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- Much Much Spectrum | New film celebrates paralympic gold medalist Murlikant Petkar
Kartik Aaryan-starrer Chandu Champion is a tribute to the 1965 war hero & para athlete from India < Back Disability, News New film celebrates paralympic gold medalist Murlikant Petkar Kartik Aaryan-starrer Chandu Champion is a tribute to the 1965 war hero & para athlete from India MMS Staff 14 Jun 2024 3-min read Bollywood - at long last - seems to be going big on disabled stories. After the release and success of the Rajkumar Rao-starrer Srikanth, based on the life of visually-impaired entrepreneur Srikanth Bolla, director Kabir Khan and producer Sajid Nadiadwala have teamed up on Chandu Champion, which hit theatres today. Chandu Champion is a sports drama starring Kartik Aaryan. The film is based on the life of Murlikant Petkar, an ex-jawan in the Indian Army who went on to become India's first Paralympic gold medalist, tracing his journey from soldier to ace sportsman. From Sangli to the global stage Born on November 1, 1944 in Peth Islampur, Maharashtra, Petkar developed a keen interest in athletics early on in life, particularly wrestling and hockey. Even after joining the Indian Army, he continued to excel in sports. According to his website , the 1965 Indo-Pakistan war left him severely injured and with a permanent spinal cord injury as well as memory loss. Acquiring a disability Within 2 years, Petkar was well on the road to recovery. In 1968, he was already participating and making a mark in state-level sports such as shot-put, javelin throw, discus throw, weightlifting, table tennis and archery. During this time, Petkar trained vigorously, mastering the freestyle swimming technique with just one functional arm. And sure enough, he clinched gold in the 50-metre freestyle swimming event at the 1972 Summer Paralympics held in Germany, showing the world that success in sport isn’t reserved only for those who fit a traditional athletic mould. Petkar also set a world record with a time of 37.33 seconds, one that stood for many years. Petkar has continued to be involved in sports and has been an advocate for sports and the rights of disabled individuals in India. He has received various awards and recognition, though many feel his contributions and achievements have not received the level of recognition they deserve. In 2018, the government of India honoured him with the Padma Shri, one of the country's highest civilian awards, acknowledging his contributions and achievements in sports. Recognition and representation Chandu Champion releases at a crucial time in history, when discussions around the portrayal of disabled individuals in media are increasingly becoming more and more prominent, and disability advocacy is at the highest it has been. But all said and done, as a society we still need to deeply reflect on how disabled athletes - and people in general - are represented in our films and TV. While the stories of disabled people need to be told, we also need to make sure that their portrayals do not oversimplify their lives but instead offer a nuanced view of their lived experiences. It is now more crucial than ever to discuss the delicate line between celebrating achievements and veering into the territory of inspiration porn. It is also very important to remember that disabled people do not exist only to make the able-bodied feel better about their own lives. If you’ve watched Chandu Champion, we’re keen to hear your thoughts about the disability representation in the movie. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Disabled NEET candidates face challenges with college admissions
Inconsistencies in India's assessment system prevents disabled representation in STEM fields < Back News, Disability, Education Disabled NEET candidates face challenges with college admissions Inconsistencies in India's assessment system prevents disabled representation in STEM fields MMS Staff 13 Jun 2024 3-min read In India, the road to becoming a medical professional is - to say the least - rigorous, demanding superlative academic excellence and resilience. But for candidates with disabilities, the challenges often go beyond academic difficulties; they deal with systemic inequities obstructing their rightful access to education. Today, Times of India carried a report on Lakshay Sharma, a visually impaired NEET-UG (National Eligibility cumulative Entrance Test) 2023 candidate, scoring an impressive 548 out of 720, which should have been a straightforward ticket to medical school under the disability reservation. But he was rejected during the counselling process at a hospital where he was incorrectly deemed ineligible for disability reservation due to perceived 0% vision. Simply speaking, they incorrectly assessed him as having no vision at all when in fact Sharma had valid disability certificates from JP Hospital, Bhopal, and AIIMS, New Delhi stating the contrary. It took an intervention from the chief commissioner for persons with disabilities (CCPwD) to straighten this out, ordering a reassessment at another eye centre, which correctly identified him as 40% disabled, confirming his eligibility for the reserved seat. Recurring challenges and advocacy for standardisation This is hardly a one-off incident. A lot of NEET candidates with disabilities face similar bureaucratic and medical oversights every year. Laxmi Chaudhary and Usman, two other disabled candidates, had similar experiences at hospitals only to be deemed eligible after reassessments. This highlights a pattern of inconsistency in the assessment process mandated by the National Medical Commission (NMC). Disability rights activists, along with disabled candidates, are now advocating for a standardisation of the disability assessment process, putting extra emphasis on the need to implement stringent guidelines that ensure fairness and accuracy in disability evaluations. Understanding the Unique Disability ID (UDID) certification process The Unique Disability ID (UDID) system was introduced in India in 2016 to streamline the identification and verification of persons with disabilities. The UDID serves as an identity document that contains relevant details about a person’s disability and/ or health condition, with the aim to eliminate the need for multiple documents and make it easier for card holders to avail benefits. To obtain a UDID, an individual must undergo a medical examination at a designated medical centre approved by the government. In the assessment, the medical board evaluates the type and extent of disability (usually determined in percentage), and a card is issued based on the findings from the test. This ID (called the UDID) has been put in place to allow for transparency and uniformity in the process of certification across the country. Proposals for reform Dr Satendra Singh, renowned disability rights activist and a person with disability, suggests the following reforms to safeguard the rights of disabled candidates: Video recording of assessments: To ensure transparency and accountability in assessments, all evaluations must be video recorded. Inclusion of doctors with disabilities: The presence of medical professionals who are themselves disabled on assessment panels can ensure more empathetic and accurate evaluations. #NothingAboutUsWithoutUs Penalties for non-compliance: Institutions deviating from standard protocols in the UDID certification process should face strict penalties. Historical challenges in STEM for disabled individuals Disabled people have long faced difficulties in pursuing careers in STEM (Science, Technology, Engineering, and Mathematics) fields. These challenges aren't just limited to physical accessibility; they include discriminatory attitudes as well as a lack of supportive resources that are essential for learning and working in these disciplines. The systemic barriers show up in various ways such as inadequate adaptive technology, insufficient training for faculty to address diverse needs, and a pervasive culture of low expectations from disabled students. To pave the way for true inclusivity, educational institutions, government bodies, and the multiple stakeholders in the medical space need to refine their approaches not just by limiting the extent of their involvement in these matters to merely compliance with legal requirements, but actively supporting and empowering all students. Disclaimer: the above image is AI generated and used for representational purposes only. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Dear mom, thank you for celebrating my Autism
An open letter by one of our readers to their mom < Back Parenting, Neurodiversity Dear mom, thank you for celebrating my Autism An open letter by one of our readers to their mom Shaily (they/them) 25 May 2024 2-min read Dear Mom, I want to take a moment to share how much your love and support have meant to me. Growing up autistic wasn't always easy, but you made sure I had the best possible environment to thrive. Your efforts to understand and support me were invaluable, and I want you to know just how much they've shaped my life. You knew that understanding autism was key to helping me, so you dedicated yourself to learning about it. You took the time to understand my unique traits and how autism manifested in me. Instead of trying to change me, you celebrated my individuality and embraced the fact that being autistic is a part of who I am. That acceptance meant everything to me. Communication was another area where you truly shined. You realized that I had different ways of expressing myself and you adapted. Whether it was using visual supports, social stories, or technology, you found ways to help me communicate comfortably. Your patience and willingness to meet me where I was made all the difference. You also understood how overwhelming sensory overload could be for me. You created sensory-friendly spaces at home with dim lighting, soft textures, and noise reduction. These spaces became my sanctuary where I could recharge and feel safe. Your thoughtful design of our home environment showed how much you cared about my comfort. Your advocacy was relentless. Whether it was at school, during extracurricular activities, or in public spaces, you made sure my needs were met. You fought for accommodations and ensured I had the support necessary to succeed. Your determination paved the way for my growth and development, and I can't thank you enough for that. Routines and structure were crucial for me, and you recognized that. You established predictable schedules and clear expectations, which provided stability and reduced my anxiety. Knowing what to expect each day helped me navigate life with greater ease. Social interactions can be tough for someone like me, but you facilitated opportunities that were tailored to my comfort level. You encouraged friendships with understanding peers and organized inclusive activities. Thanks to you, I was able to develop social skills and form meaningful connections. You also taught me the importance of self-care. You modeled healthy coping strategies and encouraged me to engage in activities that brought me joy. You made sure to take care of yourself too, which was crucial for maintaining a positive and supportive environment at home. Above all, your unconditional love and support have been the foundation of my growth. Your belief in my abilities, even during the toughest times, gave me the courage to embrace my autistic identity with confidence. Your support has been my constant source of strength. Thank you, Mom, for everything you've done and continue to do. I hope other autism parents learn from you. I wish there was better support for you too. With all my love, Shaily Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Disability Humour vs Disabling Humour in media
We examine what constitutes good and bad representation as per SC's latest guidelines < Back Disability, Media Disability Humour vs Disabling Humour in media We examine what constitutes good and bad representation as per SC's latest guidelines MMS Staff 10 Jul 2024 3-min read In a landmark moment in Indian history, the Supreme Court on July 8 issued a series of guidelines for the depiction of disabled and neurodivergent individuals in films, TV shows and online content. The guidelines are for creators, directors, producers and various other stakeholders in media that play a role in creating and disseminating films and content in the public domain. One of the sections in the final document released by the SC, titled Caveat, clearly laid down the distinction between disability humour and disabled humour. While the former ‘challenges conventional wisdom about disability,’ the latter ‘demeans and disparages persons with disability,’ the order said. Despite the history and the obsolescence of the medical model, humour is not universally denounced in the context of disability. It is now being increasingly used as a sophisticated literary medium for engagement with the society by persons with disabilities. It familiarises the society with the lived experiences of persons with disability, thereby dispelling prejudicial myths, and sensitising people. Challenging notions of ‘otherness’ or ‘inferiority’ associated with persons with disability, humour creates an equal space. Comics with disabilities use self-deprecating humour to critique the social order and counter stereotypical images101. They bring stereotypes to the fore and rely on them in order to dispel them. Humour is a reclamation of the public discourse by persons with disabilities who are pushing back against the dominant, ableist narratives around disability. Below, we’ve broken down the key differences (with examples) of what constitutes disability humour and what falls under disabling humour. Disability humour is: Empowering. It pokes fun at the social barriers and stereotypes faced by disabled individuals. It does not make fun of the disabled individuals themselves. Inclusive. It includes disabled people in the creation process and its delivery, ensuring authenticity and respect. Educational. It highlights the misconceptions that exist, and seeks to educate the audience about disability through humour. Positive in its representation. It shows disabled characters as multidimensional individuals, capable of having a sense of humour and leading fulfilling lives. Contextually sensitive. It avoids reinforcing negative stereotypes or perpetuating harmful narratives about this diverse community. Disabling humour, on the other hand, is: Harmful. It pokes fun at disabled individuals, or their disabilities, reinforcing negative stereotypes and prejudices. Exclusionary. It is often created and disseminated by non-disabled individuals - or individuals with little to no exposure to disabled lives - without the input or perspective of the disabled community. Ignorant. It reflects a lack of understanding about the realities of living with a disability. Negative in its representation. It portrays disabled characters in a negative light, often as objects of pity or ridicule. Insensitive. It lacks empathy and is insensitive to the impact of the humour on disabled individuals and the broader disability community. To sum it up, the guidelines say that humour can be a powerful tool for positive representation and awareness when done respectfully and inclusively. On the other hand, humour that reinforces harmful stereotypes and further marginalises disabled individuals should be avoided in media representation. Here are some examples of both: Disability humour: A disabled comedian making fun of inaccessible public spaces to highlight the absurdity and need for change. TV shows like ‘Speechless,’ where disabled characters are portrayed with depth and their humour is rooted in everyday experiences. Comedians like Maysoon Zayid, Josh Blue, and Hannah Gadsby use their talent and sense of humour to break down stereotypes and talk about their lived experiences. Disabling humour: Jokes that rely on mocking disabled individuals, such as making fun of someone’s gait or speech, to demean and belittle them. Using disabled characters as the butt of jokes, like in the Hindi film Golmaal where a speech disfluency is used for cheap laughs without any real representation. And finally, here’s some examples of good and bad representation: Shows such as ‘Special,’ which was created by and stars a gay man with cerebral palsy, using humour to explore real-life challenges. Comedy sketches such as ‘Nanette’ by Hannah Gadsby where humour is used to teach the audience about disability. And on the other side of the fence, there’s Dr Evil's sidekick, Mini-Me, in ‘Austin Powers,’ is routinely ridiculed for their size. The Golmaal series, which makes fun of speech disfluency, deafness, blindness and other disabilities through its crass humour. The Bollywood film Housefull 3 in which the three lead characters fake their disabilities. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Musk's controversial claim: DEI hiring responsible for IT outage
Tesla CEO made a sarcastic tweet about CrowdStrike’s partnership with global inclusion company < Back Work, News Musk's controversial claim: DEI hiring responsible for IT outage Tesla CEO made a sarcastic tweet about CrowdStrike’s partnership with global inclusion company MMS Staff 21 Jul 2024 1-min read While much of the world was reeling from the global IT outage over Thursday and Friday, X CEO Elon Musk did not miss a chance to use the opportunity to take yet another potshot at DEI hiring. American cybersecurity firm CrowdStrike, which provides cloud workload protection and endpoint security, threat intelligence, and cyberattack response services, was responsible for one of the biggest IT outages in history on Friday, affecting 8.5 million Windows devices, when an update to one of its applications, Falcon, went live with a coding error built in. CrowdStrike has raised millions in funding from Silicon Valley, employs thousands from around the globe, and reportedly services 538 out of the Fortune 1000 companies. Plus they're also big on DEI hiring. CrowdStrike is a Gold Partner of Bright Network's Diversity, Equity, Inclusion and Belonging panel. Bright Network, a media tech platform, connects graduates from various backgrounds with suitable employers. And as part of this partnership, CrowdStrike says they're committed to creating an equitable and inclusive workplace. On Friday, following news about the outage, Elon Musk replied to a 2-year-old tweet by CrowdStrike about their association with Bright Network. In it, he simply said: "Not very 'bright' right now, is it?" The replies to his tweet, too, were largely in support of his skewed stance on the matter. DEI initiatives at various US-based companies have recently seen a pushback from upper management, with Tesla reportedly dropping language referencing diversity from its annual shareholder report earlier this year. Microsoft, too, recently laid off a team that was devoted to diversity, equity & inclusion. Shortly after that, tractor company John Deere announced they would do away with nearly all their DEI policies in favour of a quality-based workplace. Other companies who have recently either completely eliminated or reduced the size of their DEI teams include Zoom, Snap, Google, and Meta. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Abdu Rozik Reacts to Trolling After Wedding Announcement
Societal prejudice and online ableism faced by the influencer with dwarfism. < Back Disability, News Abdu Rozik Reacts to Trolling After Wedding Announcement Societal prejudice and online ableism faced by the influencer with dwarfism. MMS Staff 18 May 2024 3-min read In the world of social media, where personal milestones are celebrated publicly, joy can often be tainted by the harsh reality of online trolling. This was the unfortunate experience of Abdu Rozik, a famous influencer and singer, who recently announced his engagement to 19-year-old Amira. While the news was met with a wave of support from his celebrity friends, it also drew a barrage of cruel and hurtful comments from netizens, highlighting a persistent issue in our society: ableism faced by people with disabilities. Abdu Rozik, a 20 years-old celebrity influencer, little person (person with dwarfism), has built a successful career and amassed a significant following. Sharing his joyous engagement news should have been a time of pure celebration. Instead, it revealed the darker side of social media, where bias and prejudice still thrive. Responding to the negativity, Abdu released an official statement expressing his dismay. "The negative comments and those who are making fun of me and being nasty is very sad," he said. "Imagine Amira and her family are reading these comments." His words underscore the emotional impact that such trolling can have, not only on the individuals directly targeted but also on their loved ones. Abdu’s statement sheds light on the broader issue of societal attitudes towards people with dwarfism. "We went public after a lot of discussion and reluctance," he revealed, "and unfortunately it is going from best news to a nightmare." Reflecting on his past, Abdu admitted, "I used to be ashamed of who I am and my size, and many families used to hide their children who are like me. But now allhamdulillah, I and all the others like me have to stand tall and be accepted." People with dwarfism have historically been marginalized in the media, often cast in roles designed for comic relief rather than serious or nuanced portrayals. This harmful stereotype reduces their complex identities to mere punchlines, perpetuating misconceptions and fostering a culture of ridicule. Characters with dwarfism are frequently depicted as childlike or buffoonish, reinforcing a narrow and demeaning view of their capabilities and humanity. This trend not only denies actors with dwarfism the opportunity to showcase their talents in diverse roles but also impacts societal attitudes, contributing to the ongoing stigma and discrimination they face in everyday life. It is crucial for the media to move beyond these outdated portrayals and represent people with dwarfism with the dignity and respect they deserve. Understanding and Respecting People with Dwarfism To combat the ignorance and prejudice that Abdu and others like him face, it's crucial to educate ourselves about dwarfism and how to interact respectfully with those who have it. Here are some important points to consider: Language Matters: Avoid using outdated and offensive terms like "m*dget." Instead, use "person with dwarfism," which is respectful and accurate. Respect and Courtesy: Treat individuals with dwarfism with the same respect and courtesy you would anyone else. They are no different in terms of their cognitive abilities and deserve equal respect. Combat Stereotypes: People with dwarfism are often unfairly infantilized or used for comedic relief in media portrayals. Recognize and challenge these stereotypes to promote a more accurate and respectful understanding. Educate Yourself: Lack of knowledge often leads to unintentional exclusion or insensitivity. By learning about dwarfism, you can become a more informed and supportive ally. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Living with Dyslexia: My journey as a dyslexic lesbian author in India
In India, awareness about dyslexia is growing, but there is still a long way to go. < Back Neurodiversity, LGBTQIA+, Health Living with Dyslexia: My journey as a dyslexic lesbian author in India In India, awareness about dyslexia is growing, but there is still a long way to go. K Vaishali 31 May 2024 5-min read I’m K Vaishali, the author of 'Homeless: Growing Up, Lesbian and Dyslexic in India.' My journey has been filled with challenges, many of which stem from being diagnosed late with dyslexia and dysgraphia at the age of 20. This diagnosis came after years of struggling to understand why I found certain tasks so difficult. What is dyslexia? Dyslexia is a common learning disorder characterized by difficulties with reading, spelling, and writing. It affects the brain's ability to process written and spoken language, making it challenging for individuals to decode words and comprehend text. Dysgraphia, often associated with dyslexia, involves difficulties with handwriting and fine motor skills. According to the Dyslexia Association of India, approximately 10-15% of the population is affected by dyslexia, though many remain undiagnosed. My first memory of struggling with dyslexia dates back to the fourth standard when I received very low marks in a math exam. I had left many questions half-answered, a common issue for dyslexic students who may not realize they haven’t finished their tasks. Repeated spelling mistakes, such as writing "cost" as "coast," were frequent and often led to harsh reprimands from teachers and adults who thought I wasn’t trying hard enough. Tasks that were simple for others, like tying shoelaces or fastening my school tie, were huge challenges for me. I often got into trouble at school for these issues, which made me feel even more inadequate and frustrated. A particularly difficult period was in the seventh standard when my family moved from Chennai to Bombay. I had to switch from Tamil to Hindi as my second language. For a dyslexic person, learning multiple scripts—Tamil, English, and Hindi—was incredibly challenging. Tamil and Hindi, being completely different scripts, made this transition even harder. I remember attending tuition classes where my teacher would give me a second standard Hindi textbook. Struggling to read, I would underline long words and ask for their meanings, not realizing that underlining a character’s name was puzzling to my teacher. My undiagnosed dyslexia led to repeated academic failures. I flunked the seventh standard and had to repeat the year. Eventually, I switched to Sanskrit, which started from the basics and allowed me to pass. Myths and misconceptions Dyslexic individuals often face numerous myths and misconceptions, such as: Myth: Dyslexia is a sign of low intelligence. Reality: Dyslexia is unrelated to intelligence; many dyslexic individuals possess high creativity and problem-solving skills. Myth: Dyslexic people are lazy or not trying hard enough. Reality: Dyslexic individuals often work harder than their peers to achieve the same level of understanding and proficiency. Myth: Dyslexia can be outgrown. Reality: Dyslexia is a lifelong condition, but with the right support and strategies, individuals can successfully manage its challenges. Despite these challenges, adult life brought its own set of difficulties. I couldn’t complete my bachelor’s degree and struggled with various professional courses. I worked as an auditor but constantly mixed up numbers in balance sheets, a mistake that is unacceptable in that profession. Realizing that accountancy was not for me, I attempted a master’s in economics, only to discover that my difficulties with graphs and numbers persisted. It was only when I pursued a degree in communication that I found a path I could navigate. Writing became my outlet, and I authored my book. My journey has been isolating, with school being an especially unsafe space. Teachers misinterpreted my struggles as an attitude problem, and my dyslexia led to an eating disorder, causing anxiety before exams. I would binge eat months before exams, leading to weight gain and further bullying at school. Eating disorder involve complex relationships with food and body image, often manifesting as behaviors like binge eating, strict dieting, or purging. These are serious mental health conditions that require compassionate understanding and support. They can significantly impact physical health and emotional well-being, but with the right help, recovery is possible. In addition to my struggles with dyslexia, being a lesbian added another layer of complexity. Growing up, I felt different from my friends. They were attracted to boys, and because I wasn’t, I felt isolated. This feeling of not fitting in anywhere severely affected my self-esteem. I masked my true self for years, trying to conform to societal expectations, which brought me no happiness. Now, as an adult, I am more comfortable with my identity. I understand what dyslexia entails and seek help when needed, using various tools to perform my job well. Setting realistic expectations for myself has been a significant step. I often remind myself that just because others can do something doesn’t mean I have to do it the same way. I have learned to embrace my differences, focusing on my strengths rather than my limitations. In India, awareness about dyslexia is growing, but there is still a long way to go. According to the Dyslexia Association of India, many children go undiagnosed, and there is a lack of support in schools. It's important for educators and parents to recognize the signs of dyslexia early and provide the necessary support. Dyslexia is not a reflection of intelligence; many dyslexic individuals possess remarkable creativity and problem-solving skills. Supporting dyslexic individuals Support for dyslexic children and adults can significantly improve their quality of life and academic performance. Effective strategies include: Early diagnosis and intervention: Early identification of dyslexia allows for timely support and accommodations, reducing frustration and academic struggles. Tailored education plans: Individualized education programs (IEPs) can address specific learning needs and incorporate tools such as extra time for tests and the use of assistive technology. Multisensory teaching methods: Techniques that engage multiple senses can enhance learning and retention for dyslexic students. Positive reinforcement: Encouragement and recognition of effort and achievements can boost self-esteem and motivation. Mental health support: Access to counseling and mental health services can help manage the emotional impact of dyslexia and related conditions like anxiety and eating disorders. Buy K Vaishali's book here: https://amzn.in/d/5owZNiu Follow K Vaishali on socials: Instagram X (Twitter) LinkedIn Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Blind women from India revolutionising early breast cancer detection
The Discovering Hands program is a sureshot game changer in breast cancer screening < Back Disability, Health, News Blind women from India revolutionising early breast cancer detection The Discovering Hands program is a sureshot game changer in breast cancer screening MMS Staff 18 Sept 2024 4-min read Meenakshi Gupta has been blind since birth. She has been trained in a unique skill that many doctors and patients often miss — the ability to detect the smallest lumps in a woman’s breast that may signal the early stages of cancer. Gupta is one of 30 blind women trained through Discovering Hands, a global initiative that equips visually impaired women to become Medical Tactile Examiners (MTEs). For the past two years, Gupta has been working as an MTE at Medanta Hospital in Gurugram, Haryana, as part of a growing movement to improve early breast cancer detection in India. Introduced to India in 2017, the Discovering Hands program has expanded to major hospitals in Bengaluru, Varanasi, Gurugram, and Delhi. In a country where mammography equipment is often scarce, especially in rural areas, the expertise of these MTEs is crucial. Empowering through touch The concept behind Discovering Hands is revolutionary yet simple: train blind women to detect abnormalities in breast tissue. Dr Frank Hoffman, a German gynaecologist, founded the program after observing how many early-stage breast cancer cases were being missed worldwide. His vision led to the establishment of the first MTE training program in Germany, and the model has since spread globally. Gupta, like all the MTEs, underwent nine months of rigorous training — six months of classroom study focused on anatomy and clinical breast examination techniques, followed by a three-month internship. Additionally, she received mobility training, allowing her to navigate independently with her white cane, even through the often chaotic streets of Gurgaon. Despite the challenges, Gupta feels the work is worth the effort. “This role gives me both independence and a sense of purpose. I know that my work can help save lives,” she says. A transformative impact The Discovering Hands program has proven to be a game changer in breast cancer screening. Studies show that MTEs are 30% more effective at detecting tissue changes than doctors. Their ability to detect lumps in the earliest stages — sometimes even before they appear on imaging scans — has been validated through several independent research efforts. In 2023, a pilot study conducted by the University of Erlangen in Germany confirmed that MTEs performed breast exams with the same accuracy as doctors in identifying cancerous tumours. These findings were supported by Indian healthcare professionals like Dr D Pooja, a gynaecologist and CEO of Apar Health, who believes MTEs can make a significant difference, especially in low-resource settings. “A Medical Tactile Examiner’s work is empowering, particularly when many women do not have access to mammograms,” says Dr. Pooja. “It also eases the burden on overcrowded hospitals and clinics.” Overcoming challenges For Gupta, the path to becoming an MTE wasn’t without its difficulties. An arts graduate, her only prior exposure to science had been in high school. “Learning about breast anatomy and conducting clinical exams was tough,” she admits. In training, she practised on silicone models and used skin-friendly tape to map the breast into four zones. Probing each zone with varying pressure, MTEs can locate lumps and document their findings, providing precise information for doctors to follow up. “We examine the texture of each area — whether it’s hard or soft — and note the location, size, and shape of any lump we find,” explains Gupta. “But it’s not our role to diagnose whether a lump is cancerous.” Despite her extensive training, Gupta recalls feeling overwhelmed when she first examined a live patient. “My hands were shaking,” she says, “I worried I might miss something important.” Over time, her confidence grew, and now she examines up to eight patients a day. On average, she flags one or two abnormalities each day for further examination. Changing the landscape of breast cancer detection in India India faces significant barriers when it comes to early breast cancer detection. According to the Ministry of Health and Family Welfare, breast cancer is the most common cancer among Indian women, causing about 75,000 deaths annually. Cultural stigmas around breast exams and limited access to mammography equipment are major hurdles. This is where the Discovering Hands program has had a profound impact. Women are often more comfortable being examined by blind MTEs, and this reduces the stigma associated with breast exams. “The fact that these women are blind actually makes many patients feel less embarrassed,” notes Dr Kanchan Kaur, a breast cancer surgeon at Medanta Hospital. In India, where breast cancer tends to occur at a younger age and late-stage diagnoses are common, early detection can save lives. Nearly half of the cases seen by Kaur are already in advanced stages, when the chances of survival diminish significantly. She believes the program holds enormous potential for India, where only one in two women diagnosed with breast cancer survives. A hopeful future The program has been spearheaded in India by two women: Shalini Khanna Sodhi, Founding Director of the National Association for the Blind’s Centre for Blind Women and Disability Studies, and Dr Kaur. Together, they have been instrumental in establishing the Discovering Hands initiative, providing opportunities for blind women to make a meaningful contribution to society while filling a crucial healthcare gap. “The work these women are doing is vital,” says Sodhi. “They’re not only assisting doctors but also giving visually impaired women dignity and purpose.” Yet, the program’s expansion is limited by funding. Currently, it costs about ₹2 lakh ($2,500) to train each MTE, with much of the program relying on private donations. “If we could expand this model, it could save so many more lives,” Sodhi says. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Coldplay tours setting the Gold standard for disability inclusion
The India leg of the band’s ongoing Music of the Spheres Tour will spotlight accessibility < Back News, Disability, Neurodiversity Coldplay tours setting the Gold standard for disability inclusion The India leg of the band’s ongoing Music of the Spheres Tour will spotlight accessibility MMS Staff 22 Sept 2024 3-min read In thrilling news for Indian music fans, British rock band Coldplay has announced that their highly acclaimed Music of the Spheres World Tour will make a much-anticipated stop in Mumbai in 2025. This tour, which has been dazzling audiences across the globe since 2022 is more than just a concert — it’s a masterclass in inclusivity, setting a new standard for accessibility in live music. Coldplay’s Music of the Spheres World Tour isn’t just about performing hit songs; it’s about ensuring that every fan, regardless of their abilities, can fully enjoy the experience. And to that end, Coldplay has taken significant steps to make their shows accessible to everyone, redefining what it means to create an inclusive concert environment. Support for Deaf and Hard-of-Hearing fans Coldplay provides local sign language interpreters at their shows, allowing fans who are deaf or hard-of-hearing to engage with the music and lyrics in real time. Additionally, SubPacs — tactile audio systems that let users feel the vibrations of the music — are offered, ensuring the concert’s energy and rhythm can be physically experienced by those who may not be able to hear it. Neurodivergent-friendly Coldplay has partnered with KultureCity to provide sensory bags and mobile sensory refuge stations for fans with sensory sensitivities, helping them manage sensory overload during the concert. These thoughtful additions make the experience more comfortable and enjoyable for those who need a quieter, safer space. Touch tours for visually impaired fans To further enhance accessibility, Coldplay offers touch tours for guests who are visually impaired or have low vision, allowing them to engage with the concert’s elements in a tactile way. This thoughtful feature ensures that all fans, regardless of visual ability, can immerse themselves in the live experience. The band’s broader impact The band donates 10 percent of their profits from tours, record sales, and other ventures to various charitable causes, including ClientEarth, Global Citizen, The Ocean Cleanup, and One Tree Planted. Most recently, Coldplay has partnered with EarthPercent as a founding donor, amplifying their efforts to address pressing environmental challenges. Coldplay’s India return Coldplay’s return to India is a moment fans have been eagerly awaiting since their last performance at the Global Citizen Festival in Mumbai in 2016. That iconic show was a star-studded affair that aimed to promote global development goals, and it left a lasting impression on Indian audiences. Now, the band’s upcoming solo concert in Mumbai as part of the Music of the Spheres World Tour promises to build on that legacy, bringing their iconic hits like “Fix You,” “Yellow,” “A Sky Full of Stars,” and “Hymn for the Weekend” back to Indian shores. Fans are already buzzing with excitement. When Coldplay’s official page announced the news on Instagram, the comments section lit up with joy: “OH MY GOD IT’S HAPPENINGGGGG,” exclaimed one fan, while another wrote, “FINALLYYY YESSSSSSS!!! Our prayers have been heardddd.” As Coldplay prepares to light up Mumbai in 2025, their Music of the Spheres World Tour is more than just a series of concerts; it’s a movement that celebrates music’s power to unite and uplift, creating a space where everyone can feel the magic. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Aamir Khan opens up about son Junaid Khan’s dyslexia
Actor shares how Taare Zameen Par hit hard because he had lived it < Back Neurodiversity, Parenting, News Aamir Khan opens up about son Junaid Khan’s dyslexia Actor shares how Taare Zameen Par hit hard because he had lived it MMS Staff 4 Jun 2025 2-min read Eighteen years after Taare Zameen Par reshaped the national conversation on learning disabilities, Aamir Khan has revealed a personal connection to the film that had, until now, remained unspoken. In a moment of vulnerability at a recent fan event, Aamir Khan, known for his perfectionism and privacy, shared publicly for the first time that his eldest son, actor Junaid Khan, is dyslexic. “I’ve never said this before,” Aamir told a packed audience. “But now I can. Junaid is dyslexic. When I read the script of Taare Zameen Par, it hit me so hard because I had lived it. It was our story.” Released in 2007, Taare Zameen Par broke cinematic ground for its sensitive portrayal of a young boy struggling with dyslexia in a rigid school system. It was one of Indian cinema’s first mainstream attempts to spotlight neurodivergence, not through a lens of pity or inspiration, but with empathy, artistic depth, and psychological realism. At the time, the film was widely lauded for Aamir Khan‘s dual role as director and mentor-figure onscreen. What the public didn’t know then was that off-screen, Aamir was living a similar reality as a father. “I used to scold Junaid,” he admitted. “He would write so badly. I would say, ‘What is this? You can’t even write an A?’ He would confuse words like ‘for,’ ‘from,’ and ‘of.’ I didn’t understand what was happening.” It was only after a formal diagnosis that things began to make sense. “When we found out he had dyslexia, we were able to support him the right way. But that journey... it stayed with me,” Aamir shared. Junaid Khan, now in his early thirties, has made his foray into acting and theatre. In an interview this year, he acknowledged his diagnosis: “I was diagnosed with dyslexia very early on. My parents never pressured me about results. They were mindful of my needs, especially during school.” His remarks point to something many children with learning disabilities don’t get in India: a household that chooses understanding over punishment. From taare to sitaare: A new chapter for disability representation The timing of this revelation is significant. Aamir Khan is currently preparing for the release of Sitaare Zameen Par, a spiritual successor to Taare Zameen Par. But this time, the film doesn‘t focus on a single child’s story; it features 10 disabled actors in lead roles, marking a landmark moment for disability inclusion in Indian mainstream cinema. While Junaid is not part of the cast, the story feels deeply intergenerational. From a father learning to understand his son, to a filmmaker learning to expand the canvas for disability representation, this is truly a cultural pivot. Why this matters now In a country where neurodivergence is still widely misunderstood and learning disabilities are dismissed as laziness, Aamir and Junaid‘s openness signals a shift. It reminds us that neurodiversity is a reality for millions. And when stories are led by lived experience, they entertain, educate, and build empathy. They rewrite how we understand difference, in families, classrooms, and cinema halls. Who are your parenting role models? Tell us in the comments. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS