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- Much Much Spectrum | Abdu Rozik Reacts to Trolling After Wedding Announcement
Societal prejudice and online ableism faced by the influencer with dwarfism. < Back Disability, News Abdu Rozik Reacts to Trolling After Wedding Announcement Societal prejudice and online ableism faced by the influencer with dwarfism. MMS Staff 18 May 2024 3-min read In the world of social media, where personal milestones are celebrated publicly, joy can often be tainted by the harsh reality of online trolling. This was the unfortunate experience of Abdu Rozik, a famous influencer and singer, who recently announced his engagement to 19-year-old Amira. While the news was met with a wave of support from his celebrity friends, it also drew a barrage of cruel and hurtful comments from netizens, highlighting a persistent issue in our society: ableism faced by people with disabilities. Abdu Rozik, a 20 years-old celebrity influencer, little person (person with dwarfism), has built a successful career and amassed a significant following. Sharing his joyous engagement news should have been a time of pure celebration. Instead, it revealed the darker side of social media, where bias and prejudice still thrive. Responding to the negativity, Abdu released an official statement expressing his dismay. "The negative comments and those who are making fun of me and being nasty is very sad," he said. "Imagine Amira and her family are reading these comments." His words underscore the emotional impact that such trolling can have, not only on the individuals directly targeted but also on their loved ones. Abdu’s statement sheds light on the broader issue of societal attitudes towards people with dwarfism. "We went public after a lot of discussion and reluctance," he revealed, "and unfortunately it is going from best news to a nightmare." Reflecting on his past, Abdu admitted, "I used to be ashamed of who I am and my size, and many families used to hide their children who are like me. But now allhamdulillah, I and all the others like me have to stand tall and be accepted." People with dwarfism have historically been marginalized in the media, often cast in roles designed for comic relief rather than serious or nuanced portrayals. This harmful stereotype reduces their complex identities to mere punchlines, perpetuating misconceptions and fostering a culture of ridicule. Characters with dwarfism are frequently depicted as childlike or buffoonish, reinforcing a narrow and demeaning view of their capabilities and humanity. This trend not only denies actors with dwarfism the opportunity to showcase their talents in diverse roles but also impacts societal attitudes, contributing to the ongoing stigma and discrimination they face in everyday life. It is crucial for the media to move beyond these outdated portrayals and represent people with dwarfism with the dignity and respect they deserve. Understanding and Respecting People with Dwarfism To combat the ignorance and prejudice that Abdu and others like him face, it's crucial to educate ourselves about dwarfism and how to interact respectfully with those who have it. Here are some important points to consider: Language Matters: Avoid using outdated and offensive terms like "m*dget." Instead, use "person with dwarfism," which is respectful and accurate. Respect and Courtesy: Treat individuals with dwarfism with the same respect and courtesy you would anyone else. They are no different in terms of their cognitive abilities and deserve equal respect. Combat Stereotypes: People with dwarfism are often unfairly infantilized or used for comedic relief in media portrayals. Recognize and challenge these stereotypes to promote a more accurate and respectful understanding. Educate Yourself: Lack of knowledge often leads to unintentional exclusion or insensitivity. By learning about dwarfism, you can become a more informed and supportive ally. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Living with Dyslexia: My journey as a dyslexic lesbian author in India
In India, awareness about dyslexia is growing, but there is still a long way to go. < Back Neurodiversity, LGBTQIA+, Health Living with Dyslexia: My journey as a dyslexic lesbian author in India In India, awareness about dyslexia is growing, but there is still a long way to go. K Vaishali 31 May 2024 5-min read I’m K Vaishali, the author of 'Homeless: Growing Up, Lesbian and Dyslexic in India.' My journey has been filled with challenges, many of which stem from being diagnosed late with dyslexia and dysgraphia at the age of 20. This diagnosis came after years of struggling to understand why I found certain tasks so difficult. What is dyslexia? Dyslexia is a common learning disorder characterized by difficulties with reading, spelling, and writing. It affects the brain's ability to process written and spoken language, making it challenging for individuals to decode words and comprehend text. Dysgraphia, often associated with dyslexia, involves difficulties with handwriting and fine motor skills. According to the Dyslexia Association of India, approximately 10-15% of the population is affected by dyslexia, though many remain undiagnosed. My first memory of struggling with dyslexia dates back to the fourth standard when I received very low marks in a math exam. I had left many questions half-answered, a common issue for dyslexic students who may not realize they haven’t finished their tasks. Repeated spelling mistakes, such as writing "cost" as "coast," were frequent and often led to harsh reprimands from teachers and adults who thought I wasn’t trying hard enough. Tasks that were simple for others, like tying shoelaces or fastening my school tie, were huge challenges for me. I often got into trouble at school for these issues, which made me feel even more inadequate and frustrated. A particularly difficult period was in the seventh standard when my family moved from Chennai to Bombay. I had to switch from Tamil to Hindi as my second language. For a dyslexic person, learning multiple scripts—Tamil, English, and Hindi—was incredibly challenging. Tamil and Hindi, being completely different scripts, made this transition even harder. I remember attending tuition classes where my teacher would give me a second standard Hindi textbook. Struggling to read, I would underline long words and ask for their meanings, not realizing that underlining a character’s name was puzzling to my teacher. My undiagnosed dyslexia led to repeated academic failures. I flunked the seventh standard and had to repeat the year. Eventually, I switched to Sanskrit, which started from the basics and allowed me to pass. Myths and misconceptions Dyslexic individuals often face numerous myths and misconceptions, such as: Myth: Dyslexia is a sign of low intelligence. Reality: Dyslexia is unrelated to intelligence; many dyslexic individuals possess high creativity and problem-solving skills. Myth: Dyslexic people are lazy or not trying hard enough. Reality: Dyslexic individuals often work harder than their peers to achieve the same level of understanding and proficiency. Myth: Dyslexia can be outgrown. Reality: Dyslexia is a lifelong condition, but with the right support and strategies, individuals can successfully manage its challenges. Despite these challenges, adult life brought its own set of difficulties. I couldn’t complete my bachelor’s degree and struggled with various professional courses. I worked as an auditor but constantly mixed up numbers in balance sheets, a mistake that is unacceptable in that profession. Realizing that accountancy was not for me, I attempted a master’s in economics, only to discover that my difficulties with graphs and numbers persisted. It was only when I pursued a degree in communication that I found a path I could navigate. Writing became my outlet, and I authored my book. My journey has been isolating, with school being an especially unsafe space. Teachers misinterpreted my struggles as an attitude problem, and my dyslexia led to an eating disorder, causing anxiety before exams. I would binge eat months before exams, leading to weight gain and further bullying at school. Eating disorder involve complex relationships with food and body image, often manifesting as behaviors like binge eating, strict dieting, or purging. These are serious mental health conditions that require compassionate understanding and support. They can significantly impact physical health and emotional well-being, but with the right help, recovery is possible. In addition to my struggles with dyslexia, being a lesbian added another layer of complexity. Growing up, I felt different from my friends. They were attracted to boys, and because I wasn’t, I felt isolated. This feeling of not fitting in anywhere severely affected my self-esteem. I masked my true self for years, trying to conform to societal expectations, which brought me no happiness. Now, as an adult, I am more comfortable with my identity. I understand what dyslexia entails and seek help when needed, using various tools to perform my job well. Setting realistic expectations for myself has been a significant step. I often remind myself that just because others can do something doesn’t mean I have to do it the same way. I have learned to embrace my differences, focusing on my strengths rather than my limitations. In India, awareness about dyslexia is growing, but there is still a long way to go. According to the Dyslexia Association of India, many children go undiagnosed, and there is a lack of support in schools. It's important for educators and parents to recognize the signs of dyslexia early and provide the necessary support. Dyslexia is not a reflection of intelligence; many dyslexic individuals possess remarkable creativity and problem-solving skills. Supporting dyslexic individuals Support for dyslexic children and adults can significantly improve their quality of life and academic performance. Effective strategies include: Early diagnosis and intervention: Early identification of dyslexia allows for timely support and accommodations, reducing frustration and academic struggles. Tailored education plans: Individualized education programs (IEPs) can address specific learning needs and incorporate tools such as extra time for tests and the use of assistive technology. Multisensory teaching methods: Techniques that engage multiple senses can enhance learning and retention for dyslexic students. Positive reinforcement: Encouragement and recognition of effort and achievements can boost self-esteem and motivation. Mental health support: Access to counseling and mental health services can help manage the emotional impact of dyslexia and related conditions like anxiety and eating disorders. Buy K Vaishali's book here: https://amzn.in/d/5owZNiu Follow K Vaishali on socials: Instagram X (Twitter) LinkedIn Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Blind women from India revolutionising early breast cancer detection
The Discovering Hands program is a sureshot game changer in breast cancer screening < Back Disability, Health, News Blind women from India revolutionising early breast cancer detection The Discovering Hands program is a sureshot game changer in breast cancer screening MMS Staff 18 Sept 2024 4-min read Meenakshi Gupta has been blind since birth. She has been trained in a unique skill that many doctors and patients often miss — the ability to detect the smallest lumps in a woman’s breast that may signal the early stages of cancer. Gupta is one of 30 blind women trained through Discovering Hands, a global initiative that equips visually impaired women to become Medical Tactile Examiners (MTEs). For the past two years, Gupta has been working as an MTE at Medanta Hospital in Gurugram, Haryana, as part of a growing movement to improve early breast cancer detection in India. Introduced to India in 2017, the Discovering Hands program has expanded to major hospitals in Bengaluru, Varanasi, Gurugram, and Delhi. In a country where mammography equipment is often scarce, especially in rural areas, the expertise of these MTEs is crucial. Empowering through touch The concept behind Discovering Hands is revolutionary yet simple: train blind women to detect abnormalities in breast tissue. Dr Frank Hoffman, a German gynaecologist, founded the program after observing how many early-stage breast cancer cases were being missed worldwide. His vision led to the establishment of the first MTE training program in Germany, and the model has since spread globally. Gupta, like all the MTEs, underwent nine months of rigorous training — six months of classroom study focused on anatomy and clinical breast examination techniques, followed by a three-month internship. Additionally, she received mobility training, allowing her to navigate independently with her white cane, even through the often chaotic streets of Gurgaon. Despite the challenges, Gupta feels the work is worth the effort. “This role gives me both independence and a sense of purpose. I know that my work can help save lives,” she says. A transformative impact The Discovering Hands program has proven to be a game changer in breast cancer screening. Studies show that MTEs are 30% more effective at detecting tissue changes than doctors. Their ability to detect lumps in the earliest stages — sometimes even before they appear on imaging scans — has been validated through several independent research efforts. In 2023, a pilot study conducted by the University of Erlangen in Germany confirmed that MTEs performed breast exams with the same accuracy as doctors in identifying cancerous tumours. These findings were supported by Indian healthcare professionals like Dr D Pooja, a gynaecologist and CEO of Apar Health, who believes MTEs can make a significant difference, especially in low-resource settings. “A Medical Tactile Examiner’s work is empowering, particularly when many women do not have access to mammograms,” says Dr. Pooja. “It also eases the burden on overcrowded hospitals and clinics.” Overcoming challenges For Gupta, the path to becoming an MTE wasn’t without its difficulties. An arts graduate, her only prior exposure to science had been in high school. “Learning about breast anatomy and conducting clinical exams was tough,” she admits. In training, she practised on silicone models and used skin-friendly tape to map the breast into four zones. Probing each zone with varying pressure, MTEs can locate lumps and document their findings, providing precise information for doctors to follow up. “We examine the texture of each area — whether it’s hard or soft — and note the location, size, and shape of any lump we find,” explains Gupta. “But it’s not our role to diagnose whether a lump is cancerous.” Despite her extensive training, Gupta recalls feeling overwhelmed when she first examined a live patient. “My hands were shaking,” she says, “I worried I might miss something important.” Over time, her confidence grew, and now she examines up to eight patients a day. On average, she flags one or two abnormalities each day for further examination. Changing the landscape of breast cancer detection in India India faces significant barriers when it comes to early breast cancer detection. According to the Ministry of Health and Family Welfare, breast cancer is the most common cancer among Indian women, causing about 75,000 deaths annually. Cultural stigmas around breast exams and limited access to mammography equipment are major hurdles. This is where the Discovering Hands program has had a profound impact. Women are often more comfortable being examined by blind MTEs, and this reduces the stigma associated with breast exams. “The fact that these women are blind actually makes many patients feel less embarrassed,” notes Dr Kanchan Kaur, a breast cancer surgeon at Medanta Hospital. In India, where breast cancer tends to occur at a younger age and late-stage diagnoses are common, early detection can save lives. Nearly half of the cases seen by Kaur are already in advanced stages, when the chances of survival diminish significantly. She believes the program holds enormous potential for India, where only one in two women diagnosed with breast cancer survives. A hopeful future The program has been spearheaded in India by two women: Shalini Khanna Sodhi, Founding Director of the National Association for the Blind’s Centre for Blind Women and Disability Studies, and Dr Kaur. Together, they have been instrumental in establishing the Discovering Hands initiative, providing opportunities for blind women to make a meaningful contribution to society while filling a crucial healthcare gap. “The work these women are doing is vital,” says Sodhi. “They’re not only assisting doctors but also giving visually impaired women dignity and purpose.” Yet, the program’s expansion is limited by funding. Currently, it costs about ₹2 lakh ($2,500) to train each MTE, with much of the program relying on private donations. “If we could expand this model, it could save so many more lives,” Sodhi says. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | 34 years of the ADA: Celebrating a milestone in disability rights
How the ADA has improved lives for disabled folx, and the challenges faced in enforcing this law < Back Disability, Neurodiversity, News 34 years of the ADA: Celebrating a milestone in disability rights How the ADA has improved lives for disabled folx, and the challenges faced in enforcing this law MMS Staff 25 Jul 2024 4-min read The Americans with Disabilities Act (ADA) was passed July 26, 1990, marking a significant milestone in the fight for civil rights for people with disabilities. This landmark legislation protects individuals with visible and invisible disabilities from discrimination, ensuring they have equal rights and opportunities. The journey to the ADA One of the critical issues with disability-related acts is that while they aim to cover all disabilities and address various challenges faced by disabled individuals, the enforcement of these laws often depends on individual litigation. Simply put, unless someone files a case, courts are not obligated to mandate accessibility measures. This means the implementation of the law is not actively overseen unless people fight for their rights, which can be both time-consuming and expensive — an effort many disabled individuals cannot afford. The historic significance of the ADA Despite these challenges, the ADA remains a historical piece of legislation. An entire community came together to advocate for the passage of the ADA, culminating in a powerful demonstration known as the “Capitol Crawl.” Activists gathered at the Capitol Building in Washington, DC, and crawled up the steps to highlight the need for accessibility and inclusion. This act of reclaiming space became a pivotal moment in disability rights history. US Senator Tom Harkin, the author of the final bill, delivered his speech to the Senate in sign language, ensuring it was accessible to his deaf brother and highlighting the importance of inclusivity. President George HW Bush signed the bill into law, declaring, “Let the shameful wall of exclusion finally come tumbling down.” The impact of the ADA Thirty-four years later, the ADA has made several essential accessibility measures mandatory. Some disabled individuals express gratitude for the ADA's mandates, which include: Disabled parking lots Ramps Wheelchair seating in cinema halls Better access to employment and education These changes have significantly improved the lives of many, but there is still much work to be done. The ADA's reliance on individual litigation for enforcement means that not all aspects of the law are uniformly implemented. Advocacy and awareness remain crucial to ensuring the continued progress of disability rights. “Yes, things are better with the A.D.A. We have elevators, ramps and closed captioning. But the ADA is not a magic wand. (It) can only do so much to correct inequalities in a society that is uncomfortable with disability,” said disability rights activist Alice Wong in this story in the NYT. The ADA explained The ADA prohibits discrimination against people with disabilities in several areas, including employment, transportation, public accommodations, communications and access to state and local government programs and services. As it relates to employment, Title I of the ADA protects the rights of both employees and job seekers. While the US Department of Labor's (DOL) Office of Disability Employment Policy (ODEP) does not enforce the ADA, it does offer publications and other technical assistance on the basic requirements of the law, including covered employers’ obligation to provide reasonable accommodations to qualified job applicants and employees with disabilities. The ADA applies to all private businesses with 15 or more employees. It also covers government employers, employment agencies, and labour unions. The ADA also had the effect of increasing accessibility and mobility for people with disabilities by mandating automatic doorways, ramps, and elevators to accommodate wheelchairs in public places and businesses. Title I of the law prohibits discrimination against qualified individuals with disabilities during job application procedures, hiring, firing, the pursuit of career advancement, compensation, job training, and other aspects of employment. Title II applies to state and local government entities. This part of the law further extends the protection from discrimination to qualified individuals with disabilities. It requires that these individuals have reasonable access to services, programs, and activities provided by the government. Title III prohibits discrimination against people with disabilities regarding access to activities at public venues. This includes businesses that are generally open to the public, such as restaurants, schools, daycare facilities, movie theatres, recreation facilities, and doctors’ offices. Title IV oversees telephone and television access for individuals with hearing and speech disabilities. Common carriers, such as telephone companies, are required to establish interstate and intrastate telecommunications relay services (TRS) 24 hours a day, seven days a week. Looking forward While the ADA has laid a strong foundation, there is always room for improvement. It's essential to continue the conversation about disability rights and push for further advancements in accessibility and inclusivity. How has the ADA made things better for you or someone with a disability you know? Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | ऑटिज़म के बारे में 6 अफ़वाहें - 6 myths commonly heard about autism
ऑटिज़म के बारे में सही जानकारी और जागरूकता का प्रयास (विडियो की यूट्यूब लिंक के साथ) < Back Neurodiversity, Hindi, Parenting ऑटिज़म के बारे में 6 अफ़वाहें - 6 myths commonly heard about autism ऑटिज़म के बारे में सही जानकारी और जागरूकता का प्रयास (विडियो की यूट्यूब लिंक के साथ) MMS Staff 18 May 2024 3-min read ऑटिज़म एक न्यूरो डेवलपमेंटल कंडिशन है, लेकिन इसके बारे में सही जानकारी और जागरूकता की कमी है। भारत और अन्य कई देशों में, ऑटिज़म को अभी भी एक कमी या खराबी के रूप में देखा जाता है। ऑटिज़म इंटरनेट पर सर्च करने पर हजारों वीडियो और आर्टिकल्स मिलते हैं, जिनमें से कुछ सही जानकारी प्रदान करते हैं, लेकिन बहुत सारी जानकारी गलत और भ्रामक होती है। इस ब्लॉग में, हम ऑटिज़म के बारे में छह आम अफ़वाहें दूर करेंगे और आपको सही जानकारी देने का प्रयास करेंगे। 🚫 मिथक 1: ऑटिज़म एक बीमारी है ✅ सच: ऑटिज़म कोई बीमारी नहीं है बल्कि एक डिसेबिलिटी और न्यूरो डेवलपमेंट कंडिशन है। ऑटिस्टिक दिमाग़ का विकास और कार्यप्रणाली नूरो टिपिकल दिमाग़ से अलग होती है। यह फर्क कोई कमी नहीं है, बल्कि एक अलग तरीके से दुनिया को देखने और समझने का तरीका है। 🚫 मिथक 2: ऑटिज़म ठीक हो सकता है ✅ सच: यदि ऑटिज़म कोई बीमारी नहीं है, तो उसका इलाज भी नहीं हो सकता। ऑटिस्टिक लोगों को आपके समर्थन और शायद थेरेपी की जरूरत हो सकती है, जैसे स्पीच थेरेपी, ऑक्युपेशनल थेरेपी इत्यादि। लेकिन ऑटिज़म को ठीक करने की बात करना गलत है। और ऑटिज़म को एक व्यक्ति से निकालना मुमकिन नहीं। समाज में ऑटिस्टिक लोगों को ठीक करने की कोशिश करने के बजाय उन्हें अपनाएँ और उनकी सहायता करने के तरीके ढूंढें। 🚫 मिथक 3: ऑटिज़म सिर्फ बच्चों में होता है ✅ सच: ऑटिस्टिक बच्चे बड़े होकर ऑटिस्टिक वयस्क बनते हैं। कई लोगों को उनके ऑटिज़म के बारे में बड़े होने के बाद या उनके बुढ़ापे में भी पता चलता है। उदाहरण के लिए, इस यूट्यूब वीडियो की होस्ट अदिति गंगराड़े खुद एक ऑटिस्टिक युवती हैं। इसलिए, यह सोचना कि आटिज्म सिर्फ बच्चों में होता है, गलत है। 🚫 मिथक 4: ऑटिज़म सिर्फ लड़कों को होता है ✅ सच: ऑटिज़म लड़कियों, महिलाओं, ट्रांसजेंडर लोगों, और नॉन-बाइनरी लोगों में भी होता है। ऑटिज़म का लक्षण हर व्यक्ति में अलग-अलग हो सकते हैं। ऑटिज़म के लक्षण एक व्यक्ति के देश, संस्कृति, पालन-पोषण, लिंग, और भी कई कारकों से अलग हो सकते हैं। 🚫 मिथक 5: सभी ऑटिस्टिक जीनीयस या सवॉंट होते हैं ✅ सच: सभी ऑटिस्टिक लोग जीनीयस या सवॉंट नहीं होते। यह स्टीरियोटाइप फिल्मों और मीडिया के कारण फैला है, जैसे "रेन मैन" फिल्म में दिखाया गया है। ऑटिज़म एक स्पेक्ट्रम है और हर ऑटिस्टिक व्यक्ति अलग होता है। यदि आपने एक ऑटिस्टिक व्यक्ति से मुलाकात की है, तो इसका मतलब यह नहीं है कि आपने सभी ऑटिस्टिक लोगों को समझ लिया है। 🚫 मिथक 6: ऑटिज़म कोई दोष के कारण होता है ✅ सच: ऑटिज़म आनुवंशिक है और पीढ़ी दर पीढ़ी परिवार में चला आ रहा हो सकता है। यह केवल एक अलग होने का तरीका है, जैसे हमारी हाइट, वेट, जाति, लिंग अलग-अलग होते हैं, वैसे ही। कुछ लोग कहते हैं कि ऑटिज़म वैक्सीन्स या किसी डिफेक्ट के कारण होता है, लेकिन यह बातें वैज्ञानिक रूप से प्रमाणित नहीं हैं। सही जानकारी का प्रचार करें ऑटिज़म के बारे में सही जानकारी और जागरूकता फैलाना महत्वपूर्ण है। चाहे स्कूल, ऑफिस, कॉलेज या कोई और जगह हो, वहाँ ऑटिज्म के बारे में एडवोकेट करें। सही जानकारी दें ताकि ऑटिस्टिक लोगों को समाज में एक जगह और इज़्ज़त मिले। इस ब्लॉग को अपने परिवार, दोस्तों, और व्हाट्सऐप ग्रुप में शेयर करें और ऑटिज़म की तरफ अपना नजरिया बदलें। ऑटिज़म के बारे में अधिक जानने के लिए और सही जानकारी प्राप्त करने के लिए, विश्वसनीय स्रोतों और विशेषज्ञों की सलाह लें। इसके साथ ही, ऑटिस्टिक लोगों की सुनें और उनके अनुभवों से सीखें। इस ब्लॉग को विडीओ के रूप में देखने के लिए नीचे दिए गए चित्र पर क्लिक करें Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | How this community is ending isolation for Neurodivergent youth
This mother is paving the way for neurodiversity inclusion < Back Neurodiversity, Parenting, Community How this community is ending isolation for Neurodivergent youth This mother is paving the way for neurodiversity inclusion MMS Staff 14 Jan 2025 4-min read In a world where loneliness and isolation are all too common for neurodivergent individuals, Special Hangout stands as a much-needed beacon of hope, offering connection and belonging to neurodivergent individuals and their families. Founded by Ritu Vig, a dedicated mother of two sons — one neurotypical and one neurodivergent — this grassroots organization is creating waves by addressing a critical need: spaces where children with disabilities and their families can simply be themselves without fear of judgment or exclusion. A Personal Journey to Inclusion Ritu's journey into creating Special Hangout is deeply personal. Raising two sons, Kritin (22), who is neurodivergent, and Pranit (17), Ritu faced the challenges of balancing the needs of her children in a world that isn’t always accommodating. As they were growing up, I always felt that Pranit had a lot of friends and a lot of venues to go to with his friends and play with and spend time with them. Whereas, Kritin always longed to have those friendships. He had some friends in school, but if you'd ask me, after coming home there was nowhere he could go. Even if he did go downstairs with his brother Pranit and his friends, he was called names, he was bullied. “There was a point where Kritin would watch the children play from our balcony, and ask me, ‘Can I go down now? I promise I won’t trouble them!’” Ritu recalls, her voice tinged with the emotion of a mother who only wanted to provide her son with the same social experiences that every child deserves. But it wasn't just Kritin who was affected. Pranit, too, struggled with the emotional toll of witnessing his brother's exclusion. It was in these heart-wrenching moments that Ritu realized: This isn't just about my son — this is a universal issue for neurodivergent children everywhere. And so, Special Hangout was born — initially as small playdates, and now blossomed into an inclusive community with over 375 families involved. The Power of Togetherness The organization started small, but it didn't take long for the need for safe, inclusive spaces to become apparent. Events began to take shape, crafted with an understanding that every neurodivergent individual is different, and every family’s needs are unique. From Dandiya nights to movie screenings, every event is thoughtfully planned to accommodate sensory sensitivities, ensure comfort, and, most importantly, create a space where these young people and their families feel seen, heard, and valued. “We have to think about everything — sound levels, lighting, food preferences,” Ritu explains. For example, during our Diwali party, there were no crackers, because we know that many children are sensitive to them. At a movie screening, we made sure that if any child wanted to walk around, or touch the screen, or bring their own food, it was completely fine. There was even a trampoline for them to use when they needed a break. This attention to detail has made Special Hangout events feel like more than just social gatherings — they’re opportunities for neurodivergent children to have experiences that are both fun and comfortable, fostering connection and belonging without pressure. Breaking Myths, One Art at a Time A key part of the Special Hangout’s mission is debunking misconceptions about neurodivergence. Ritu highlights one of the most damaging myths: that neurodivergent individuals are “incapable” of accomplishing things. “It’s heartbreaking to hear people say that if a child can’t talk, they can’t write stories or paint beautiful pictures,” Ritu says. “We’ve seen these children achieve things that put us all to shame. They are just wired differently, they are different, not less.” One powerful example of this came during a painting exhibition at Kala Ghoda, where neurodivergent artists showcased their stunning works. “We sold artworks for around Rs 5 lakh to 6 lakh,” Ritu beams. “And what was incredible was the number of people who, without knowing us, walked in and bought several pieces. Even judges from the High Court bought paintings. It’s a testament to the fact that art transcends boundaries and appreciation goes beyond expectations.” Overcoming Challenges: Building Trust and Acceptance Despite the growing success, Ritu admits that gaining the trust of parents has been a major challenge. “It’s difficult to convince parents that these events are just as important as therapy,” she says. Many parents still prioritize structured therapy over social experiences, but Ritu emphasizes that Special Hangout’s unstructured, relaxed approach allows both the children and their parents to relax. “We don’t want to put any pressure on the children to perform. If they want to play cricket during a painting session, they can. We’re not concerned with structure, we’re focused on creating real connections,” Ritu explains. And it’s working. Parents are slowly but surely seeing the benefits of giving their children the freedom to just be without any constraints. A Vision for a More Inclusive Future As Special Hangout continues to grow, Ritu’s vision is clear: to create more safe spaces for neurodivergent individuals and their families across India. The organization’s “Hangout Buddies” program, which connects neurodivergent people with neurotypical buddies from all over India, is one step toward achieving that goal. From coffee dates to cultural celebrations, these buddy pairs are breaking down the walls of isolation and creating friendships that transcend difference. But Ritu doesn’t stop there. “I want Special Hangout in every city, street, and corner of Mumbai — and then beyond,” she says with unwavering determination. “There’s a huge demand from parents in the suburbs, and it’s time we expand. The need for these spaces is urgent, and I believe Special Hangout can be the solution.” Ritu Vig’s tireless work is changing the landscape of inclusion for neurodivergent individuals and their families. But as she says, “We need society’s acceptance. The ableism must go. We have to realise that the society belongs equally to them as much as it does to the neurotypicals/abled individuals.” Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Disability Pride Month: History, significance, and self-advocacy
Confronting ableism and honouring the Disability Pride Flag this July < Back Disability Disability Pride Month: History, significance, and self-advocacy Confronting ableism and honouring the Disability Pride Flag this July MMS Staff 1 Jul 2024 3-minute read Happy Disability Pride month! People with disabilities represent the largest and most diverse minority group within the global population, encompassing all abilities, ages, races, ethnicities, religions, and socio-economic backgrounds. As per the WHO, an estimated 1.3 billion people globally experience significant disability. This represents 16 per cent of the world's population. With one in six of us having some type of disability, the disability pride movement is gaining momentum and expanding rapidly. But what exactly is disability pride? Understanding Disability Pride Disability Pride Month is a celebration of disabled individuals embracing their disabilities as integral parts of their identity. It involves reclaiming visibility in public, interacting fully with their disabilities out in the open, and rejecting shame and internalised ableism. This month-long observance is a time for the disability community to unite, uplift, and amplify one another’s voices, ensuring they are heard. Disability pride is about “accepting and honouring each person’s uniqueness and seeing it as a natural and beautiful part of human diversity.” The History of Disability Pride Month Disability Pride Month has its roots in the signing of the Americans with Disabilities Act (ADA) on July 26, 1990. This landmark legislation, achieved after a hard-fought battle by disability advocates and allies, ensured greater access to employment, transportation, and community life for disabled people. The first official Disability Pride celebration took place in 2015, marking the 25th anniversary of the ADA. Since then, every July, we celebrate Disability Pride Month to honour and centre disabled people and their achievements. The Significance of Disability Pride Month Disability pride emerged as a response to the negative views of disability and as a movement to promote human rights. For many individuals, their disability is an integral part of their identity, not something to be separated or hidden. Society often frames disabled people as pitiable or helpless, an outdated and damaging perspective that can erode confidence and self-esteem, especially in the face of pervasive ableism. Defining disability pride is complex because it means different things to different people. It encompasses a wide range of experiences and perspectives, so exploring diverse voices and resources is essential to understand its full scope. What is self-advocacy? Self-advocacy involves individuals advocating for their own rights rather than relying on others to speak on their behalf. In the disability community, self-advocates are crucial in pushing for political and societal changes that directly impact their lives. However, being a self-advocate does not mean fighting alone; it means collaborating with others who share similar goals and working together to create a more inclusive world. Ancillary Movements and Disability Pride Alongside Disability Pride Month, other movements have emerged to promote acceptance and understanding of specific disabilities. For example, Autistic Pride Day, established in 2005, is celebrated annually on June 18 to heighten acceptance and understanding of autistic people. Why Disability Pride Matters Despite the progress made, people with disabilities often face ableism, inaccessibility, misinformation and misunderstanding, leading to their devaluation in society. Disability pride matters because it challenges systemic ableism and stigmatising definitions of disability, promoting acceptance and honouring each person’s uniqueness. What is Ableism? Ableism is discrimination against individuals with disabilities or medical conditions. Disability discrimination occurs when someone is treated differently or disadvantaged because of their disability. The Significance of the Disability Pride Flag The Disability Pride Flag, redesigned in 2021, symbolises various aspects of the disability experience. Created by Anne Magill in 2019, the new flag, which is more accessible for people with visually-triggered disabilities and colour blindness, features a charcoal grey background bisected diagonally by five parallel stripes in red, pale gold, pale grey, light blue, and green. What do the colours represent? Red: Physical disabilities Gold: Neurodivergence, including autism and ADHD White: Invisible and undiagnosed disabilities Blue: Mental illnesses Green: Sensory disabilities The coloured stripes are placed diagonally across the flag to illustrate how disabled people cut across barriers in society. This Disability Pride Month, let’s take concrete steps to celebrate and support the disability community. By embracing disability pride, we not only acknowledge the integral role that disabilities play in shaping identities but also pave the path for a more inclusive and compassionate society. We celebrate the progress made and recognise the work still needed to ensure true equality and acceptance for everyone. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Black ballerina with Vitiligo who shattered racial bias dies at 29
Michaela Mabinty DePrince’s fight for inclusion and representation lives on < Back Disability, Gender, News Black ballerina with Vitiligo who shattered racial bias dies at 29 Michaela Mabinty DePrince’s fight for inclusion and representation lives on MMS Staff 14 Sept 2024 2-min read Internationally renowned Black ballerina, Michaela Mabinty DePrince, has passed away at the age of 29. Her life was one of incredible strength and resilience, from surviving a brutal civil war in Sierra Leone to becoming a leading voice for diversity in ballet. Born in 1995, Michaela lost both of her parents during Sierra Leone’s civil war. She was sent to an orphanage where she faced further rejection due to her vitiligo, a condition that caused patches of her skin to lose colour. The staff at the orphanage treated her cruelly, calling her “the devil’s child” and placing her last in line for food and clothes. At the age of four, Michaela was adopted by an American family, and her life changed. She had always dreamed of becoming a ballerina after seeing a picture of one in a magazine. With her adoptive parents’ support, she started pursuing that dream. But the path was far from easy. As a Black ballerina, Michaela faced racism and rejection in a predominantly white industry. She was once told that her skin colour didn’t belong in ballet. Despite these obstacles, Michaela broke through. She trained at prestigious ballet schools and danced with world-renowned companies like the Dutch National Ballet and the Boston Ballet. She became a trailblazer, one of the few Black dancers to reach such heights in the ballet world. Throughout her career, Michaela spoke openly about the lack of diversity in ballet and the challenges faced by Black dancers. And her advocacy went beyond ballet. She was committed to helping children affected by war, supporting organisations like War Child. Michaela also dreamed of opening a free arts school in Sierra Leone, hoping to give back to the country where her story began. Michaela DePrince’s passing is a huge loss, not just to ballet but to everyone inspired by her journey. Her life was a reminder of the barriers that still exist for marginalised people, and her legacy will continue to inspire those fighting for a more inclusive world. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | New documentary on issues faced by disabled air travellers
Sophie Morgan’s film - Fight to Fly - to come out on Channel 4 July 22 < Back Disability, News, Media New documentary on issues faced by disabled air travellers Sophie Morgan’s film - Fight to Fly - to come out on Channel 4 July 22 MMS Staff 19 Jul 2024 2-min read British TV presenter Sophie Morgan’s documentary on the issues faced by disabled people - particularly those with restricted mobility - when travelling by flights is set to release July 22 at 9 pm BST on Channel 4. The film - chronicling the experiences of multiple disabled travellers - follows Morgan as she campaigns for more awareness and sensitivity toward disabled people using mobility devices such as wheelchairs to travel by air. Morgan’s mission to make air travel equitable for all started early last year when, on a flight back from USA to the UK, her carrier damaged her wheelchair. At the time, her social media posts about the incident went viral , prompting her to start a campaign that is now called Rights On Flights. Asked what kinds of problems disabled people often face on flights, Morgan said: “It starts from the minute you book: sometimes airlines can be really difficult and refuse you travel if your wheelchair is a certain height, or a certain width, or over a certain weight, or if your battery is a certain size. And that's if the website is particularly accessible digitally anyway — this is not just about wheelchair users, there are problems across the board for all types of people, with different types of disabilities.” While the documentary itself chronicles experiences ranging all the way from people having to drag themselves to the aircraft toilet to others having to starve and dehydrate themselves while on board to yet others whose mobility aids have suffered damage. Morgan points out that it’s not even necessarily only the fault of the staff being under-trained - the entire system is, in fact, ableist. India, too, is fighting the good fight against ableism in air travel. Last year, on a flight to Mumbai from Delhi, activist Virali Modi was left behind in an aeroplane for almost 40 minutes after all other passengers had deplaned. The campaign has seen Morgan visit Downing Street as well as the White House, calling for better legislation to ensure a better air travel experience for people with disabilities. As for the documentary, it covers the campaign from the beginning, the reason for its establishment, Morgan’s aims and goals, as well as the harrowing journeys of other wheelchair users, who have gone undercover and filmed their experiences for the purpose of the film. “I'm delighted that (the campaign) was successful, but I'm gutted that it happened — it's quite shocking what we uncover, but in many ways it's not shocking. Every time these stories come out, the non-disabled community kind of go 'oh my gosh, that is shocking, I had no idea' and we're like 'we're trying to tell you! This happens to us all the time!’ Morgan said. Ever since starting the campaign, Morgan adds, some airlines have taken note while others still haven’t. “I hope the airline industry sits up and takes notice, I hope they realise that we aren't going anywhere, that they have to meet the problems head-on. There's a real opportunity here for an airline to lead the way and be better, and I can't wait for that airline to really step up and embrace that.” Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | SC issues landmark guidelines for disability representation in films
New guidelines aim to end stereotypes and promote accurate portrayals of disabilities in media < Back Disability, Media, News SC issues landmark guidelines for disability representation in films New guidelines aim to end stereotypes and promote accurate portrayals of disabilities in media MMS Staff 8 Jul 2024 4-min read One of the foundational pillars of an affirming attitude towards disability and neurodivergence is good media representation. Until the depiction of disabled and neurodivergent people in our films, TV series and social media is accurate, respectful, and empathetic, not much in society's attitude towards this community can change. Looks like the Supreme Court has taken note. In a landmark ruling on July 8, a Supreme Court bench headed by Chief Justice of India DY Chandrachud established comprehensive guidelines to prevent stereotyping and discrimination of persons with disabilities (PwDs) in visual media, including films and documentaries. The petition, filed by disability rights activist Nipun Malhotra, was driven by concerns over derogatory and discriminatory remarks towards PwDs in the film ‘Aankh Micholi.' The film included terms like “ atki hui cassettes ” (stuck cassettes) and “ bhulakkad baap ” (forgetful father) to describe individuals with speech and memory disabilities. ‘Aankh Micholi,’ released in 2023 to largely unfavourable reviews , is a film about a family whose various members live with disabilities and health conditions, including deafness, stammering and night blindness. The plot is an ableist ‘comedy of errors’ that rests on using disability and neurodivergence as elements of comic relief. Unfortunately, what a lot of filmmakers fail to realise is not only is the disabled community a low hanging fruit for comedy and all other kinds of slapstick content that shows them in bad light for a cheap laugh, their improper representation gives rise to society's developing misgivings about the community’s actual potential. The Supreme Court rightly emphasised that creators must provide an accurate representation of disabilities rather than mocking or mythifying them. Justice JB Pardiwala, part of the bench, described the judgment as "path-breaking," denouncing the use of stigmatising terms like “cripple” and “spastic.” Historical context and the need for change Indian films, TV serials, ads, and news media have long used disabilities and neurodivergent conditions as a source of comic relief, often at the expense of the dignity of persons with disabilities and neurodivergent conditions. Characters with disabilities have been frequently depicted in a manner that elicits pity or frames them as overtly inspirational, contributing to a skewed and harmful portrayal of disability. This stereotypical representation reinforces negative perceptions and stigmatisation, marginalising an already vulnerable group. The Supreme Court's latest judgement Chief Justice Chandrachud, authoring the judgement, drew attention to the harmful myths perpetuated by visual media about disabilities. The Court noted that depicting persons with disabilities as “super-cripples” implies that they must possess extraordinary abilities, thereby marginalising those who do not fit this stereotype. The bench stated, “Stereotyping is an antithesis to dignity and non-discrimination,” highlighting the judiciary’s evolving role in safeguarding individual rights and addressing complex intersections of disability, gender, and mental health. Modern social model vs the medical model The judgement emphasised a shift from the medical model, which views disability as a personal tragedy, to the modern social model. The social model treats disabilities as a result of societal barriers rather than individual deficits. Chief Justice Chandrachud highlighted that stereotypes and a mockery of disabilities arise from a lack of familiarity and inadequate representation of persons with disabilities in mainstream discourse. Distinguishing humour types and their impact The Court made a critical distinction between “disabling humour” and “disability humour.” Disabling humour demeans persons with disabilities, while disability humour seeks to better understand and explain disability. The context, intention, and overall message of media content should be considered before concluding whether remarks are disparaging. Guidelines for inclusive representation The Supreme Court issued several guidelines for creators of films and visual media content: Language and terminology: Insensitive language is contrary to the dignity of persons with disabilities. Terms like “cripple” and “spastic” should be avoided, as should terms like “afflicted,” “suffering,” and “victim.” These terms contribute to negative self-image and societal marginalisation. Accurate representation: Creators must strive for accurate representation of medical conditions to prevent misinformation and perpetuation of stereotypes. Misleading portrayals can reinforce harmful misconceptions about disabilities. Diverse realities: Visual media should depict the diverse realities of persons with disabilities, showcasing not only their challenges but also their successes, talents, and contributions to society. This holistic portrayal helps to normalise disability and reduce stigma. Stakeholder involvement: The bench emphasised the importance of disabled participation in the creation of media, stating, “‘Nothing about us without us’ principle is based on the promotion of participation of persons with disabilities and equalisation of opportunities. This principle must be practised in constituting statutory committees and inviting expert opinions for assessing the overall message of films and their impact on the dignity of individuals under the Cinematograph Act and Rules.” The Court went on to remind the government of its obligations under the Convention on the Rights of Persons with Disabilities to incorporate the lived experiences of disabled individuals. In March, the Supreme Court had requested the Central government's response to a plea filed by disability rights activist Nipun Malhotra in the same matter. Malhotra's complaint was that the film and its trailer contained derogatory references to persons with disabilities (PwDs). The issue escalated to the Supreme Court after the Delhi High Court dismissed Malhotra's plea, stating that excessive censorship should be avoided. The Supreme Court's ruling marks a significant step towards dismantling harmful stereotypes and promoting inclusive representation of disabilities in visual media. It now remains to be seen just how many producers, directors, screenwriters and social media creators adhere to these guidelines. If you’re any of the above and unsure where or how to begin, consider engaging with disability advocacy groups that can provide insights about disabled lived experiences. A lot of nonprofits and independent self-advocates conduct training and sensitisation programs, which could potentially give insights into the community’s realities. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
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