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  • Much Much Spectrum | Delhi High Court welcomes neurodivergent run cafe

    Newly opened Sagar Express will empower neurodivergent individuals through meaningful employment < Back News, Neurodiversity, Work Delhi High Court welcomes neurodivergent run cafe Newly opened Sagar Express will empower neurodivergent individuals through meaningful employment MMS Staff 7 Jul 2024 2-min read Starting next week, the Delhi High Court will see the opening of Sagar Express, a cafe run entirely by neurodivergent individuals. Aimed at creating meaningful employment opportunities centred around a strengths-based approach to neurodivergence, the cafe is set to break down societal barriers and stigma that persist in society about the capabilities of neurodivergent individuals. The initiative is spearheaded by Senior Advocate Ravi Gupta, chairman of the Shaurya Foundation Trust (SFT), who has a deeply personal connection to the cause. “The main motive of opening this cafe is to empower such persons financially,” Gupta shared in this Indian Express article, emphasising the importance of financial independence for neurodivergent individuals. Upon its opening, Sagar Express will be staffed by six neurodivergent individuals including those who are autistic. From managing the counter and handling sales to serving South Indian cuisine, these employees will be at the heart of the cafe's operations. The cafe, a collaborative effort with the well-known restaurant chain Sagar Ratna, is the culmination of two years of intensive staff training. “The majority of persons that will run the cafe will be those with neurodiversity… they’ll be given managerial positions,” Gupta said. The decision to have neurodivergent individuals in leadership roles ensures that the staff not only gain employment but also take on significant responsibilities in the organisation, showcasing their skills and competencies in a real-world setting. It goes to show that neurodivergent individuals are competent leaders. Gupta's journey into supporting neurodivergent adults began in 2002 when he and his wife Rani adopted a boy named Shaurya. Diagnosed autistic before his second birthday, Shaurya became the inspiration for the couple's dedication to this cause. Since 2011, SFT has been actively working to support and train neurodivergent adults. The opening of Sagar Express is another decisive step towards inclusive employment. Not only will it demonstrate that neurodivergent individuals can excel in diverse roles, it'll also serve as a model for other organisations to follow. Some other restaurants & cafes run by disabled and neurodivergent people in India include: Cafe Arpan by Yash Charitable Trust https://www.youtube.com/watch?v=e_oKtCKp_4o Soho House Mumbai https://www.youtube.com/watch?v=R2m3Ogmpfcg The Chocolate Room https://www.youtube.com/watch?v=t_NK3EK6Xao Mitti Cafe Aditi's Corner https://www.youtube.com/watch?v=CN_U6aulgec KFC India https://www.youtube.com/watch?v=7JFCUzcS07w Mirchi & Mime Madeira & Mime Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Ableist magazine covers: A look through time

    How bad media representation of disability fuels stereotypes and excludes disabled voices < Back News, Disability Ableist magazine covers: A look through time How bad media representation of disability fuels stereotypes and excludes disabled voices MMS Staff 6 Jul 2024 4-min read That ableism - a term whose literal meaning is discrimination against people with disabilities - is deeply embedded in our society is no unknown fact. But when it rears its ugly head through mass media, and in the form of magazine covers no less, ableist attitudes are further perpetuated, making life even more difficult for those with disabilities and illnesses. Over the years, many magazines have carried brazenly ableist covers, enraging and prompting pushback by disability activists. This article is a collection of instances when our media has been supremely (and shamelessly) ableist. Instances of ableist magazine and newspaper covers through history Time Magazine (2003): Time Magazine ran a cover titled “Overcoming Dyslexia,” spreading gross misinformation about learning disabilities. The term “overcoming” implies that dyslexia is something to be conquered, rather than a difference to be understood and accommodated. This is especially wrong considering affirming language is crucial in shaping perceptions and attitudes towards disabilities and neurodivergent conditions. Interview Magazine (2015): In 2015, supermodel-entrepreneur Kylie Jenner was criticised for a photoshoot in Interview Magazine where she posed in a wheelchair. Disabled individuals and advocates found this use of a wheelchair as a fashion prop deeply offensive. Beth Grossman, Head of Policy at the disability charity Scope, remarked, “Having a non-disabled person in a wheelchair, as a provocative fashion prop, will offend many disabled people. It’s rare that we see aspirational and authentic reflections of disabled people in advertising and the media.” The Economist (2016): The Economist's April 2016 cover titled “Beautiful Minds, Wasted” was another egregious instance of blatant ableism perpetuated by mass media. Not only did the headline suggest autistic minds are wasted, the inappropriate puzzle piece depiction insinuated that autistic people are 'broken', need 'fixing', or complex beings who can't be 'figured out'. Patronising autistic people by using the ableist phrase "Beautiful Minds, Wasted" shows how even big, global publications don't make the effort to understand autism from a neurodiversity-affirming perspective. The failure to consult with autistic people and include their perspectives in the story was a significant oversight. The New Yorker (2023): The New Yorker stirred controversy with a cover featuring US political leaders using walkers. The cartoon depicted Donald Trump, Mitch McConnell, Nancy Pelosi, and Joe Biden as frail and elderly, using mobility aids they do not actually need. This portrayal was criticised for its ageist and ableist implications, suggesting that age and the use of mobility aids diminish one’s capabilities. The Economist (2024): And the Economist, astonishingly, did it once again with their July 4 cover attacking President Joe Biden, depicting him as a “befuddled old man” using a zimmer frame branded with the presidential seal. This imagery sparked widespread outrage for its ableist undertones, suggesting that mobility aid use equates to unfitness for leadership. Catarina Rivera, a prominent disability advocate, expressed her dismay on LinkedIn: “This week's The Economist cover is ableist, disgraceful, and deeply offensive. It suggests that someone who uses a walker as a mobility aid is unfit to run the country. Disabled people are very capable of leadership — period (not 'despite' our disabilities, just exactly as we are). Using a mobility aid isn't something that's shameful or that makes someone unfit for leadership.” Heather Thompson, another advocate, shared her personal struggle with internalised ableism: “I used to hate my walker; I struggled with my own internalised ableism every time I needed to use the walker in public. What would people think? Your magazine cover validates my fears by normalising these false beliefs. A walker does not represent decline, nor is it synonymous with intellectual weakness.” Julia M, an able-bodied elder, condemned the cover for its harmful implications: “This is the most insulting, discriminatory, ableist cover for a major publication that I can remember. As an able-bodied elder, I condemn this harmful, ageist, and slanderous artwork. This is trash.” These voices highlight the broader impact of such representations, which extend beyond the individual to affect the entire disabled community. The harm of ableist depictions Ableist depictions in the media do undeniable harm. Ableist behaviours, notions and attitudes encourage stereotypes, reinforce bias, and marginalise disabled individuals. When disability is used as an insult or a symbol of incompetence, it results in a culture of exclusion and discrimination. Ableist representations of disability and neurodivergence also contribute to internalised ableism among individuals with these lived experiences, resulting in shame and self-stigma due to negative societal attitudes. Disability advocates emphasise the importance of accurate, respectful representations in the media. As Catarina Rivera pointed out, “Let's not forget that FDR (Franklin D Roosevelt) was a disabled president and a wheelchair user. The impact of this cover extends beyond The Economist itself.” Ongoing instances of ableist behaviours in various institutions and the media highlights the need for continuous advocacy and education. As Heather Thompson said, “Some of the greatest courage I’ve witnessed has come from those stepping into a walker and taking their fierce first steps.” Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | बच्चे को ऑटिज़म के बारे में बताएँ या नहीं? - Disclosing my child’s autism

    क्या बच्चों को उनके ऑटिज़म के बारे बताना ठीक है? (विडियो की यूट्यूब लिंक के साथ) < Back Neurodiversity, Hindi, Parenting बच्चे को ऑटिज़म के बारे में बताएँ या नहीं? - Disclosing my child’s autism क्या बच्चों को उनके ऑटिज़म के बारे बताना ठीक है? (विडियो की यूट्यूब लिंक के साथ) MMS Staff 22 Jul 2024 3-min read अक्सर जब बच्चों का ऑटिज़म, डिस्लेक्सिया या किसी अन्य स्थिति के साथ निदान होता है, तो माता-पिता उन्हें उनके निदान के बारे में बताने से हिचकिचाते हैं। यह सवाल अक्सर उठता है कि क्या बच्चों को उनकी स्थिति के बारे में जानकारी देना सही होगा या नहीं। निदान के महत्व को समझना बच्चों को उनके निदान के बारे में बताने से पहले, यह समझना जरूरी है कि निदान के बारे में जानकारी क्यों महत्वपूर्ण है। जब बच्चे अपनी स्थिति के बारे में जानते हैं, तो वे अपनी चुनौतियों और क्षमताओं को बेहतर समझ सकते हैं। यह समझ उन्हें आत्मविश्वास और आत्म-स्वीकृति में वृद्धि देती है। व्यक्तिगत अनुभव और सामुदायिक उदाहरण हाल के वर्षों में कई ऐसे उदाहरण सामने आए हैं जहां लोगों ने देर से निदान होने के बाद अपने जीवन में महत्वपूर्ण बदलाव देखे हैं। अदिति गंगराड़े (मच मच मीडिया की फ़ाउंडर) बताती हैं कि उन्हें 24 साल की उम्र में ऑटिज़म और ADHD के बारे में पता चला। इससे पहले वे हमेशा यह सोचती थी कि वे बाकी लोगों से अलग क्यों हैं और चीजें सामान्य तरीके से क्यों नहीं कर पाती। निदान के बाद उन्हें अपने सवालों के जवाब मिले और उन्होंने खुद को समझने और स्वीकारने का नया रास्ता अपनाया। देरी से निदान के नकारात्मक प्रभाव कई लोगों के अनुभवों से यह भी पता चलता है कि अगर उन्हें पहले अपने निदान के बारे में पता होता, तो वे अपने जीवन में बेहतर निर्णय ले पाते। देर से निदान के कारण कई बार बच्चों को उनकी परिस्थितियों से निपटने के लिए आवश्यक समर्थन और संसाधन नहीं मिल पाते। जागरूकता की कमी और सामाजिक चुनौतियाँ दूसरी ओर, यह भी सच है कि ऑटिज़म और ADHD जैसी स्थितियों के बारे में जागरूकता और समझ बहुत कम है। जिन लोगों को अपने ऑटिज़म के बारे में पहले पता चला, उन्हें समाज के नकारात्मक व्यवहार और सीमित सोच का सामना करना पड़ा। माता-पिता अक्सर अपने बच्चों को उनकी विकलांगता के बारे में न बताने का निर्णय इस डर से लेते हैं कि लोग उनके बच्चे के प्रति बुरा व्यवहार कर सकते हैं। निदान के बारे में बताने के लाभ हालांकि, ऑटिज़म, ADHD, या किसी भी neurodivergent स्थिति में होना कोई बुरी बात नहीं है। यह सच है कि इन स्थितियों के साथ चुनौतियाँ आती हैं, लेकिन बच्चों को उनकी स्थिति के बारे में न बताने पर भी ये चुनौतियाँ बनी रहती हैं। इसके विपरीत, अगर बच्चे अपनी स्थिति के बारे में जानते हैं, तो वे इन चुनौतियों से निपटने के लिए बेहतर तरीके से तैयार हो सकते हैं। सही समय और तरीका बच्चों को उनके निदान के बारे में बताने का सही समय और तरीका महत्वपूर्ण है। इस निर्णय को लेने से पहले माता-पिता को पेशेवरों से सलाह लेनी चाहिए, जैसे कि विकासात्मक बाल विशेषज्ञ, अन्य माता-पिता जिनके बच्चे ऑटिस्टिक हैं, या ऑटिस्टिक वयस्क। इन सभी लोगों से परामर्श लेने के बाद ही निर्णय लेना चाहिए। जब माता-पिता को लगे कि समय और परिस्थिति सही है, तो यह निर्णय लेना फायदेमंद हो सकता है। इससे बच्चों को उनके जीवन में स्पष्टता मिलेगी और वे अपनी पहचान को बेहतर ढंग से समझ पाएंगे। हालांकि, दूसरों को बताने का फैसला बच्चों पर निर्भर करेगा कि वे अपनी स्थिति को साझा करना चाहते हैं या नहीं। समर्थन और मार्गदर्शन दोनों ही स्थितियों में, माता-पिता को अपने बच्चों के साथ खड़ा रहना होगा। यह सुनिश्चित करना जरूरी है कि बच्चे को हर स्थिति में उनका समर्थन और मार्गदर्शन मिले। अंत में, बच्चों को उनकी स्थिति के बारे में बताने का निर्णय एक संवेदनशील और महत्वपूर्ण निर्णय है। इससे बच्चों को आत्म-स्वीकृति और आत्मविश्वास मिलता है और वे अपनी चुनौतियों का सामना करने में सक्षम होते हैं। अगले कदम अगर माता-पिता यह निर्णय ले चुके हैं कि वे अपने बच्चे को उनके ऑटिज़म या अन्य neurodivergence के बारे में बताना चाहते हैं, तो उन्हें यह भी जानना चाहिए कि इस बारे में बात करते वक्त किन चीजों का ख्याल रखना चाहिए। हमारे अगले यूट्यूब विडीओ में हम इस पर चर्चा करेंगे कि बच्चों को उनकी स्थिति के बारे में किस तरह से बताया जा सकता है और इस बातचीत को कैसे संवेदनशील और प्रभावी बनाया जा सकता है। यह लेख को आप विडीओ के रूप में देख सकते हैं: https://www.youtube.com/watch?v=Lj535LNEJeE Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Navigating the invisible: Living with autism and fibromyalgia

    A neurodivergent Indian’s journey understanding chronic pain & finding community < Back Neurodiversity, Disability, Health Navigating the invisible: Living with autism and fibromyalgia A neurodivergent Indian’s journey understanding chronic pain & finding community Akshay CM 16 Jun 2024 7-min read The thing with chronic pain is that you never get used to it. It lingers in your mind and body like background music that refuses to stop playing. You start loving sleep a lot because it drowns out the pain; it is an escape, a few precious hours where you are not aware of your body. I remember talking to my manager last year. I had said that I wanted to lie down every two hours between work because of the intense back pain caused by fibromyalgia. I was asking for accommodations, a place to lie down for 10 minutes. They responded, "You can go lie down on the floor in the production room." To say that I felt humiliated would be an understatement. I felt deeply embarrassed for asking, as if my needs were unreasonable. I tried to respond back, but my voice got somewhere stuck in my throat. You gape at words. Meanwhile, the relentless back pain hits you even harder. I was diagnosed with fibromyalgia in 2015, during my second year of my Bachelor’s degree. At first, you are happy that you have a word to describe your pain, a label for your ordeals, a sigh of relief—I'm not alone in feeling this. You have the urge to find all the medicines, to go to countless orthopedics and specialists, to undergo all the tests. The white halls of hospitals become imprinted in your memory. Despite all the efforts, you still struggle to sit up straight. All the medicines you chug in desperation cause you immense stomach pain and headaches that never end. Then you get to know that there is no cure. The pain will last as long as I live. This realization sits as a dark cloud on your chest. You struggle to breathe, to be okay with this new reality. Every movement hurts. The thing with the spine is that it’s connected to almost all body parts — your hands and legs, your neck. Every time I move, it hurts. Every time I lie down, the pain doesn’t stop. People around you do not understand what’s going on. That’s the thing with having an invisible disability, you form a façade to navigate through daily life. From the outside, I might appear fine, even normal. But underneath that exterior, there’s a constant battle waging between my mind and body. Friends offer their support, but their inability to see the full extent of my struggles often leaves me feeling isolated. They see me laughing, participating in activities, and assume I’m doing well. They don’t see the immense effort it takes just to get out of bed, the planning involved in every single action to manage pain and sensory overload. It’s not their fault—they simply cannot see the invisible war I’m fighting. And then, almost two years ago, I realised I was autistic. This new understanding added another layer to my experience with fibromyalgia. Autism makes me highly sensitive to sensory input. Bright lights, loud sounds, and strong smells are annoying and painful. Fibromyalgia heightens this sensitivity. The chronic pain from fibromyalgia makes my already heightened senses feel even more acute. The slightest touch can feel like a sharp stab, a loud noise can send a shockwave through my body, and a bright light can feel like a physical assault. It's as if my body is constantly in a state of alert, bracing for the next wave of discomfort. Fatigue is another relentless companion. Social interactions, already exhausting due to autism, leave me completely drained. Fibromyalgia adds a layer of fatigue that never seems to lift. Even after a full night’s sleep, I wake up feeling as though I haven’t rested at all. This constant exhaustion affects every aspect of my life, making it difficult to function and engage in everyday activities. Last year, there were many days when I was unable to get up from bed. Fibromyalgia is a nightmare; you just let the pain visit you, take its time, and let it be there. The pain becomes a constant companion, one that never leaves, one that doesn't even allow you to forget it for a moment. Living with autism and fibromyalgia means that every day is an exercise in endurance. The cognitive fog, or "fibro fog," adds another layer of difficulty. Autism affects my executive functioning skills, making planning, organizing, and completing tasks challenging. Fibro fog compounds these issues, causing memory lapses and difficulty concentrating. Some days, even the simplest tasks feel monumental. Thes smallest of things like getting out of bed and brushing feels like a victory. The emotional toll is also significant. Being autistic, I struggle with identifying and expressing my emotions, a condition known as alexithymia. This makes it hard to articulate what I’m feeling or why, leading to misunderstandings and a sense of isolation. Depression and anxiety are constant shadows, exacerbated by the frustration of dealing with an invisible illness that others often don’t understand. Social interactions are very challenging. The fatigue and pain make it hard to maintain relationships. When I do manage to interact with others, my conditions often make me feel misunderstood. People can’t see my pain or sensory overload, so they don’t always understand why I might need to leave early or why I’m not as engaged. This leads to a sense of loneliness, as if I’m fighting these battles alone. Office spaces defeat me; I try to mask all day. By the time I come back to my room, I have no energy except to crash and sleep, waiting for the next day. Simple things like grocery shopping or attending a social gathering require immense effort and planning. The unpredictability of my conditions means I never know how I’ll feel from one moment to the next. Some days, I can manage a semblance of normalcy; other days, even getting dressed feels like an accomplishment. Living with both autism and fibromyalgia is like navigating a complex, ever-changing ground. Each day presents new challenges and obstacles. The interplay between sensory overload, chronic pain, cognitive fog, and emotional turmoil creates a unique and often overwhelming experience. And probably, the worst thing is you have no idea what’s going on with you. With this piece, my idea is not to rant. I just wanted to give a glimpse of countless people like me who have a hard time with their body, with their mind, and the world that refuses to accept and understand them. I end with no tips or takeaways; the only thing I want to say in the end is that understanding and empathy can go a long way in making our invisible battles just a little bit easier to bear. So when we ask for accommodations, when we ask you to sit with us, when we ask you to believe our lived experience, please listen to us. When we ask for that unexpected leave, know that it's not a sign of weakness or a lack of commitment. It’s a necessity, a crucial part of managing our health and well-being. When I request to work from home, it's not because I want to slack off, but because the environment of the office can sometimes be too overwhelming. The bright lights, constant noise, and social interactions can trigger sensory overload and exacerbate my pain. A quiet, controlled environment allows me to be more productive and less distracted by my symptoms. When I need to take frequent breaks or lie down, understand that it’s a way to manage the intense pain and fatigue that come with fibromyalgia. It’s not about wanting special treatment; it’s about being able to function at a basic level. So, when we ask for understanding, accommodations, or simply for someone to listen, please know that we are not asking for special favours. We are asking for the opportunity to live our lives as fully as possible, to contribute, to be included, and to not be defined solely by our conditions. Our requests are not unreasonable. We are asking for a chance. Thank you for listening :) “To be truly radical is to make hope possible rather than despair convincing.” Raymond Williams P.S. Here are some signs I found that might indicate fibromyalgia or chronic pain/fatigue: Persistent pain that affects multiple areas of the body. Feeling tired even after a full night's sleep and experiencing exhaustion after minimal physical activity. Experiencing memory lapses, difficulty concentrating, and feeling mentally foggy. Feeling pain from pressure or touch that wouldn't normally be painful. Trouble falling or staying asleep, or waking up feeling unrefreshed. Akshay CM (he/ they) is a queer-autistic and disabled Diversity, Equity, and Inclusion (DEI) professional and organizational sociologist. With a rich background in international marketing networks, fintech services, startups, and educational consultancies, Akshay has spent the last several years developing and implementing feminist DEI strategies, conducting cultural audits, and leading DEI trainings across multiple sectors. Follow Akshay CM on LinkedIn Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | My mental health as a woman with progressive Deafblindness in India

    On the occasion of Helen Keller Day & Deafblind Awareness week, Shrutilata Singh shares her ongoing struggle for inclusion < Back Disability, Gender, Health My mental health as a woman with progressive Deafblindness in India On the occasion of Helen Keller Day & Deafblind Awareness week, Shrutilata Singh shares her ongoing struggle for inclusion Shrutilata Singh 27 Jun 2024 4-min read My name is Shrutilata Singh. I am a woman with progressive deafblindness. Here, the word “progressive” means I am slowly losing both vision and hearing day by day. I completed my Bachelor's degree in English and also earned a diploma in Physiotherapy from an association for the blind. I worked as a paediatric physiotherapist for three years, and for the last two-and-a-half years, I have been working with Sense India, advocating for the rights of people with deafblindness in India. Although deafblindness has been recognized in the Rights for Persons with Disabilities Act of 2016 due to sustained advocacy by Sense India , there is still very little awareness about it. Deafblindness is a unique disability in which two vital senses are affected to varying degrees. In my case, I was able to hear and see much better in my early days, but I have slowly lost most of my vision and hearing. My gender, being a girl, adds to my challenges. I live in a developing country where we hear about various crimes committed against women every day. In school, due to my hearing impairment, I was unable to socialise and faced a lot of discrimination from my classmates as well as educators. They would make me sit separately from others. All these behaviors added to the mental stress that I felt. I felt inferior compared to others. There was no feeling of self-worth as I was made to believe I was different in a negative way and that whatever happened to me was my own fault. At an age when students enjoy time with school friends, I was depressed, isolated, and left behind. I was unsure of what the future held. I wasn't learning academics in school, or any social skills. Today, I have come a long way and learned social skills. But the challenges remain the same. I attend family functions, get-togethers with friends, and even tours with loved ones, but due to communication issues, I always feel neglected. It is not like they do not talk to me while I am there in the group, but the communication is very limited, and I cannot be a part of every conversation. People keep telling me I am inspirational as I have achieved a lot despite my challenges. They think I am positive all the time. But they do not know that it takes a lot of effort to keep myself positive. Every day, I am reminded of the fact that I have progressive deafblindness, have already lost much of my vision and hearing, and will lose what’s remaining as well. Although I know the importance of preparing myself for the future, I still am unable to accept reality. Earlier I found myself in distress when I realised that I could no longer hear my favourite song or read books like before because my eyes got tired. Each time, I’d have to find something else to stay positive. Recently, I underwent cochlear implant surgery. I’m now able to enjoy music, interact with people, and talk on the phone. My interaction with my family and close friends has increased. The role of community and technology is very important in bringing these changes for deafblind people. As an advocate, I work with groups of deafblind people from all over India. Most of them have more or less the same issues. Those with progressive deafblindness find it toughest as their families also need to adjust to the changes and accept them. Deafblindness is still largely a neglected impairment even within the disability community. Many people do not know about dual sensory loss and think that because of this disability we cannot do tasks like other disabled people. We continue to feel like “misfits” within society, even within the disabled community. There have been quite a few incidents when I attended gatherings or programs related to disability but ended up feeling lonely as I could not understand what was going on around me, and it is not possible for those who know how to communicate with me to be there with me all the time. Every now and then, I have to pick myself up and force myself to focus on the positive side. Years ago, I did try to end my life by taking pills, but thankfully changed my mind after thinking about my parents. Although the feelings remain the same, we just learn to cope better. I am glad I have a lot of work to divert my attention from the feelings that threaten to drag me into depression every time. It is a never-ending struggle to fit in with family, friends, and the community. Hence, the role of society as a whole is critical in ensuring that we become active participants in it. People should be aware of how their behaviour towards us affects our mental health. And good mental health is very important to live a happy life. Shrutilata Singh has progressive deafblindness. Since joining Sense International India in April 2020, Shrutilata has been engaging with stakeholders to advocate for Rights of People with Deafblindness in India. She is involved in rights-based advocacy as well as capacity building for family members and fellow young people with deafblindness. Shruti has presented papers in national and international conferences as a role model in Deafblindness. She has also participated and contributed as a speaker at (Global Disability Summit) GDS 2022, (United Nations Girls Education Initiative) UNGEI, (United Nations Conference of State Parties) UNCOSP with latest at Civil Society 20 (C20) Summit 2023. She is also an Executive member of Commonwealth Children and Youth with Disability Network (UNGEI Representative). Connect with her on LinkedIn . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | Dua Lipa opens library in Portugal with 100 banned and censored books

    The singer's latest literary initiative celebrates books that challenge censorship, power, and silence < Back News, Gender, Education Dua Lipa opens library in Portugal with 100 banned and censored books The singer's latest literary initiative celebrates books that challenge censorship, power, and silence MMS Staff 2 Aug 2026 3-min read Dua Lipa is adding another chapter to her growing influence beyond music. The Grammy-winning singer has unveiled the Manifesto Library, a permanent collection of nearly 100 banned and censored books housed inside the iconic Livraria Lello bookstore in Porto, Portugal. The new library is part of BABELL – City of Books, an international literary festival, and was created in partnership with Lipa's Service95 Book Club, which she launched in 2021. The project brings together books that have been banned, challenged, or censored across different countries, while highlighting stories that question authority, amplify marginalized voices, and preserve historical memory. Calling the initiative "a dream partnership," Lipa said the library reflects the mission she has long envisioned for Service95. “When I founded the Service95 Book Club, my ambition was for it to become a home for writers and readers, wherever they are and whatever their circumstances,” she said. Explaining the inspiration behind the collection, Lipa noted that many of the featured titles have faced restrictions because of themes including race, gender, sexuality, politics, or criticism of those in power. “This library is a shrine to books that have disappeared, to authors whose courage unmasks structures of power and control, and to readers who refuse to be told what book they are allowed to read,” she said. “Sometimes the most subversive thing you can do is read a book and then talk about it.” The Manifesto Library is organized into four themes — Power, Control, Voice, and Memory — each exploring different ways literature has challenged censorship and encouraged critical thinking. The Power section features books that examine political systems, social hierarchies, and institutional authority. Among the titles are George Orwell's Nineteen Eighty-Four , Simone de Beauvoir's The Second Sex , Arthur Miller's The Crucible , and Reginald Dwayne Betts' Felon . The Control collection explores surveillance, propaganda, and ideological influence through works such as Margaret Atwood's The Handmaid's Tale , Ray Bradbury's Fahrenheit 451 , Aldous Huxley's Brave New World , George Orwell's Animal Farm , and Franz Kafka's The Trial . Under Voice, the library celebrates authors whose work has expanded conversations around race, identity, gender, and belonging. The collection includes Maya Angelou's I Know Why the Caged Bird Sings , Alice Walker's The Color Purple , Angie Thomas' The Hate U Give , Salman Rushdie's The Satanic Verses , Arundhati Roy's The God of Small Things , and Maia Kobabe's Gender Queer . The final section, Memory, focuses on books that document war, exile, dictatorship, and collective trauma. Featured works include Anne Frank's The Diary of a Young Girl , Toni Morrison's Beloved , Marjane Satrapi's Persepolis , Markus Zusak's The Book Thief , Alexei Navalny's Patriot , and Olga Tokarczuk's The Books of Jacob . According to Livraria Lello, the library is intended to encourage readers to engage with ideas that have historically faced suppression rather than avoid them. "For 120 years, Livraria Lello has been built on a simple conviction: the book is a technology of freedom," said Francisca Pedro Pinto, the bookstore's Head of Brand. "Because what is at stake is not only the future of reading, but a society's ability to imagine, interpret and build its own future." Lipa has increasingly positioned herself as an advocate for literature through her monthly Service95 Book Club, where she recommends books and interviews authors on an accompanying podcast. She is also set to curate the 2026 London Literature Festival at the Southbank Centre. The launch of the Manifesto Library arrives amid ongoing global debates over book bans and censorship in schools and public libraries. By bringing together works that have sparked controversy across generations and cultures, the collection invites visitors to explore literature that has challenged dominant narratives, and to decide for themselves which stories deserve to be read. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | New film celebrates paralympic gold medalist Murlikant Petkar

    Kartik Aaryan-starrer Chandu Champion is a tribute to the 1965 war hero & para athlete from India < Back Disability, News New film celebrates paralympic gold medalist Murlikant Petkar Kartik Aaryan-starrer Chandu Champion is a tribute to the 1965 war hero & para athlete from India MMS Staff 14 Jun 2024 3-min read Bollywood - at long last - seems to be going big on disabled stories. After the release and success of the Rajkumar Rao-starrer Srikanth, based on the life of visually-impaired entrepreneur Srikanth Bolla, director Kabir Khan and producer Sajid Nadiadwala have teamed up on Chandu Champion, which hit theatres today. Chandu Champion is a sports drama starring Kartik Aaryan. The film is based on the life of Murlikant Petkar, an ex-jawan in the Indian Army who went on to become India's first Paralympic gold medalist, tracing his journey from soldier to ace sportsman. From Sangli to the global stage Born on November 1, 1944 in Peth Islampur, Maharashtra, Petkar developed a keen interest in athletics early on in life, particularly wrestling and hockey. Even after joining the Indian Army, he continued to excel in sports. According to his website , the 1965 Indo-Pakistan war left him severely injured and with a permanent spinal cord injury as well as memory loss. Acquiring a disability Within 2 years, Petkar was well on the road to recovery. In 1968, he was already participating and making a mark in state-level sports such as shot-put, javelin throw, discus throw, weightlifting, table tennis and archery. During this time, Petkar trained vigorously, mastering the freestyle swimming technique with just one functional arm. And sure enough, he clinched gold in the 50-metre freestyle swimming event at the 1972 Summer Paralympics held in Germany, showing the world that success in sport isn’t reserved only for those who fit a traditional athletic mould. Petkar also set a world record with a time of 37.33 seconds, one that stood for many years. Petkar has continued to be involved in sports and has been an advocate for sports and the rights of disabled individuals in India. He has received various awards and recognition, though many feel his contributions and achievements have not received the level of recognition they deserve. In 2018, the government of India honoured him with the Padma Shri, one of the country's highest civilian awards, acknowledging his contributions and achievements in sports. Recognition and representation Chandu Champion releases at a crucial time in history, when discussions around the portrayal of disabled individuals in media are increasingly becoming more and more prominent, and disability advocacy is at the highest it has been. But all said and done, as a society we still need to deeply reflect on how disabled athletes - and people in general - are represented in our films and TV. While the stories of disabled people need to be told, we also need to make sure that their portrayals do not oversimplify their lives but instead offer a nuanced view of their lived experiences. It is now more crucial than ever to discuss the delicate line between celebrating achievements and veering into the territory of inspiration porn. It is also very important to remember that disabled people do not exist only to make the able-bodied feel better about their own lives. If you’ve watched Chandu Champion, we’re keen to hear your thoughts about the disability representation in the movie. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

  • Much Much Spectrum | The Disability Roundtable

    Real stories, real impact: Changing views on disability in India < Back The Disability Roundtable Real stories, real impact: Changing views on disability in India The Disability Roundtable campaign addressed the marginalization and workforce underrepresentation of the Indian disability community. It aimed to dismantle misconceptions about people with disabilities, specifically: Highlighting the false notion that disabled people are unemployable. Challenging the view of disabled individuals as burdens or objects of charity. Shifting the narrative from seeing disabled people solely as inspirational figures to recognizing them as well-rounded individuals. Countering the misconception that disabled people are incapable of love, dating, relationships, marriage, or family. https://www.youtube.com/watch?v=LfClpKiuJyg Existing data on these topics: According to the 2011 census, 36% of the 26 million disabled individuals in India are employed. However, a significant gender gap exists here with 47% male and only 23% female participation. There is a widespread misconception that people with disabilities are unemployable. This stigma exists due to a lack of awareness about the abilities and strengths of disabled individuals. Disabled individuals are often viewed through a lens of pity and charity rather than respect and opportunity. Cultural narratives often paint disabled people as inspirational figures overcoming immense odds, but it’s crucial to see them as individuals with diverse aspirations and capabilities. Many disabled individuals face infantilization, undermining their autonomy, and are often considered unfit for relationships, marriage, or parenting. Our approach: Leading with lived experience, we featured seven self-advocates with intellectual and developmental disabilities sharing their stories. The campaign was designed to challenge misconceptions, highlight the capabilities and strengths of these individuals, and promote inclusive employment practices within corporates. Objective & goals: To promote better support systems for disabled individuals. To increase the representation of disabled people in the workforce. To foster inclusive work cultures and policies. To enable and empower self-advocacy among disabled individuals. Challenges: Raising awareness about a complex and often marginalized topic. Countering deeply ingrained stigma and societal beliefs. Engaging a diverse target audience. Solutions devised: To bring in corporate leaders, recruiters, parents, caregivers, and the general public unfamiliar with the experiences of disabled individuals in India we decided to highlight the personal stories of the 7 self-advocates, focusing on their dreams, ambitions, career choices, and the societal barriers they face. The topics that our research showed us as relevant in this space included careers, relationships, and social inclusion. Campaign deliverables: 1 x short film Ancillary assets: 4 x carousel posts 10 x reels 8 x stories Campaign channels & specifics: Social media platforms (Instagram, YouTube, LinkedIn, Facebook) and community forums. To maximize reach and engagement across different audience segments. Continuous release over a quarter to maintain consistent traction and engagement. Timelines & Duration: The campaign spanned 3 months, with regular updates and content releases to sustain engagement. Impact: Views: 750K+ Shares: 1,000+ Reach: 1.5million+ Engagement: Overwhelmingly positive comments, highlighting a deep understanding and empathy towards the topics. Analysis: Positive reception for authentic portrayals and sensitivity in depicting a diverse range of lived experiences. Conclusion & learnings: The campaign successfully accomplished its objectives by promoting inclusivity and self-advocacy. Authentic storytelling resonated deeply with the audience, leading to a significant shift in perceptions around disabled employability and the strengths of neurodivergent people. Focus on lived experiences and engaging narratives helped rope in a diverse general audience. Way forward: Widening the scope of the campaign to include more self-advocates from different regions, backgrounds, nationalities, skills and marginalized identities. Developing additional content focused on specific issues like education, healthcare, and legal rights. Continuing partnerships with corporate leaders to implement inclusive policies and practices. Exploring potential partnerships with other disability rights organizations. WhatsApp Facebook X (Twitter) LinkedIn Copy link Much much relate? Share it now! < Back CAMPAIGNS

  • Careers | Much Much Spectrum

    Explore career opportunities with us and join a team that values innovation and collaboration. Discover roles that challenge and inspire growth in a supportive environment. Apply today to contribute to our mission and advance your career. We offer a chance to make a real impact at the intersection of media and social impact. Careers at Much Much Media Hey there! Thanks for showing interest in working with us. We're always on the lookout for writers, producers, directors, parents, caregivers, experts and people from all walks of life who believe they could contribute to our mission. Fill out the form below and someone from our team will get in touch with you if there's a match. For inquiries, write to careers@muchmuchmedia.com Come work with us First name* Last name* Email* Phone Position Available from Tell us something interesting about yourself* Upload your CV Link to CV/ LinkedIn/ portfolio APPLY

  • Much Much Spectrum | Election 2024: Why climate change tops the agenda for India's youth

    India's Gen Z voters rank climate change as a top priority, yet political parties fall short on delivering substantial solutions. < Back Climate, Neurodiversity Election 2024: Why climate change tops the agenda for India's youth India's Gen Z voters rank climate change as a top priority, yet political parties fall short on delivering substantial solutions. Aditi Gangrade 18 May 2024 5-min read As an Indian Gen-Z neurodivergent woman and filmmaker dedicated to social impact stories, I find it imperative to address the urgent concerns of my generation regarding climate change. For 18 million young Indians voting for the first time, climate change is not just a buzzword but a pressing societal issue. According to a Deloitte survey, climate change ranks as the third most important concern for these young voters. This prioritization reflects a profound awareness of the environmental crises that our nation faces. India, with over 80% of its population residing in districts vulnerable to climate-induced disasters, is at a critical juncture. The World Bank warns of rising temperatures, shifting rainfall patterns, declining groundwater levels, retreating glaciers, and severe cyclones. These changes threaten livelihoods, food security, and our economy. The adverse effects are already evident, with more than 9 million people suffering due to climate change, as reported by the World Meteorological Organization (WMO). Rising temperatures disproportionately affect marginalized communities, including low-income families, disabled and neurodivergent individuals, and rural populations. These groups often lack the resources to adapt to extreme weather conditions, resulting in heightened vulnerability. For instance, neurodivergent people may experience increased sensory sensitivities and mental health challenges due to extreme heat, exacerbating existing difficulties. Despite the glaring reality, climate change has scarcely made a mark in election campaigns over the years. Reviewing the 2024 election manifestos, we see a lack of substantial commitment. The Congress manifesto mentions “climate” ten times and includes a dedicated section on “Environment, Climate Change, and Disaster Management.” In contrast, the BJP’s ‘Modi Ki Guarantee 2024’ references it just four times. Both parties propose measures such as Namami Gange, Clean Air Programme, Green Credit, and E-waste management from the BJP, and redefining forest cover and stopping toxic discharges into rivers from Congress. However, these steps are insufficient given the scale of the crisis. Climate activists echo this sentiment. Debasree Das, a Mumbai-based climate activist, highlights the unsustainable practices of the fashion industry, noting that 87% of clothing, equivalent to 40 million tons annually, ends up in landfills. She calls for a revolutionary approach to make the fashion industry more sustainable and reduce waste, as per TOI. Poornima Sai, a 22-year-old climate activist, underscores the need for better urban planning to prevent environmental degradation. Recent landslides in Joshimath and Uttarkashi are stark reminders of the consequences of neglect. Moreover, noise pollution and population control are critical concerns for Gen Z voters, yet they find little mention in party manifestos. The silence on these issues is deafening, especially when they directly impact our quality of life. Our generation is demanding more than token gestures; we seek comprehensive policies and concrete actions. Here are some suggestions from Gen Z voters on climate action: Implement Strict Regulations on Industrial Pollution: Enforce stringent laws to curb emissions from factories and promote cleaner production methods. Promote Sustainable Agriculture: Encourage farming practices that conserve water, reduce pesticide use, and enhance soil health. Invest in Renewable Energy: Increase funding for solar, wind, and other renewable energy projects to reduce reliance on fossil fuels. Enhance Public Transportation: Develop efficient and eco-friendly public transport systems to reduce the carbon footprint from vehicles. Raise Environmental Awareness: Implement educational programs to inform citizens about the importance of sustainability and how they can contribute. Strengthen Disaster Management Systems: Improve early warning systems and disaster response mechanisms to protect vulnerable communities from the impacts of climate-induced disasters. Ensuring timely evacuation and providing adequate relief can save lives and reduce suffering. Support Reforestation Projects: Launch large-scale tree planting drives and protect existing forests to enhance carbon sequestration and biodiversity. Engaging local communities in these projects can ensure their success and sustainability. Improve Waste Management: Develop robust recycling programs and promote the use of biodegradable materials to reduce landfill waste. Implementing strict regulations on plastic use and enhancing municipal waste collection can help manage urban waste more effectively. Encourage Green Building Practices: Promote the construction of energy-efficient buildings through incentives and regulations. Incorporating green roofs, rainwater harvesting systems, and energy-saving technologies can make urban infrastructure more sustainable. Foster International Collaboration: Collaborate with other nations to share knowledge, technology, and resources for tackling climate change. Participating in global climate initiatives and honoring international agreements can enhance India's climate resilience. As a neurodivergent individual, I often experience heightened sensitivity to environmental changes. The rising temperatures and increasing frequency of natural disasters affect not just physical health but mental well-being too. Climate change exacerbates stress, anxiety, and other mental health challenges, making it even more urgent for leaders to act decisively. At Much Much Spectrum, our mission is to make social impact stories accessible and engaging. We believe in amplifying the voices of those affected by climate change and advocating for meaningful change. It’s time for political parties to align with the priorities of Gen Z voters and demonstrate a real commitment to combating climate change. Our future depends on it. What are the climate change policy reforms you want parties to address? Tell us in the comments Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

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