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We examine what constitutes good and bad representation as per SC's latest guidelines < Back Disability, Media Disability Humour vs Disabling Humour in media We examine what constitutes good and bad representation as per SC's latest guidelines MMS Staff 10 Jul 2024 3-min read In a landmark moment in Indian history, the Supreme Court on July 8 issued a series of guidelines for the depiction of disabled and neurodivergent individuals in films, TV shows and online content. The guidelines are for creators, directors, producers and various other stakeholders in media that play a role in creating and disseminating films and content in the public domain. One of the sections in the final document released by the SC, titled Caveat, clearly laid down the distinction between disability humour and disabled humour. While the former ‘challenges conventional wisdom about disability,’ the latter ‘demeans and disparages persons with disability,’ the order said. Despite the history and the obsolescence of the medical model, humour is not universally denounced in the context of disability. It is now being increasingly used as a sophisticated literary medium for engagement with the society by persons with disabilities. It familiarises the society with the lived experiences of persons with disability, thereby dispelling prejudicial myths, and sensitising people. Challenging notions of ‘otherness’ or ‘inferiority’ associated with persons with disability, humour creates an equal space. Comics with disabilities use self-deprecating humour to critique the social order and counter stereotypical images101. They bring stereotypes to the fore and rely on them in order to dispel them. Humour is a reclamation of the public discourse by persons with disabilities who are pushing back against the dominant, ableist narratives around disability. Below, we’ve broken down the key differences (with examples) of what constitutes disability humour and what falls under disabling humour. Disability humour is: Empowering. It pokes fun at the social barriers and stereotypes faced by disabled individuals. It does not make fun of the disabled individuals themselves. Inclusive. It includes disabled people in the creation process and its delivery, ensuring authenticity and respect. Educational. It highlights the misconceptions that exist, and seeks to educate the audience about disability through humour. Positive in its representation. It shows disabled characters as multidimensional individuals, capable of having a sense of humour and leading fulfilling lives. Contextually sensitive. It avoids reinforcing negative stereotypes or perpetuating harmful narratives about this diverse community. Disabling humour, on the other hand, is: Harmful. It pokes fun at disabled individuals, or their disabilities, reinforcing negative stereotypes and prejudices. Exclusionary. It is often created and disseminated by non-disabled individuals - or individuals with little to no exposure to disabled lives - without the input or perspective of the disabled community. Ignorant. It reflects a lack of understanding about the realities of living with a disability. Negative in its representation. It portrays disabled characters in a negative light, often as objects of pity or ridicule. Insensitive. It lacks empathy and is insensitive to the impact of the humour on disabled individuals and the broader disability community. To sum it up, the guidelines say that humour can be a powerful tool for positive representation and awareness when done respectfully and inclusively. On the other hand, humour that reinforces harmful stereotypes and further marginalises disabled individuals should be avoided in media representation. Here are some examples of both: Disability humour: A disabled comedian making fun of inaccessible public spaces to highlight the absurdity and need for change. TV shows like ‘Speechless,’ where disabled characters are portrayed with depth and their humour is rooted in everyday experiences. Comedians like Maysoon Zayid, Josh Blue, and Hannah Gadsby use their talent and sense of humour to break down stereotypes and talk about their lived experiences. Disabling humour: Jokes that rely on mocking disabled individuals, such as making fun of someone’s gait or speech, to demean and belittle them. Using disabled characters as the butt of jokes, like in the Hindi film Golmaal where a speech disfluency is used for cheap laughs without any real representation. And finally, here’s some examples of good and bad representation: Shows such as ‘Special,’ which was created by and stars a gay man with cerebral palsy, using humour to explore real-life challenges. Comedy sketches such as ‘Nanette’ by Hannah Gadsby where humour is used to teach the audience about disability. And on the other side of the fence, there’s Dr Evil's sidekick, Mini-Me, in ‘Austin Powers,’ is routinely ridiculed for their size. The Golmaal series, which makes fun of speech disfluency, deafness, blindness and other disabilities through its crass humour. The Bollywood film Housefull 3 in which the three lead characters fake their disabilities. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Newly opened Sagar Express will empower neurodivergent individuals through meaningful employment < Back News, Neurodiversity, Work Delhi High Court welcomes neurodivergent run cafe Newly opened Sagar Express will empower neurodivergent individuals through meaningful employment MMS Staff 7 Jul 2024 2-min read Starting next week, the Delhi High Court will see the opening of Sagar Express, a cafe run entirely by neurodivergent individuals. Aimed at creating meaningful employment opportunities centred around a strengths-based approach to neurodivergence, the cafe is set to break down societal barriers and stigma that persist in society about the capabilities of neurodivergent individuals. The initiative is spearheaded by Senior Advocate Ravi Gupta, chairman of the Shaurya Foundation Trust (SFT), who has a deeply personal connection to the cause. “The main motive of opening this cafe is to empower such persons financially,” Gupta shared in this Indian Express article, emphasising the importance of financial independence for neurodivergent individuals. Upon its opening, Sagar Express will be staffed by six neurodivergent individuals including those who are autistic. From managing the counter and handling sales to serving South Indian cuisine, these employees will be at the heart of the cafe's operations. The cafe, a collaborative effort with the well-known restaurant chain Sagar Ratna, is the culmination of two years of intensive staff training. “The majority of persons that will run the cafe will be those with neurodiversity… they’ll be given managerial positions,” Gupta said. The decision to have neurodivergent individuals in leadership roles ensures that the staff not only gain employment but also take on significant responsibilities in the organisation, showcasing their skills and competencies in a real-world setting. It goes to show that neurodivergent individuals are competent leaders. Gupta's journey into supporting neurodivergent adults began in 2002 when he and his wife Rani adopted a boy named Shaurya. Diagnosed autistic before his second birthday, Shaurya became the inspiration for the couple's dedication to this cause. Since 2011, SFT has been actively working to support and train neurodivergent adults. The opening of Sagar Express is another decisive step towards inclusive employment. Not only will it demonstrate that neurodivergent individuals can excel in diverse roles, it'll also serve as a model for other organisations to follow. Some other restaurants & cafes run by disabled and neurodivergent people in India include: Cafe Arpan by Yash Charitable Trust Soho House Mumbai The Chocolate Room Mitti Cafe Aditi's Corner KFC India Mirchi & Mime Madeira & Mime Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Paramjeet Bisht of Uttarakhand practised his race walking only past 9 pm to avoid judgemental onlookers < Back News Youth ridiculed for ‘funny walking style’ represents India at Paris '24 Paramjeet Bisht of Uttarakhand practised his race walking only past 9 pm to avoid judgemental onlookers MMS Staff 3 Aug 2024 1-min read A 23-year-old resident of Uttarakhand - teased by the residents of his village for his ‘funny’ gait - represented India yesterday in the men’s final of the 20-kilometre walk at Paris Olympics 2024. On Thursday, Paramjeet Singh Bisht reportedly finished 37th in the 20 km men’s final where he took part alongside two other Indians - Vikash Singh and Akshdeep Singh. A native of Khalla village in Chamoli district Uttarakhand, Bisht used the roads of his village to practise for the event when they were secluded past 9 pm every day. He wanted to avoid the gaze of the other villagers, who ridiculed him for his ‘funny walking style,’ Bisht has said . “They would often laugh at me... as they were not aware it’s a globally recognised sport.” While Bisht clocked 1 hour, 23 minutes and 48 seconds in the finals, Singh crossed the finish line in 1 hour, 22 minutes and 36 seconds, and Akshdeep pulled out of the race around the 6-kilometre mark. Bisht presently holds the national record for the under-17 and under-19 men’s 5-kilometre walk events. In 2022, he joined the Indian Navy as a senior secondary recruit. “It was a great journey for me,” Bisht simply wrote on his Instagram after the race. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

A series featuring people with different backgrounds discuss important topics through personal experiences and expert opinions. < Back Series Unheard Stories A series featuring people with different backgrounds discuss important topics through personal experiences and expert opinions. To celebrate International Women's Day ‘23 we featured 11 incredible women who shared their honest and unfiltered experiences of ableism, gender bias, microaggressions, and exclusion. From autism and ADHD to disability and caregiving, these women give voice to the discrimination and challenges that women with disabilities encounter every day. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back ORIGINALS

Reflecting on the disability advocate's legacy on his birth anniversary < Back Disability, Neurodiversity Remembering Javed Abidi: A pioneer of disability rights in the global South Reflecting on the disability advocate's legacy on his birth anniversary MMS Staff 11 Jun 2024 3-min read Javed Abidi, India’s towering figure in the disability rights movement, passed away in March, 2018 due to a chest infection, at the age of 53. The legacy he leaves behind is monumental, having spearheaded transformative changes that reshaped how disability is perceived and addressed in India and beyond. We remember him on his birth anniversary, reflecting on his journey, battles, and the mark he left on the world. Born this day in 1965 in Aligarh, Uttar Pradesh, Abidi's life was marked by personal challenges from an early age due to spina bifida, a condition that went untreated for years, leading to severe complications. Despite this, Abidi's resolve only grew stronger. After moving to the United States for treatment and education, he graduated from Wright State University well-equipped with both personal experience and academic insight into the world of disabilities. Returning to India in 1989 with a determination to make a difference, Abidi ventured into journalism. His path soon took a pivotal turn towards activism, driven by the dire state of disability rights in India. In 1993, he began his official journey into advocacy, laying the foundations for what would become a nationwide movement for disability rights. Abidi founded the Disability Rights Group (DRG) in 1994, which quickly became a cornerstone for advocacy in the disability space. His efforts were instrumental in the enactment of India’s Disability Act of 1995, a groundbreaking law that laid the groundwork for future advancements in disability rights in India. Abidi's advocacy did not stop there; he pushed for the inclusion of diverse disabilities in the new Rights of Persons with Disabilities (RPwD) Act 2016, significantly expanding the scope of disability rights and protections. In 2013, Javed Abidi was appointed vice-chair of the International Disability Alliance, further amplifying his global influence in advocating for disability rights. Earlier in his career, at politician Sonia Gandhi's invitation, he had established the disability unit at the Rajiv Gandhi Foundation, broadening the impact of his work within India. His proactive approach was also evident in 2004, when a letter he wrote to the Chief Justice of India addressing the need for accessible polling booths for persons with disabilities was transformed into a writ petition. This led the Supreme Court to issue directives ensuring the voting process was made accessible, marking another significant victory in his long list of advocacy achievements. Abidi's strategy was clear and pragmatic. He believed in fighting for rights under the democratic framework of India's constitution, advocating for policies and laws that would ensure education, employment, and accessibility for persons with disabilities. His leadership at the National Centre for Promotion of Employment for Disabled People (NCPEDP) was marked by major campaigns that led to significant policy changes, including India's ratification of the UN Convention on the Rights of Persons with Disabilities in 2007. Abidi was a strategist who knew that real change required pressing the government and private sectors to adopt inclusive policies. His work transcended partisan politics, working with governments of different ideologies to forward the disability rights agenda. Javed Abidi's contributions were not just legislative and policy-driven. He embodied the spirit of "Nothing About Us Without Us," giving a voice to an often overlooked minority and fostering a sense of pride and self-determination among people with disabilities. He believed in the power of collective action and information dissemination, often leveraging his position in New Delhi to mobilise support and advocate for change across various platforms. As we mark his birth anniversary, we remember Javed Abidi not just for what he achieved but for the profound influence he had on the lives of millions. We reflect not just on the laws and policies he helped shape but on his underlying belief in dignity, equality, and the potential of every individual. His vision was one of an inclusive society where disability was not an obstacle but a part of human diversity. His approach guides many disability advocates in their journeys today and reminds us that real change requires resilience, collective action, a visionary approach, and an unwavering commitment to the rights of all individuals. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The Paris Summer Olympics plans to reduce CO2 emissions by about 50 percent. But is that possible? < Back Climate, News Will Paris Olympics 2024 be most eco friendly ever The Paris Summer Olympics plans to reduce CO2 emissions by about 50 percent. But is that possible? MMS Staff 12 Jul 2024 3-min read In about a fortnight, athletes, authorities, staff, and huge congregations of sports enthusiasts from around the world will throng to Paris for the Summer Olympics. In this year’s games, over 10,000 athletes will participate across 800+ events, with 45,000 volunteers and 13 million meals served. Alongside being one of the biggest sporting spectacles ever, Paris 2024 also aims to be the greenest and most eco-friendly edition of the Olympics in history. If you’re wondering how it’s possible to make an event of such a big scale easy on the environment, that’s a 100 percent valid question. It’s enormously difficult. After all, we’re looking at a ton of travel, huge amounts of food & drink, and kilowatts upon kilowatts of energy consumption. But the organisers have a plan, it seems. According to this story on the World Economic Forum website, Paris has pledged to reduce the event’s carbon footprint by close to 50 percent. In exact figures, that comes up to about 1.75 million tonnes of carbon dioxide versus the 3.75 million tonnes that some of the previous editions averaged out to. Additionally, 95 percent of the events will be hosted in existing buildings and venues, which means Paris 2024 also plans to be cutting down on creating new venues from the ground up, something that’s very common for events such as the Olympics. 95 percent of the events will take place in existing venues at the Paris Olympics 2024 Paris 2024’s Athletes' Village will be powered by renewable energy and the athletes will use mattresses made from recycled fishing nets. As part of their offsetting initiatives, Paris 2024 will also invest in environmental and social projects around the world, and, within the city, plant around 2,00,000 trees. The city also plans to add 1,000 km of new lanes for cycling, making it easier for people to get around, cutting CO2 transport emissions. And finally, the games plan to move towards more plant-based meals and cut down on single-use plastics. Picture credit: Paris 2024 While this is all definitely a move in the right direction, sceptics aren’t entirely convinced that these changes will prove effective enough to have the desired impact. In this article, Seth Warren Rose of the Eneref Institute, an advocacy and research group focused on sustainable development, says that close to 50 percent is not enough, and that Paris 2024 must bring it down actually to 50 percent. “Maybe things like the Olympics have to be reconsidered… Having millions of people congregate in a single area is a very intensive thing,” he said. Picture credit: International Olympic Committee Whether or not Paris 2024 manages to hit the 50 percent carbon emission reduction mark is something that remains to be seen, but it’s important - and now more than ever - to be having these conversations, especially around mega events the size of the Olympics. The Global Risks Report 2024 says that vegetarian diets and other low-carbon life choices, including adapting transportation means that are low on CO2 emissions and reducing the consumption of single-use plastic, can, on a large scale, make a significant difference. But how much of a change can individual efforts really bring about when companies - including those sponsoring these kinds of events - aren’t entirely dedicating themselves to incorporating the same eco-friendly practices in their operations? At least organisers are quick to admit not everything is perfect. “We say that sustainability is a collective sport,” Georgina Grenon, director of environmental excellence for the Paris Games said to AP . “Will everything be perfect? No, right? We cannot say that. We’re still working very, very hard to go as far as we can.” Picture credit: Global Risks Report 2024 Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

A simple guide to understanding nonbinary identities this Nonbinary Awareness Week < Back Gender, LGBTQIA+ What does it mean to be nonbinary A simple guide to understanding nonbinary identities this Nonbinary Awareness Week MMS Staff 9 Jul 2024 3-min read The term “nonbinary” is used to describe those whose gender identity exists outside of the traditional gender binary of male and female. This concept can encompass a spectrum of gender identities, including gender-fluid, bigender, and multigender, among others. While the specific meaning of nonbinary can vary from person to person, it fundamentally signifies an identity that does not fit exclusively within the categories of man or woman. The gender binary To grasp what it means to be nonbinary, it's essential to first understand the gender binary. The gender binary is the classification of gender into two distinct, opposite forms — man and woman. This system often dictates societal expectations regarding behaviour, roles, and appearance based on one's assigned gender at birth. However, the binary view excludes the experiences of those who identify outside these two categories. Understanding nonbinary identities Nonbinary individuals may experience their gender in a multitude of ways. Some might feel a blend of both man and woman, while others may identify as neither. The term itself serves as an umbrella, covering various identities that don't conform to the binary framework. Despite its growing recognition in contemporary society, nonbinary identities have been acknowledged and respected in numerous cultures for centuries. Nonbinary pronouns Pronouns play a crucial role in affirming a nonbinary person’s identity. In a world where gendered language is prevalent, nonbinary individuals often navigate pronouns that best reflect their gender. Some nonbinary people use binary pronouns like “she/ her” or “he/ him,” while others prefer gender-neutral pronouns such as “they/ them,” “ze/ hir,” or “ze/ zir.” The pronouns someone uses can vary based on their environment and feelings of safety. Gentle reminder: It's important to always use the pronouns a person indicates are appropriate for them. If unsure, opt for gender-neutral language or politely ask for their preferred pronouns. Defining nonbinary Most people, including many transgender individuals, identify as either male or female. However, nonbinary people do not neatly fit into these categories. They might blend elements of both genders, identify with neither, or experience a fluid or evolving gender identity. Terms like genderqueer, agender, bigender, and genderfluid reflect the diverse experiences within the nonbinary community. How to identify if you are nonbinary Figuring out if you are nonbinary is a personal journey that involves self-reflection and exploration. Here are some steps that might help: Think about how you feel about your gender. Do you feel like you don’t fully identify as a man or a woman? Educate yourself about different nonbinary identities and see if any resonate with your experiences. Engaging with nonbinary individuals can provide insight and help you understand your own feelings. Try using different pronouns or labels to see which ones feel most comfortable for you. Consider speaking with a therapist or joining a support group where you can discuss your feelings in a safe and understanding environment. Remember, your gender identity is unique to you, and it’s okay if it takes time to understand and articulate it. How to be respectful and supportive of nonbinary people: Always use the name and pronouns a nonbinary person requests. Avoid asking about their previous names or pronouns. You can't determine someone's gender identity based on appearance. If unsure about pronouns, ask respectfully. Support policies that allow nonbinary people to express their gender freely and safely in public spaces, workplaces, and schools. Recognize the challenges nonbinary individuals face in gendered spaces like restrooms and support their choice of where they feel safest. Engage with nonbinary people to understand their experiences and perspectives. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks < Back Gender, Neurodiversity Why autistic women and girls often go undiagnosed The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks Aditi Gangrade 18 May 2024 3-min read Autism Spectrum Disorder (ASD) has long been associated with boys. This misconception, fueled by outdated research and societal biases, leads to a concerning reality: autistic girls are diagnosed four times less often than autistic boys according to a 2017 study by the Autism Research Centre [Baron-Cohen et al., 2017]. This disparity has significant consequences, delaying access to crucial support and hindering their ability to thrive. Understanding the reasons behind this underdiagnosis or misdiagnosis is critical to providing equitable and inclusive healthcare systems for autistic women and girls. Masking the difference: One key factor is "social camouflaging." Driven by a strong desire to connect, autistic women and girls develop exceptional abilities to mimic social behaviors. Imagine this: you spend your life feeling like a chameleon, meticulously blending into your surroundings. You observe social interactions, mimicking what seems "normal" even though it feels foreign. This constant performance can be exhausting, but it's the only way you know how to navigate a world that doesn't quite make sense. That, in a nutshell, is what life can be like for many autistic women and girls. Research by Dr. Sarah Cassidy suggests that autistic girls are more likely to engage in social camouflaging than boys, further complicating diagnosis. Beyond the Stereotypes: Traditional diagnostic tools, shaped by research primarily focused on autistic boys, often miss the diverse ways autism presents in people across the gender spectrum. These tools might emphasize restricted interests in specific topics or repetitive behaviors like flapping hands. However, autistic individuals might have a wide range of interests, and repetitive behaviors can manifest in more subtle ways like intense focus on routines or organization. This mismatch between symptom presentation and diagnostic criteria, coupled with societal conditioning that leads girls and women to internalize their struggles, can lead to missed diagnoses. The Internal Storm: Many autistic women experience their challenges internally. Sensory overload might manifest as anxiety or meltdowns behind closed doors. Social difficulties can translate into depression or a constant feeling of social awkwardness rather than outward outbursts. This internalization makes it difficult for others to recognize the underlying cause of these struggles, further delaying diagnosis. A study published in the Journal of Child Psychology and Psychiatry [Lai et al., 2011] found that autistic girls are more likely to experience internalizing symptoms like anxiety and depression compared to autistic boys. This underdiagnosis has a profound impact on the lives of autistic women. Studies suggest they are more likely to experience mental health challenges, unemployment, and social isolation. The Impact of a Delayed Diagnosis: A late or missed diagnosis has significant consequences. We might struggle with social relationships, navigating social situations, experience chronic anxiety, or have difficulty managing daily routines. This can lead to feelings of isolation, depression, being misunderstood, inadequacy, low self-esteem, and a sense of not belonging. Research published in the Journal of Autism and Developmental Disorders [Chown et al., 2019] found autistic women are twice as likely to report experiencing an eating disorder compared to neurotypical women. Difficulties with social communication and challenges adapting to workplace environments can make it difficult for autistic women to find and maintain employment. A study by the Autism Self Advocacy Network [Autism Self Advocacy Network] found that autistic adults are four times more likely to be unemployed compared to the general population. Breaking the Cycle: So, what can be done? Awareness is key: Learn about the diverse presentations of autism in females. Organizations like the Autistic Self Advocacy Network [ASAN] and IHeartAspies provide excellent resources. Advocate for Inclusive Diagnostic Tools: Research efforts should focus on understanding autism across the gender spectrum. This can lead to more comprehensive diagnostic tools that capture the diverse experiences of autistic women and girls. Promote Self-Advocacy: Encourage girls and women who suspect they might be autistic to seek evaluation and support. Resources from organizations like the Autistic Women's Network [AWN] can be helpful in this journey. Challenge Societal Expectations: Break down stereotypes surrounding autism, and promote understanding of how it can manifest differently in women and girls. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Exploring the intersection of gender, sexuality, and neurodivergence where fluidity and individuality thrive < Back Neurodiversity, Gender, LGBTQIA+ Being atypical isn’t a deficit: My Neuroqueer identity Exploring the intersection of gender, sexuality, and neurodivergence where fluidity and individuality thrive Soumya Mishra 28 Jul 2024 5-min read A few years back when I attended a workshop, one of my fellow participants addressed me by “they” pronoun, and I felt incredibly seen at that moment. Up until then, I was internally struggling to accept the non-binary messiness of gender, even though growing up I have had plenty of instances when I felt like a square peg being forced into a round hole situation. When it comes to discourses around gender, sexuality or neurodivergence, we often come across the word “spectrum.” The idea behind “spectrum” is that it encompasses a range of understandings, views and opinions on these subjects. But what if, instead of a range, it was a vast universe where everyone could be whatever they wanted? Each individual is a unique star and can be their most authentic self here. That’s what the neuroqueer space means to me. My relationship with gender, sexuality and neurodivergence is deeply neuroqueer. The neuroqueer space is a radical space where non-conformist notions concerning gender, sexuality and neurodivergence are celebrated, which is in contrast to a world where cis-heteronormativity and neuronormativity are enforced. Being neurodivergent means seeing and interacting with the world in atypical ways. And since neurodivergence affects how I see and interact with the world, it has also shaped my understanding of gender and sexuality. Usually, gender identity is constructed from a neurotypical lens, completely disregarding neurodivergent perspectives. However, neurodivergent folx experience a queering of the mind. So neatly defined identity labels based on neurotypical standards such as “boy,” “girl,” “man” and “woman” mean differently to many of us. Even as an adult, there are parts of me that are more childlike than others around me. This entails how I experience and express my feelings, my innate curiosity or whimsical behaviour. And this has invited comments and infantilisation from those around me. For instance, I’m often told I seem much younger than my age because my behaviour doesn’t coincide with what is considered age-appropriate. So from my neuroqueer perspective, even the construction of cis-gender identity is complex, and sometimes, it is closer to the idea of queerness as it defies what is perceived as “normal.” Now, while I started using “she/ they” pronouns initially to be more inclusive and break the gender binary, overtime it has become more than that. “They” can be both singular and plural; it’s fluid. I’m an individual whose identity has been shaped by numerous experiences, which can be truly understood by understanding the context. To me, “she/ they” makes room for all that and more. So even though I’ve been socialised as a “woman,” there are moments when I feel the term does not encapsulate all my feelings. As neuroqueerness celebrates fluidity, it has given me the space to explore the idea of gender away from neurotypicality. In addition, by virtue of my asexuality, I experience little to no sexual attraction. But I’m romantically attracted towards two or more genders, which is atypical in this allonormative society that reinforces compulsory sexuality and heteronormativity. My asexuality requires no “fixing.” Like my neurodivergence, my asexuality, too, subverts the normative culture, but both of them are described in terms of “lacks.” While asexuality is commonly described as an absence of sexual attraction, neurodivergence is defined as having social impairments. But, being atypical isn’t a deficit. Feminist theorist Bell Hooks wrote: “‘Queer’ not as being about who you’re having sex with (that can be a dimension of it); but ‘queer’ as being about the self that is at odds with everything around it and that has to invent and create and find a place to speak and to thrive and to live.” Building on her argument around queerness, when queer theory and the neurodiversity paradigm inform one another, there is a further queering of the body and the mind. In this resulting transformative space, which is the neuroqueer space, normative understanding of gender, sexuality and neurodivergence can be challenged. My neuroqueer bodymind isn’t fixed or singular, nor does it exist in a vacuum. It has been shaped by numerous experiences and can only be understood by situating my experiences contextually. In their book Authoring Autism, M Remi Yergeau eloquently argues, “Neuroqueering signifies a generous and inter-bodily gesturing, one that postures beyond brains, bones, and dermis; one that waves in a plurality of identities, orientations, affective stances, and lived experiences, modes ranging from autism to deafness to trauma to asexuality.” Simply put, to me, neuroqueering is resisting neatly defined categories and creating a space where even the messier parts of myself can thrive without giving in to binaries. Neuroqueerness problematises neat identity labels, making room for fluidity and plurality of identities, orientations and lived experiences by disrupting cis-heteronormativity and neuronormativity as well as defying societal expectations around what is considered “normal” and “abnormal.” My lived experiences and the journey I’ve undertaken to reach here are complex and difficult to disentangle from one another. “Neuroqueer” is all-encompassing without restrictive labels and diagnoses. It’s a space where I can make sense of my neuroqueer bodymind, connect with folx who’ve similar lived realities, and be a part of a community to experience a sense of belongingness. Glossary: Neuroqueer - It is both an identity and a verb. An individual who diverges from dominant societal norms, considers them to be neurologically queer, rejecting normative ideas around gender, sexuality and neurocognitive functioning. Neuronormativity - Upholding a set of rules, values and ideas around neuro-cognitive functioning which suggest that certain types of behaviour are normal, while others are not. Cis-heteronormativity - The idea that being cis-gender and heterosexual is the norm and such people are superior in society. Neurotypicality - The state of not being associated with neurodivergent behaviours. Asexuality - A type of sexual orientation wherein people experience little to no sexual attraction towards others, but may or may not engage in sexual activity. Allonormative - The idea that all human beings experience sexual and romantic attraction, and that’s the norm. Soumya Mishra (she/ they) is a neuroqueer development sector professional with over 6 years of work experience, who is primarily interested in leveraging digital mediums to amplify marginalised voices, bridge existing gaps, promote inclusivity and accessibility. Their work and approaches are informed by their lived experiences. Building a community and fostering a sense of belongingness have been crucial in Soumya's work approach. As a personal project, they're also building a podcast — Atypical Dikkatein — to chronicle the stories of queer-disabled folx in India as these stories are often relegated to the margins. Follow Soumya on LinkedIn Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Hearing health: Tips, sign language benefits, and inclusive communication strategies < Back Disability, News, Health Playback singer Alka Yagnik diagnosed with rare sensory hearing loss Hearing health: Tips, sign language benefits, and inclusive communication strategies MMS Staff 19 Jun 2024 5-min read Renowned Bollywood playback singer Alka Yagnik recently revealed her diagnosis of a rare hearing disorder, raising awareness and cautioning her fans about the dangers of loud music. The singer shared the news on her Instagram account , talking about her sudden and alarming experience. Yagnik, known for singing numerous hit Bollywood songs, described the incident that led to her diagnosis. “A few weeks ago, as I walked out of a flight, I suddenly felt like I was not able to hear anything,” she said. The unsettling experience prompted her to seek medical attention, leading to the diagnosis of rare sensorineural nerve hearing loss (SNHL). “To all my fans, friends, followers, and well-wishers. A few weeks ago, as I walked out of a flight, I suddenly felt I was not able to hear anything. Having mustered some courage in the weeks following the episode, I want to break my silence now for all my friends and well-wishers who have been asking me why I’m missing in action. It has been diagnosed by my doctors as a rare sensory neural nerve hearing loss, due to a viral attack (sic),” she wrote on her socials. Yagnik's announcement has sparked an outpouring of support from her colleagues and fans. In her message, she expressed her shock and the difficulty of coming to terms with the diagnosis, also issuing a word of caution to her fans and younger colleagues in the music industry: “For my fans and young colleagues, I would add a word of caution regarding exposure to very loud music and headphones.” The singer emphasised the importance of taking care of one's hearing health, highlighting the risks associated with prolonged exposure to loud music. “One day, I wish to share the health perils of my professional life. With all your love and support, I am hoping to recalibrate my life and come back to you soon. Your support and understanding will mean the world to me in this critical hour,” she added. Alka Yagnik's candid revelation about her health serves as a reminder of the often overlooked health risks in the entertainment industry, particularly for musicians who are frequently exposed to high decibel sound levels. Tips for taking care of hearing health Avoid prolonged exposure to loud sounds such as music concerts, heavy traffic, and noisy machinery. Use ear protection if you cannot avoid these environments. Invest in noise-cancelling headphones to reduce ambient noise, allowing you to listen to music or other audio at lower volumes. Follow the 60/60 rule. When using headphones, listen at no more than 60% of the maximum volume for no longer than 60 minutes at a time. Give your ears rest by taking regular breaks from listening to music or other audio, especially through headphones. Keep the volume at a reasonable level when watching TV, listening to music, or using earbuds. If someone next to you can hear your music, it’s too loud. Wear earplugs or earmuffs in noisy environments like concerts, construction sites, or while using power tools. Have your hearing tested regularly, especially if you are exposed to loud environments frequently or notice any changes in your hearing. Never use cotton swabs, bobby pins, or other objects to clean your ears. This can cause damage to the ear canal and eardrum. Whenever possible, distance yourself from sources of loud noise. Moving away from the noise can significantly reduce its impact on your ears. Use ear drops or seek professional help to remove earwax buildup rather than trying to clean it yourself. After swimming or showering, dry your ears gently. Excess moisture can lead to ear infections, which can affect your hearing. Smoking and exposure to secondhand smoke can negatively affect your hearing health. Regular exercise improves blood flow to all parts of your body, including your ears, helping to maintain good hearing health. High stress and anxiety levels can contribute to tinnitus (ringing in the ears) and hearing loss. Practice stress management techniques like meditation and deep breathing. Some medications can affect hearing. Always consult your doctor about the potential side effects of medications you are taking. Disability and hearing loss can happen to anyone at any time, even with the best care for one's health. This is why we need to be proactive in ensuring accessibility and inclusion for people with disabilities. By making our spaces and resources accessible to everyone, we create an inclusive environment that benefits all members of our community. Importance of teaching sign language Yagnik’s acquired hearing loss brings to light the importance of teaching sign language to everyone from a young age. Sign language is not only essential for communication with D/ deaf folx and people with hearing impairments, but it also provides a vital communication tool for anyone who may experience hearing loss or other disabilities later in life. Learning sign language fosters inclusivity and ensures that communication barriers can be overcome, making society more accessible and empathetic. Teaching sign language from a young age ensures that more people can communicate effectively with those who are D/ deaf or hard of hearing (HoH), promoting a more inclusive society. Additionally, it provides a critical skill that can be invaluable if one ever experiences hearing loss or other disabilities, ensuring that they can still communicate and engage with the world around them. Tips for including people experiencing hearing loss: Speak clearly and at a normal pace. Avoid shouting or exaggerating your mouth movements. Face the person when speaking to them, ensuring they can see your lips and facial expressions, which can aid in understanding. Reduce or eliminate background noise when having conversations to make it easier for the person with hearing loss to focus on the speaker. Utilise devices such as hearing aids to enhance sound quality for individuals with hearing loss. Offer written summaries or notes for meetings, presentations, and important conversations to ensure that the information is accessible. Familiarise yourself with basic sign language phrases to facilitate communication and demonstrate inclusivity. Incorporate visual aids like slides, charts, and videos with captions during presentations and meetings. Show patience and understanding if the person asks for repetition or clarification. Avoid showing frustration. Arrange seating in a circular or U-shaped pattern during meetings to ensure everyone can see each other and participate fully. Foster an environment where individuals feel comfortable expressing their communication preferences and needs. Use real-time captioning services for events, meetings, and webinars to make spoken content accessible to everyone. Complement your speech with appropriate gestures and body language to convey your message more effectively. Offer training sessions for employees and team members to raise awareness about hearing loss and teach effective communication strategies. Respect the individual’s privacy and confidentiality regarding their hearing loss and any assistive devices they use. Ensure social activities and gatherings are inclusive by choosing venues with good acoustics and considering the needs of individuals with hearing loss. Regularly ask individuals with hearing loss for feedback on how you can improve inclusivity and communication in your interactions and environments. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS