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- Much Much Spectrum | Life with Tourette Syndrome as an Indian woman - Manisha’s story
Dealing with mental health struggles, well-meaning ableism, finding community & self-acceptance < Back Neurodiversity, Gender, Health Life with Tourette Syndrome as an Indian woman - Manisha’s story Dealing with mental health struggles, well-meaning ableism, finding community & self-acceptance Manisha Manoharan 7 Jun 2024 9-min read Trigger warning: This blog post contains sensitive content related to suicide and mental health challenges. The content may be distressing or triggering for individuals who have experienced similar struggles or who are currently facing mental health issues. If you are experiencing thoughts of self-harm or suicide, or if you are in crisis, please seek immediate help from a mental health professional, counsellor, or emergency services in your area. You are not alone, and support is available. As much as I am a movie buff, it makes me very anxious every time I want to watch a movie in a theatre. Because, as the film progresses, so do my tics. And the concerned stranger in the neighbouring seat always makes it a point to check in on me to see if I am choking myself to death. As always, I explain to them that I am not dying. And that I have Tourette Syndrome which causes my body to twitch and have ‘tics’. Then my neighbour goes on to tell me about how they had never heard of something like that and ask me why I wouldn’t just “control” my tics because it was distracting to them. Trust me. If I could, I would. But I can’t. So, I won’t. You know why? Because Tourette Syndrome can be very painful and debilitating. The more I try to control or suppress my tics, the worse they get. Would you rather want me to constantly feel pain in my body so you can relax? Imagine getting bitten by a thousand fire ants all at once and fighting the urge to scratch the bites. That’s exactly what it feels like when trying to suppress a tic. I could still try to suppress them but that would make me more anxious and stressed, intensifying my tics which eventually wears me out. And tiredness just amplifies the cycle! And it hurts physically, emotionally, and mentally. Tourette’s hurts So, this Tourette’s Awareness Day, observed annually on 7th June, I want to talk about my journey with Tourette’s and how wide-spread awareness of this debilitating condition can go a long way in supporting people like me. What is Tourette Syndrome? It is a neurological condition characterised by repetitive, involuntary movements and vocalisations called tics which commonly start during their childhood, around the ages of 6-8 years. There are different types of tics: vocal tics such as grunting, coughing, sniffing, sighing; simple motor tics like rapid eye blinking, winking; and complex motor tics such as head jerking, neck twisting, shoulder shrugging, and abdominal wall jerking. And no. It is not contagious. You will not “catch tics” from me if you are seated beside me or involved in any relationship with me. Some people have tics where they uncontrollably swear, and this condition is known as coprolalia. Unfortunately, whenever Tourette’s was represented in mainstream media, most often, the focus has been on coprolalia even though research states that only 1 in 10 people with Tourette’s have this condition. This has also contributed to creating a negative bias on people with Tourette’s which in turn affects their personal and professional lives. The cause of Tourette’s is yet to be determined. However, there is plenty of research that suggests that the occurrence of Tourette’s is linked to genetics and pregnancy-related complications. My family believes in the myth that it is past-life karma and/or a generational curse. To each their own. And I? I honestly couldn’t care less why I have Tourette’s. All that matters to me is what I do with this lived experience. I had my onset of tics when I was about 6 years old, thanks to a neighbourhood boy who believed I was infatuated with him because I kept winking at him uncontrollably and I had no awareness of that! My ophthalmologist wrongly attributed my strange behaviour to excessive television-time which then led to my parents taking away the one element of joy in all our lives — the television. But that did not discourage me as I continued to wink uncontrollably at a space that once held the magic box that taught me about the world outside. It was only in early 2021 that I understood and acknowledged that what I had was not merely a bunch of odd-looking physical movements. What I had had a name — Tourette syndrome. Growing up in a country like India where if you do not conform to the conventional standards of normalcy, beautiful or healthy, especially if you are a girl, you are considered an abomination. A burden to the family that chose to bring you into this world. Although my parents are postgraduates in science and medicine, Tourette’s has always been something of an extraterrestrial phenomenon for them to comprehend. They have always loved me the most and do their best to protect me from the prying eyes of society, in hopes that there will be a cure to this someday. Here’s the thing – Tourette’s has no cure. So, I had to do what I did best – masking my tics and letting loose when I was on my own, with arms and legs flailing around like an inflatable tube man, because the people around me found my tics “awkward”. That made things worse. It destroyed my mental health, made me constantly feel like an imposter, and left me feeling that the real me wasn’t worthy of love and acceptance. The worst of all the evils was that I had no understanding of Tourette’s myself to make sense of why I was the way I was. I believed something was wrong with me and needed to be corrected and gave into the weight of people’s unsolicited advice and remarks that buried me alive. “Have willpower and you can control it!” “Don’t let your tics get the better of you. You MUST control it!” “There is nothing called tics. It is just all in your head!” “You don’t need therapy. You need an exorcism!” “You are ugly and demented. No wonder you are seeking attention with your tics!” “You need to be more religious. God is punishing you for not performing your rituals.” “Lose weight and your tics will vanish!” “No one will want you or love you if you have tics.” From self-proclaimed life coaches to neurologists, I went around trying to find answers but everywhere I went, I hit a dead end. When my mental health plummeted in 2014, I was recommended to see a psychiatrist who put me on a cocktail of drugs, possibly to numb my brain. Did it help? I don’t think it did because all I could remember was feeling extremely drowsy with my emotions caught in the crossfire of suppressed neuronal activity. On a fateful day, after a nervous breakdown, I wilfully overdosed myself on the pills. Developed a second-degree heart block, with tubes down my nose pumping activated charcoal. I was hospitalised for a week, being chastised by every other person who assumed to have a right to tell me about how ungrateful and foolish I was in trying to take my life. The tubes down my nose flushed out the toxins along with the last ounce of hope that was hanging by a thread. Somehow it seemed to have missed everyone’s spectrum of thoughts and judgements that I wasn’t giving up on life because I felt hopeless. Rather, I was crying out in pain loudly, for the world to hear. It was a cry for help. For someone to show me even the tiniest ray of light in a world where darkness seemed to drown me. In hindsight, I realised that the only person who could save me then and make me the woman that I am today was myself. But I did not do that alone. I was blessed with an inner circle that accepted me for who I was, loved me, pushed me to be better, and comforted me when the world seemed to be against my existence. It was the faith they had in me that gave me the courage to make the bravest move of my life – moving to the UK. Why is Tourette Syndrome Awareness important? Despite the unbearable cold, the lack of sunshine for most months, and the constant struggle to sustain myself financially, I have found my freedom and the strength to be myself in the UK. I tic wherever I want, whenever I need to. It isn’t my tics or my bodily appearance that people here base their perception of me on. For the first time in my existence, I felt like I could breathe freely. I didn’t have to mask or drain myself at the quest of being someone else. I could be my authentic self. That got me wondering, why the UK was able to give me what I could never receive from my own family and people. It is because of the higher levels of awareness and efforts at breaking the myths and stigma around Tourette’s in the UK that helped more people to accept and embrace people like me. In the words of the American actor, Dylan McDermott, “Once you understand that someone has Tourette’s and they can’t help their tics, it takes away the distraction. And you can engage your compassion. You feel for them. You embrace them.” Let me give you another example. Lewis Capaldi in an interview talked about his Tourette’s, just a few weeks before his concert in Frankfurt in 2023. At the concert, he started experiencing severe tics and stopped mid-song. Do you know what the audience did? No, they did not boo him off the stage. Instead, the entire audience made a powerful gesture to assist him by singing the rest of the song for him till he could feel better. That is what happens when there is awareness created around this debilitating condition. I agree not everyone with Tourette’s is a celebrity with a massive fan following. But ensuring that their environment and the people in it are aware of their condition can significantly enhance the life experience of people with Tourette’s. This also facilitates inclusion and dispels the myths and stigma associated with the condition because 75% of people with Tourette’s say they feel compelled to hide or mask their tics out of the fear of stigma and discrimination. It’s not just tics. Tourette’s has a number of co-occurring conditions or comorbidities that include attention-deficit hyperactivity disorder (ADHD), obsessive compulsive disorder or behaviours (OCD/B), and autism spectrum disorder (ASD), whereas some of the common coexistent problems include anxiety, depression, substance abuse, eating disorders, difficulty sleeping, sensory processing difficulties, and executive dysfunction. And research states that people with Tourette Syndrome and/or Chronic Tic Disorder show an increased risk of suicidal deaths and attempts. Despite these challenges that Tourette’s brings, people who live with it are just as amazing as you and me. In all shapes, sizes, moods, and all of their tics. All they need is someone who has the decency to be humane and empathetic to understand them; to accept them for who they are. Not everyone has the luxury of having an inner circle to rely on or move to a different country to seek freedom like I did. Not everyone dares to speak up in a society that doesn’t accept you if you are different. And not everyone receives a second chance after trying to take their own life. And, that is why more people need to know about this debilitating condition so they can open their minds and hearts to accept their own for who they are. Our country shouldn’t be a threat for people like me to live in. It needs to be the nurturing motherland that we pine for. We owe it to them all – every single soul battling a disability, visible or invisible. Tourette’s or not, if we cannot engage with each other with empathy, we have failed as a race of so-called advanced beings. Manisha Manoharan (she/her) is an Indian woman living in the UK. She identifies as a Neurofabulous Touretter (have Tourette's, ADHD, anxiety and chronic depression, and potentially on the ASD spectrum) You can follow Manisha here . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Why autistic women and girls often go undiagnosed
The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks < Back Gender, Neurodiversity Why autistic women and girls often go undiagnosed The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks Aditi Gangrade 18 May 2024 3-min read Autism Spectrum Disorder (ASD) has long been associated with boys. This misconception, fueled by outdated research and societal biases, leads to a concerning reality: autistic girls are diagnosed four times less often than autistic boys according to a 2017 study by the Autism Research Centre [Baron-Cohen et al., 2017]. This disparity has significant consequences, delaying access to crucial support and hindering their ability to thrive. Understanding the reasons behind this underdiagnosis or misdiagnosis is critical to providing equitable and inclusive healthcare systems for autistic women and girls. Masking the difference: One key factor is "social camouflaging." Driven by a strong desire to connect, autistic women and girls develop exceptional abilities to mimic social behaviors. Imagine this: you spend your life feeling like a chameleon, meticulously blending into your surroundings. You observe social interactions, mimicking what seems "normal" even though it feels foreign. This constant performance can be exhausting, but it's the only way you know how to navigate a world that doesn't quite make sense. That, in a nutshell, is what life can be like for many autistic women and girls. Research by Dr. Sarah Cassidy suggests that autistic girls are more likely to engage in social camouflaging than boys, further complicating diagnosis. Beyond the Stereotypes: Traditional diagnostic tools, shaped by research primarily focused on autistic boys, often miss the diverse ways autism presents in people across the gender spectrum. These tools might emphasize restricted interests in specific topics or repetitive behaviors like flapping hands. However, autistic individuals might have a wide range of interests, and repetitive behaviors can manifest in more subtle ways like intense focus on routines or organization. This mismatch between symptom presentation and diagnostic criteria, coupled with societal conditioning that leads girls and women to internalize their struggles, can lead to missed diagnoses. The Internal Storm: Many autistic women experience their challenges internally. Sensory overload might manifest as anxiety or meltdowns behind closed doors. Social difficulties can translate into depression or a constant feeling of social awkwardness rather than outward outbursts. This internalization makes it difficult for others to recognize the underlying cause of these struggles, further delaying diagnosis. A study published in the Journal of Child Psychology and Psychiatry [Lai et al., 2011] found that autistic girls are more likely to experience internalizing symptoms like anxiety and depression compared to autistic boys. This underdiagnosis has a profound impact on the lives of autistic women. Studies suggest they are more likely to experience mental health challenges, unemployment, and social isolation. The Impact of a Delayed Diagnosis: A late or missed diagnosis has significant consequences. We might struggle with social relationships, navigating social situations, experience chronic anxiety, or have difficulty managing daily routines. This can lead to feelings of isolation, depression, being misunderstood, inadequacy, low self-esteem, and a sense of not belonging. Research published in the Journal of Autism and Developmental Disorders [Chown et al., 2019] found autistic women are twice as likely to report experiencing an eating disorder compared to neurotypical women. Difficulties with social communication and challenges adapting to workplace environments can make it difficult for autistic women to find and maintain employment. A study by the Autism Self Advocacy Network [Autism Self Advocacy Network] found that autistic adults are four times more likely to be unemployed compared to the general population. Breaking the Cycle: So, what can be done? Awareness is key: Learn about the diverse presentations of autism in females. Organizations like the Autistic Self Advocacy Network [ASAN] and IHeartAspies provide excellent resources. Advocate for Inclusive Diagnostic Tools: Research efforts should focus on understanding autism across the gender spectrum. This can lead to more comprehensive diagnostic tools that capture the diverse experiences of autistic women and girls. Promote Self-Advocacy: Encourage girls and women who suspect they might be autistic to seek evaluation and support. Resources from organizations like the Autistic Women's Network [AWN] can be helpful in this journey. Challenge Societal Expectations: Break down stereotypes surrounding autism, and promote understanding of how it can manifest differently in women and girls. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Autistic brothers raped, burnt with cigarettes at boarding school
Incident at "special needs" Dehradun school exposes gaps in protection of neurodivergent children < Back News, Neurodiversity, Parenting Autistic brothers raped, burnt with cigarettes at boarding school Incident at "special needs" Dehradun school exposes gaps in protection of neurodivergent children MMS Staff 3 Jun 2025 4-min read A disturbing incident in Dehradun, Uttarakhand, has brought the urgent need for robust child protection and neurodivergent safety in India to the forefront. Two autistic brothers, aged 9 and 13, from Moradabad, Uttar Pradesh, were allegedly raped and physically assaulted at an unlicensed boarding facility. A staff member has been arrested, and the incident has exposed significant regulatory failures in special care institutions across the nation. The alleged abuse against autistic children came to light last Friday when the boys' mother visited them at the school, a facility presented as a boarding option for autistic children with special needs. Upon seeing their mother, both children reportedly disclosed an ordeal that began shortly after their admission in April. Horrific details of the alleged abuse emerge The mother had admitted her sons to the school following her husband’s death, seeking a care solution that would allow her to manage her job. She located the special needs school online. Her recent visit, however, uncovered the alleged abuse. The children identified the accused as Monu Pal (also known as Sonu), 29, from Ghazipur, Uttar Pradesh. They alleged he used an iron rod to beat them, burned them with cigarettes to instill fear and silence, and subjected them to molestation and rape. This grim testimony highlights the critical need for comprehensive caregiver background checks in India. Police action and ongoing investigation The mother immediately filed a formal police complaint. Superintendent of Police, Dehradun City, Pramod Kumar, confirmed that a case was registered under sections 64(2) (rape) and 115(2) (voluntarily causing hurt) of the Bharatiya Nyaya Sanhita (BNS), along with relevant sections of the Protection of Children from Sexual Offences (POCSO) Act. Monu Pal, who resided at the school’s boarding facility, was arrested and jailed. Kumar stated, “The accused, who was staying at the school’s boarding facility, was tracked down. He was arrested and sent to jail.” He added: “We seized the DVR of CCTV cameras installed inside the boarding facility, which was opened three months ago in a four-room residential building. We are also trying to contact the parents of the other two children staying with the two victims.” Police facilitated interviews with the two brothers, utilising translators from the Child Welfare Committee (CWC) and assistance from the State Commission for Protection of Child Rights (SCPCR). CCTV footage from the boarding house has been secured as evidence, aiding the Dehradun child abuse investigation. Unlicensed operations uncovered: a systemic failure The Chairperson of the SCPCR, Geeta Khanna, revealed significant operational irregularities. According to Khanna, the unlicensed boarding school was being run by a woman without the necessary legal permits. It housed autistic children, including the victims, who reportedly slept on bunk beds in the same room as the accused. This lack of authorization underscores severe flaws in special needs school regulations in India. Khanna further stated, “A woman was running a special school for persons with disabilities, and first of all, it did not have the necessary permissions to operate such a facility. Recently, they hired the accused, Sonu, but his police verification was not done, and we could not find any appointment letters.” It was also disclosed that the woman operated a separate ‘prep school’ for special children nearby, which had 15 students, four of whom opted for the boarding facility. The trust allegedly operating these facilities was registered in Delhi but had failed to inform local authorities about either. Khanna indicated that Monu Pal was hired on May 16, with the alleged abuse commencing soon after. The sexual harassment allegations have led to the closure of the illegally run boarding school. The investigation is ongoing. The identity of the victims has been withheld in accordance with Supreme Court directives. A deeper crisis: Ensuring safety for Neurodivergent lives Every time news of such horrific abuse against autistic and neurodivergent individuals surfaces – whether in India, or across the globe – it chips away at our hope for a truly inclusive and safe world for neurodivergent people. These stories are not isolated incidents; they are symptomatic of a pervasive societal failure to protect those who are often misunderstood and marginalised. The heartbreaking truth is that no place, no country, feels entirely safe for neurodivergent children and adults. While accountability is pursued, the deeper questions remain: How could this happen? And more importantly, how do we prevent child abuse in special needs facilities? This agonising incident, among many others, underscores the critical need for constant vigilance and robust support systems for neurodivergent children and adults, especially when placed in institutional care. We don’t know how many more institutional abuse stories like this go untold. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Mattel teams up with Harris Reed to debut first-ever gender-fluid doll
The Witch Weaver redefines identity and inclusivity in the toy world < Back LGBTQIA+, News, Media Mattel teams up with Harris Reed to debut first-ever gender-fluid doll The Witch Weaver redefines identity and inclusivity in the toy world MMS Staff 10 Dec 2024 2-min read In a bold move towards fostering inclusivity and self-expression, Harris Reed, a celebrated fashion designer and gender-fluid activist, has teamed up with Mattel to unveil The Witch Weaver — the first-ever gender-fluid doll in the Monster High series. This collaboration transcends mere toy design, signaling a powerful cultural statement about identity, representation, and the transformative potential of creativity. Growing up, Reed often felt unseen in the world of toys. Their options at Toys “R” Us were limited to G.I. Joe or Barbie — neither of which reflected their evolving sense of self. However, the Monster High dolls stood apart, their campy, otherworldly aesthetics offering a rare space for self-recognition. Reed recalls how these dolls inspired hope and curiosity during their formative years. “The combination of otherworldly identities made me feel seen,” Reed shared. With The Witch Weaver, they aim to provide the same sense of belonging to a new generation of children navigating their own identity journeys. The Witch Weaver embodies transformation in every sense of the word. Donning fiery red hair, fangs, spiderweb tattoos, flared jeans, and ornate accessories, the doll merges gothic flair with Reed’s signature avant-garde design sensibilities. The doll’s aesthetic celebrates the fluidity of identity, mirroring Reed’s own journey as a gender-fluid individual. Reed explained, “This doll isn’t just about style — it’s about showing kids they can be anything they want, weaving through their identities as they grow.” For Mattel, The Witch Weaver marks a significant milestone in promoting diversity within its toy lines. While the Monster High series has long championed individuality and bold self-expression, this collaboration elevates the brand’s commitment to inclusivity. Reed's personal connection to the project — spanning over two and a half years — infuses the doll with authenticity and purpose. The collaboration also resonates with a larger societal need: toys that reflect the full spectrum of human experience. By normalizing diverse gender identities in a medium as universal as children’s toys, The Witch Weaver challenges outdated norms and sparks meaningful conversations about self-discovery and acceptance. At its core, The Witch Weaver is more than just a doll — it’s a symbol of hope, creativity, and limitless possibilities. Reed’s collaboration with Mattel encourages young people to embrace their uniqueness, dismantle societal expectations, and dream big. “With everything going on in the world right now, it’s so important that the next generation knows they can do anything they want — and more importantly, be anything they want,” Reed emphasized. Available to the public starting November 22, 2024, The Witch Weaver stands as a beacon of progress in the toy industry. Through this collaboration, Harris Reed and Mattel are not only rewriting the narrative of childhood play but also empowering young people to explore, express, and celebrate their truest selves. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | “They never made it to London”: A family’s dream ends in Air India crash
Doctor couple from Rajasthan, three kids among victims of Air India AI171 crash that killed dozens < Back News “They never made it to London”: A family’s dream ends in Air India crash Doctor couple from Rajasthan, three kids among victims of Air India AI171 crash that killed dozens MMS Staff 13 Jun 2025 2-min read Dr Koni Vyas had just resigned from her job at a private hospital in Rajasthan. After years of living apart, she was finally joining her husband, Dr Pratik Joshi, a radiologist based in London, to begin a new life with their three children. The visas had come through. The bags were packed. Their children - eight-year-old Miraya and five-year-old twins, Pradyut and Nakul - were set to board their first international flight. On the morning of June 12, their family of five boarded Air India Flight AI171 from Ahmedabad to London. Before takeoff, they took a selfie inside the plane - Pratik and Koni on one side of the aisle, their children smiling from the other. They sent the photo to relatives, full of excitement for the life ahead. Minutes later, the plane crashed. There were no survivors. The cause of the crash is still under investigation. Authorities have confirmed that at least 11 passengers from Rajasthan were on board. For families in Banswara and Udaipur, the grief is unspeakable. Koni, 38, had been living in Udaipur, where the children were studying. She had temporarily moved to Banswara to finalise paperwork and prepare for the relocation. According to relatives, she had been anticipating this move for months. Pratik had flown back from London just three days earlier to bring his family home. “They had waited for years for this day,” said Koni’s cousin Nayan Joshi. “We all came to the airport to send them off. It felt like a beginning.” Now, those same family members are helping identify bodies at the crash site. Pratik, whose father is a well-known radiologist in Rajasthan, had spent the last six years building a life in the UK. Koni, a pathologist, was known for her dedication to her work and her quiet strength as a mother. The couple had been married for over a decade. “This was not just a tragedy,” said a family friend in Udaipur. “It was a story of hope. They were on their way to something better.” Instead, their journey ended in silence. As rescue and recovery efforts continue, officials have issued an urgent appeal for blood donations in Ahmedabad, particularly from those with negative blood types. Hospitals are treating several survivors of ground-level impact and injuries from debris. In the hours since the crash, social media has flooded with condolences and tributes - not only for the Vyas-Joshi family, but for all lives lost. Yet for those who stood on the tarmac waving goodbye, grief is no longer digital. It is physical. It is real. A photo remains. A family frozen in time - smiling, mid-flight, on the edge of a future that never came. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | This blind tailor in Bihar has trained 300+ women for free
With no govt support and just ₹400 a month, Faken Shah is building self-reliance in rural India’s women < Back Disability, Gender, News This blind tailor in Bihar has trained 300+ women for free With no govt support and just ₹400 a month, Faken Shah is building self-reliance in rural India’s women MMS Staff 28 May 2025 3-min read In Bihar’s Sitamarhi district, a blind tailor is stitching a quiet revolution, training hundreds of women for free while waiting on a government loan stuck over a missing electricity bill. In Rikhauli, a small village tucked inside Bihar’s Sitamarhi district, the hum of a sewing machine cuts through the afternoon quiet. Sitting cross-legged behind it is 45-year-old Faken Shah - tailor, teacher, and changemaker. Faken is blind. He has trained over 300 women in stitching and tailoring, free of cost, for the last 18 years. What started as a way to rebuild his life after vision loss and personal tragedy has today turned into a powerful, homegrown model of rural empowerment. And yet, Faken’s dreams of scaling his impact are currently stalled — not by lack of will, but by paperwork. The government won’t grant him a loan to expand because he doesn’t have an electricity bill. From losing sight to gaining vision Faken wasn’t born blind. His vision began to fade when he was around 20 years old. After repeated bouts of untreated jaundice and poor access to medical care, he slowly lost his eyesight completely. “At that time, we didn’t have proper hospitals or awareness. What started as a small illness just… stayed. And then one day, I couldn’t see,” he recalls. A few years later, his wife passed away, leaving behind four children. “I had to keep going. Giving up was never an option.” Learning to stitch after vision loss Faken had picked up tailoring skills as a teenager. After losing his vision, he returned to the needle and thread, not just to survive but to stay rooted in something he knew. Stitching, he says, became a new way of seeing. “I measure cloth by feel. The inch tape has tactile cues — button and bead marks. I know how many layers to cut, how much to sew.” His tailoring shop Shri Mahavir Ajuba Garments and Dress Bhandar gradually became more than a workspace. Women from the village began asking if he would teach them too. Faken didn’t hesitate. Today, his centre is a lifeline for women with no income of their own, especially those discouraged from working outside the home. Chandni Kumari, a trainee, says, “He teaches us with so much patience and clarity. No one leaves without learning something useful.” No fees. No government support. Faken earns between ₹300–500 a day, just enough to support his family and buy materials. He receives a ₹400 monthly disability pension from the government. But he has never charged a rupee for training others. For a few years, he even travelled across nearby villages on an e-rickshaw, collecting orders from government schools for uniforms. That, too, came to a halt when his rickshaw broke down. He couldn’t afford repairs. Yet, what frustrates him isn’t just the lack of income, it’s the bureaucratic hurdles blocking his vision for the future. A loan blocked by a missing electricity bill Faken has been trying to get a business loan under the Pradhan Mantri Mudra Yojana to set up a small garment factory and scale up his work. The local District Magistrate even recommended his case. But the bank asked him for a current electricity bill, something he doesn’t have. His family has electricity at home, but no bills have ever been issued. Without that one piece of paper, the bank says it can’t move forward. When contacted, officials from the electricity department promised to “look into the matter” and issue a bill as per rules. But Faken is still waiting. The bigger picture: Disability and rural entrepreneurship Faken’s story isn’t an isolated one. Across India, thousands of disabled entrepreneurs — especially in rural areas — struggle to access financial services, mobility, and infrastructure, despite the existence of government schemes. The challenges are layered: digital illiteracy, inaccessible documentation processes, lack of local advocacy, and the slow-moving machinery of rural administration. Disability isn’t the barrier — systemic neglect is. If the government truly wants to promote self-reliance and skill-building in rural India, it must begin by removing these structural hurdles for disabled individuals trying to do meaningful work. Faken Shah is asking for a working loan, a printed bill, and the chance to keep building what he’s already been doing for almost two decades. “I just want to open a factory,” he says, adjusting his sewing tape between calloused fingers. “I want the women in my village to stand on their feet. That’s all.” Source: ETV Bharat Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Understanding co-regulation: 5 ways to support Neurodivergent individuals
Sometimes it’s less about sharing the same physical space and more about meeting the person where they are < Back Neurodiversity, Parenting Understanding co-regulation: 5 ways to support Neurodivergent individuals Sometimes it’s less about sharing the same physical space and more about meeting the person where they are MMS Staff 11 Aug 2024 2-min read What is co-regulation? Co-regulation is the process of helping someone achieve emotional and sensory balance by being present with them in a meaningful way. It’s about creating a shared space where trust and connection can develop, allowing both people to feel more at ease. Co-regulation is especially important for neurodivergent individuals, who may experience heightened states of dysregulation due to unmet sensory, social, and communication needs. Rather than simply offering advice or directing someone to self-soothe, co-regulation is about embodying a sense of calm and connection. This approach helps the nervous system of the neurodivergent person to gradually regulate, reducing stress and enabling them to feel more comfortable in their environment. Here are five practical ways to co-regulate with a neurodivergent person: Adopt a low-demand approach One of the most effective ways to support a neurodivergent person is by reducing the demands placed on them. By minimising expectations and pressures, you help create a safer environment where they can regulate more effectively. This might involve offering more time for tasks, reducing sensory input, or simply allowing them to engage in activities at their own pace without additional stress. Model self-regulation strategies Modelling your own self-regulation strategies can be incredibly helpful. For example, if you need a moment to reset, you might say, “I’m going to take a quick walk because it helps me feel more balanced.” By demonstrating how you manage your own sensory and emotional needs, you provide a tangible example for the neurodivergent person to follow. Over time, they may develop their own toolbox of strategies. Engage in parallel play or body doubling Parallel play, where you participate in a similar activity alongside the neurodivergent person, or body doubling, where you work on separate tasks in the same space, can be low-pressure ways to co-regulate. These approaches allow for shared time and space without the need for direct interaction, which can be overwhelming for some neurodivergent individuals. Knowing that someone is nearby and engaged in a similar rhythm helps create a sense of connection and ease. Create ‘co-regulation bubbles’ Throughout the day, create small moments of co-regulation by sharing activities that bring both of you joy. This could be as simple as listening to music together, sharing a favourite snack, or engaging in a sensory-friendly activity like watching a familiar show. These ‘bubbles’ of co-regulation offer opportunities to recharge and reconnect, helping to maintain a balanced state. Be a ‘space holder’ Sometimes, the most meaningful way to co-regulate is by simply being present. For neurodivergent people, “being with” someone doesn’t always mean physical proximity. It could involve sharing an online space, knowing that someone is available if needed, or even just offering quiet companionship. By holding space for the neurodivergent person, you provide a foundation of support that allows them to regulate at their own pace. Co-regulation is a powerful way to support neurodivergent individuals, creating a sense of safety and connection that can lead to better emotional and sensory regulation. By adopting these strategies, you can create a more inclusive environment where neurodivergent people can thrive. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Delhi High Court welcomes neurodivergent run cafe
Newly opened Sagar Express will empower neurodivergent individuals through meaningful employment < Back News, Neurodiversity, Work Delhi High Court welcomes neurodivergent run cafe Newly opened Sagar Express will empower neurodivergent individuals through meaningful employment MMS Staff 7 Jul 2024 2-min read Starting next week, the Delhi High Court will see the opening of Sagar Express, a cafe run entirely by neurodivergent individuals. Aimed at creating meaningful employment opportunities centred around a strengths-based approach to neurodivergence, the cafe is set to break down societal barriers and stigma that persist in society about the capabilities of neurodivergent individuals. The initiative is spearheaded by Senior Advocate Ravi Gupta, chairman of the Shaurya Foundation Trust (SFT), who has a deeply personal connection to the cause. “The main motive of opening this cafe is to empower such persons financially,” Gupta shared in this Indian Express article, emphasising the importance of financial independence for neurodivergent individuals. Upon its opening, Sagar Express will be staffed by six neurodivergent individuals including those who are autistic. From managing the counter and handling sales to serving South Indian cuisine, these employees will be at the heart of the cafe's operations. The cafe, a collaborative effort with the well-known restaurant chain Sagar Ratna, is the culmination of two years of intensive staff training. “The majority of persons that will run the cafe will be those with neurodiversity… they’ll be given managerial positions,” Gupta said. The decision to have neurodivergent individuals in leadership roles ensures that the staff not only gain employment but also take on significant responsibilities in the organisation, showcasing their skills and competencies in a real-world setting. It goes to show that neurodivergent individuals are competent leaders. Gupta's journey into supporting neurodivergent adults began in 2002 when he and his wife Rani adopted a boy named Shaurya. Diagnosed autistic before his second birthday, Shaurya became the inspiration for the couple's dedication to this cause. Since 2011, SFT has been actively working to support and train neurodivergent adults. The opening of Sagar Express is another decisive step towards inclusive employment. Not only will it demonstrate that neurodivergent individuals can excel in diverse roles, it'll also serve as a model for other organisations to follow. Some other restaurants & cafes run by disabled and neurodivergent people in India include: Cafe Arpan by Yash Charitable Trust Soho House Mumbai The Chocolate Room Mitti Cafe Aditi's Corner KFC India Mirchi & Mime Madeira & Mime Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Actor John Leguizamo urges TV Academy for inclusive representation
The Super Mario Bros actor in an open letter has urged for diverse representation at the Emmys < Back News Actor John Leguizamo urges TV Academy for inclusive representation The Super Mario Bros actor in an open letter has urged for diverse representation at the Emmys MMS Staff 12 Jun 2024 2-min read Emmy-winning actor John Leguizamo has issued an appeal to the Television Academy through an open letter published in The New York Times, urging for increased representation of diverse talents at the Primetime Emmy Awards. As the organisation behind the revered Primetime Emmy Awards, the Academy has a pivotal role to play in shaping perceptions of inclusivity and representation in media. Leguizamo, not one to shy away from advocacy, leveraged not only the printed word but also the digital sphere to amplify his call. Sharing images of the letter on social media, he tagged his contemporaries including Whoopi Goldberg, Anya Taylor-Joy, Missy Elliott, and George Takei as well as streaming platform Netflix in a bid to garner wide-reaching support. Highlighting discrepancies In his social media post accompanying the letter, Leguizamo points out a stark disparity: “White people are only 58.9% of the population but overrepresented in top positions across the board.” He notes the disproportionate influence this group holds in critical sectors such as technology, banking, and entertainment, underscoring his argument with the need for an industry that reflects the true demographic makeup of the country. “America is better when it is inclusive. It is more profitable. It is more creative!” he states. Challenging the status quo In his letter, Leguizamo urges the entertainment industry to move beyond superficial commitments to diversity and inclusivity. He writes, “Dear Hollywood, please let this be the year we finally embrace change. The year we truly find equity and see artists of colour represented across not just one category but ALL categories.” He critiques the industry's reluctance to translate the rhetoric of diversity into real action, highlighting the excellence of hundreds of artists of colour who are often overlooked due to systemic biases. An opportunity for real change The timing of Leguizamo’s letter aligns with the upcoming 76th Primetime Emmy Awards scheduled to air September 15 on ABC. This also gives an opportunity for the Television Academy to respond to the growing demands for equity and representation. Inspiring future generations Leguizamo concludes his letter with a forward-looking message, hoping to inspire future generations of minority and underrepresented artists and imagining a world where these artists can see themselves reflected on the Emmy stage: “If they can, maybe I can, too.” For now, all eyes are on the Academy to see how it responds to Leguizamo's call for change. His efforts have the potential to catalyse a significant shift in how talent is recognised and celebrated, paving the way for a media environment that reflects its diverse audience. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | 7 tips for reinventing your career after your neurodivergence discovery
From unmasking at work to exploring new passions, here's how to navigate your new path < Back Neurodiversity, Work, Education 7 tips for reinventing your career after your neurodivergence discovery From unmasking at work to exploring new passions, here's how to navigate your new path MMS Staff 1 Aug 2024 5-min read So you were young, you fell in love with your idea of a career path or job, you pursued it, got placed at a company. And then it happened - you got an answer to a lot of your life’s questions with a late diagnosis or discovery, finding out you’re neurodivergent: ADHD, dyslexia, dyscalculia, autism... or any of these conditions. And now, you want to unmask. You keep replaying your life thus far in your head, and you feel like you’d much rather do something else, be somewhere else, and be so much better at it too. Most late diagnosed/ discovered folx have been here - thinking their chosen job or career is something they want until the discovery/ diagnosis happens, and then suddenly they’re in the woods. Fortunately, there are some things you might want to consider if you’re in the same boat. Unmask at your current workplace - slowly, safely Let’s get this straight right up front - unmasking is difficult. And totally not recommended if you’re in a place where you might get taken advantage of. With that said, it is also one of the few ways to let your peers and co-workers know about the challenges you’re having. If you think you can speak to your boss about this, and they’ll understand, maybe that’s something to consider? It won’t make the job feel less boring, but accommodations and support can surely go a long way in making things bearable until you’re able to find something more suited to your needs. Shift to a more suitable job within your organisation Picking up where point one left off, if it’s the role you truly despise, and your boss or upper management understands your situation, maybe shifting to a different role within the same organisation might be something to consider. A lot of people, especially those with customer-facing roles find they’re actually not so suited for those roles once they start doing them. Ask to be shifted to a department where the work is more suited to your talents. Upskill A lot of companies, including Google, IBM and Meta, offer online courses that you can take to learn a new skill. Certificate courses can be taken part time at a flexible schedule, which you can figure out based on your current workload, and they’re relatively inexpensive as well. Once you have a certificate in a skill that’s in demand, apply for new jobs. Sure you’ll have to begin as a fresher, but it will be worth it in the long run if you truly have a passion for it. Go back to college If you feel like a simple certificate course won’t cut it, and that you need to learn the fundamentals all over again, it’s never too late to consider going back to college. This is a path a lot of people have taken well into their 50s and 60s, and if it’s something you’re sure about, the plunge will be worth it. The flipside - college is expensive and a lot of people aren’t able to afford it. But there’s always scholarships and grants that you can apply for. Explore flexible work options Figure out what about the job or career doesn’t feel right. If it’s the long hours, see if your workplace is able to offer you a flexible schedule. If it’s the social aspect, figure out if socialising is something you can limit to only certain days or hours a week. If it’s a long commute, explore WFH or hybrid formats of work. It’s important to know which aspect of the job seems cumbersome and unsustainable for you in the long run so you don’t wind up in the same boat over and over again. Experiment with side projects or part-time work If work overall doesn’t feel good, and you can afford some time off, pick up that side project that you always wanted to but never could. See if that could turn into a paid opportunity. With so many businesses relying on the internet and social media, you’ll be surprised what people will pay for. Or, for the time being, while you figure things out, you could take up a part time gig just to pay the bills. The extra headspace always helps put things in perspective! Consider freelancing or entrepreneurship And if working in a corporate or an office environment at your desk for 9 hours a day every day just doesn’t feel so good anymore, you might want to consider a freelance career. Lots of specialists offer their time to companies as a ‘fractional’ consultant, which means they work that same role with multiple companies. While the work might still be hectic, at least you’re your own boss and you'll be able to work by your hours. Another path to consider is entrepreneurship. And while running your own shop might have many downsides (and wayyyy more stress!), if aspects such as innovation, improvisation, and leadership come to you naturally, you’ll excel at it. Whichever of these paths you wind up taking, remember that it’s important to focus on your strengths. You will need to learn to advocate for yourself politely and assertively, and while it may seem like a drag to try and be social, networking within different communities really helps give perspective (and also, who knows, job opportunities in a field you like!). Join WhatsApp and Telegram groups started for neurodivergent folx by neurodivergent folx, and don’t be afraid or shy to ask for help from people there. It’s easy to blame yourself when things aren’t going right, but this is probably when it’s most important to actively practise self-compassion. Keep telling yourself that no time is ‘too late’ to have had a diagnosis or discovery, and that you can still pursue what you really like, what suits you, and pays you well. Finally - use social networks like LinkedIn and Indeed to keep yourself up-to-date on the job market in your field of interest. Follow companies you want to work with, and learn how to build a solid resume that highlights your strengths. And, if through this journey you see your mental health taking a toll, don‘t beat yourself up over it. Instead, consider therapy. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS