest thing in the beginning was to educate myself and read up more, so whatever material and resources Shreya was sharing, I was making it a point to read them. It really did make a lot of sense. I think she tried to point it out to me, do you remember when this happened when I was younger or this happened? I was like, no, but I was younger than her. So I barely remember, you know, her experiences and meltdowns, so to speak. But it really made a lot of sense the way she is. Since then, I think I've just wanted to be her advocate, especially, you know, in our immediate family because not everyone is as proactive about educating themselves. I think I'm a lot more sensitive to how she is feeling, especially any sort of overstimulation. I feel like when she's around, it's like my ears are also picking up these frequencies. I need to ensure that, for example, at home when we are sitting together and watching TV anytime the volume spikes, the volume is reduced to ensure that she's feeling okay. Interviewer: Shreya, do you have something to share also? Shreya: No. Oh, I would just say that it has just become, I think, better because the understanding is now deeper. And I feel like I can be a very confusing person to be around for a lot of people, but I feel like the assessment has helped understand some of it. This may be something that Roshni has been doing for a long time, but I feel like now she is… someone you can rely on without having to explain too much when you are overstimulated in, say, family gatherings or generally just sitting at home and watching TV. So that aspect really helps because there are very few people in my immediate family or immediate surroundings who actually understand it. So it is nice to not have to open your mouth and explain it. Interviewer: So how do you both support and care for each other? Shreya: We were visiting family in Delhi in December. And it was super social for about a few days. And the last day I just, I could barely talk. I was like, I'm done. I'm done with this world. So Roshni really took on even talking to the cab guy and telling him where we had to go. And there were some physical tasks to be done. She kind of took it on. She also got me coffee. A lot of that is a big way that she has, I think, shown care towards me. I don't want it to be like Roshni is in service to me constantly, but I feel like I also like it when I'm staying with her. Then I make her chai and meals because for me doing things is showing love and care. Roshni: I think if you have ever met Shreya, especially in a house setting, it doesn't matter whose house it is, you'll definitely have multiple cups of chai, which she will make, and there will be at least one snack. Whatever is there in the kitchen, she'll make something. And that is her love language. It has always been, I think, like all of the midnight snacks also. She bakes, she cooks, for it doesn't matter who comes through the door. Actually, most people. With us also, there are weekly FaceTime calls. Sometimes we call each other and give each other the most random updates. And sometimes we just exist on FaceTime together for about 15 minutes to an hour. She is my council, she is my lighthouse. I feel like the reason why I knew I could marry my partner is because Shreya had approved of him. Any major decisions in life, I feel like I need to run by her because she has a very x-ray type scan view of things. And it's great to have such a clear voice sometimes telling you what you might not want to hear or see. So that way I feel like that's how we care for each other. Shreya: When Roshni’s partner is not there, we are just each other’s extended plus ones. And Roshni is also nicer to people than I am. So it's nice to go with her to family functions. People are nice to me also, obviously, but I feel like they're a little scared of me. But everyone is always nice to Roshni, so it's nice to be around her. But I think we balance each other out. There's a fair amount of overstimulation that happens for Roshni also. We have left a lot of weddings and gone to cafes and restaurants and just sat there. Interviewer: Despite being the elder sister, Shreya, you mentioned that your sister is often seen as the older one because of her presentation. Tell us more about the differences in your presentation. Neurodivergent people are often considered way younger than their age because of how we present. How do you both feel about this? Shreya: First of all, we both wear big glasses and we both have short hair. And we both speak in a similar manner. So lots of people also say that we look similar. But I think this really stood out to us once when we were in Chennai visiting some relatives and somebody was like, ‘Oh, I'm pointing to Roshni asking if she's the older one’, which was very strange and she's gotten annoyed and that has just increased in occurrence since then. But because I also almost always have coloured hair, I don't know if people are seeing that and seeing things because of it. And now I have a lot of tattoos. But I don't know why that points to making me look younger. But yeah, it's strange because I'm like, what are the markers of it? Roshni: Yeah, I think it could be, I mean, some people also think it's the height thing. I'm fractionally taller than Shreya. In the beginning I used to get a little annoyed. Because I was like, ‘Oh my God, but look at my face.’ I have such a baby face, but I don't care about it anymore. It's fine. Shreya: That is true. Roshni: Yeah, and I think the way we dress also has something to do with it. I am quite boring in my fashion on a day to day basis. Like when Shreya is around, things get brightened up as a proxy effect, I guess. But because she's always, she expresses herself sometimes through her clothing and the hair colour. The last one of the weddings we went to in 2021 or 22, some people asked Shreya that, and she had a bunch of green hair at that time. It was green, right Shreya? Shreya: Whose wedding? Roshni: This was Varun's wedding. Shreya: Varun's wedding? Roshni: Yeah. Shreya: I had some coloured hair, but it wasn't green. I think it was purple or pink. Life stage wise, as per traditional societal life stage, I am not married and I don't have kids and I'm 33 and there are very few people I know my age who are like this, which is very strange in India. But I feel like that also shows. And the tonality of talking. But I feel like this may also play into why people think I am younger in general. It doesn't make sense. Interviewer: Can you both share a message to families/ siblings where one is neurodivergent and the other is not. Roshni: I'll just repeat what I said earlier, which is, educating oneself is the most important thing you can do as the first step. If anyone in your family is assessed, provide support in whatever way is possible. And, I once brought this up in therapy actually, I don't know sometimes how to help my sister or how to advocate for her. I feel like in some situations it's very sticky and the best piece of advice she's ever given me is to just ask her what she wants. So I think educating oneself and ensuring that you are asking questions and giving the support that a person needs and not just kind of preemptively giving them support based on what you think they need. Shreya: Asking, as you said, but also being willing to listen. Because I feel like when a neurodivergent sibling says something, a lot of what we say is very, very surprising to people because of the experiences, because if everyone has experienced the same thing, the way people experience it can be very, very different. So I feel like sometimes being generally better at listening and believing the other person that, okay, yeah, this is what they got out of the situation… I think that really helps. But I feel like if someone has grown up with a neurodivergent sibling in any case, they would always know that there are a lot of things that their family does, or that they would do as siblings, that are not usual and that are anyway designed to cope with the other person's neurodivergence. So like you have already been living with it. Now when we think about our family and we realise we are so strange, all of us, and we all do these things also that are so strange. And I realised when I talk to my friends' families that they don't have naturally strange families. So… these things. So, just embrace it and believe in the other person. That's all. Shreya is a media professional and podcaster. You can check out her podcast 'At Odds' here . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS