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- Much Much Spectrum | Why play is important: International Day of Play 2024
How global communities thrive together - the benefits of play, obstacles, and its future < Back Parenting, Education, Health Why play is important: International Day of Play 2024 How global communities thrive together - the benefits of play, obstacles, and its future MMS Staff 11 Jun 2024 7-min read India has a popular saying: ‘ Padhoge likhoge banoge nawab, kheloge kudoge banoge kharab.' Roughly translated, it means: “Study and you’ll become a respectable person. Play and you'll fail in life." Which - tbh - couldn't be further from the truth. The first-ever International Day of Play is going to be observed on 11 June 2024, marking a significant milestone in efforts to preserve, promote, and prioritise play so that all people, especially children, can reap its lifelong rewards. Play transcends language, culture, and age. It acts as a catalyst for development and well-being. It is also an essential part of a child’s development, and is particularly important in early childhood when children are growing and learning most rapidly. According to this UNICEF report , playing with children is a fundamental aspect of parenting. Simple, playful interactions with adults help infants develop sturdy brain architecture, the foundations of lifelong health, and the building blocks of resilience. “We are still not good enough at accommodating or acknowledging the child that thinks creatively. But, we are super good at rewarding the academically strong child,” a parent in Denmark told LEGO . The importance of play Beyond physical well-being, outdoor play stimulates cognitive, social and emotional growth. Being in nature helps children explore, experiment and develop problem-solving skills. The sensory experiences of the natural world enhance creativity and imagination, fostering a sense of wonder and curiosity and contributing to overall development and well-being. Long term studies have shown that access to early play experiences boosts life outcomes substantially - a 42% raise in yearly earnings, 44% increase in high school graduations, and 17% increase in bachelor degrees, as per the The Case for Play report by the Playground Ideas. Play across different cultures Cultural traditions shape unique play experiences worldwide. For instance, Mancala, a game played in Africa, involves counting and strategy, teaching kids mathematical and critical thinking skills. Children in Italy, on the other hand, play Strega Comanda Color, which enhances language and social interaction skills. The need for inclusive play Research confirms that for children with disabilities too, play is an important way in which they make friends (Jeanes and Maggie, 2012). For many of these children in India, their home - or schools - are the only environments for play. However, accessibility is a concern. There are very few parks and playgrounds where children with disabilities can be found playing. Most schools and community play spaces (parks and public playgrounds) are often designed from the perspective of those without disabilities. Inaccessible structures, lack of trained staff to oversee the play, absence of allocation of free play time for children, resistance from children themselves, and substitution of therapy sessions in place of play are some of the common challenges in special schools that render almost no access to play spaces for children with disability, as per Play for All by Azim Premji University . The impact of play deficit on children’s health A comprehensive survey covering 85 cities across India, and covering 1.15 lakh children, revealed that 40% children do not maintain a healthy Body Mass Index (BMI). The situation is more dire in India's major metros — New Delhi, Mumbai, Kolkata, Bengaluru, Chennai, and Pune — where children's health indicators are poorer compared to those from smaller towns and rural areas. The lack of physical play areas is directly impacting children's physical health. Anxiety and depression among school-aged children and teens in the United States are at an all-time high. In 2021, child and adolescent mental health was declared a national emergency. Although a variety of causes are thought to contribute to this decline in mental health, a new study in Science Daily by three prominent researchers specialising in child development points to a decline over decades in opportunities for children and teens to play, roam and engage in activities independent of direct oversight and control by adults. Impact of technology on play In the US, although 71% of parents played outside as a child, only 21% of their children play outside today. Technology is everywhere, and kids spend a lot of time on their cellphones, tablets and other electronic devices, as per Play World . Nearly 40% of India's schools have no playground. An Indian study says that over the past few decades, there has been a significant decline in children’s outdoor play. Several factors have contributed to this shift including the rise of technology, increased academic pressure, safety concerns and COVID-19. The allure of digital entertainment has drawn children indoors and to screens. Additionally, schools have increased academic demands, leaving children with limited free time for unstructured outdoor play. “Technology today allows children to still be creative and scientifically knowledgeable but learn in a fun way,” says a UK parent, to LEGO . Learning through play 83% of children say they learn better when it feels like play. 93% of parents think play should be used as a tool for child development and learning in schools. As per the Lego Play Well Report of 2018 , play is its own reward. We do it because it feels good. The urge to play is nature’s way of helping us make sense of the world and our place in it. Through play we learn how our minds and bodies work and discover how others think and feel. Through play we come to know what it means to belong, to be loved and feel happiness. Building a community through play Community play projects in India often focus on revitalising underused or neglected urban areas, turning them into safe and accessible play spaces. These projects are particularly vital in densely populated cities where children's play areas are scarce. Some notable initiatives working towards enhancing play opportunities: Bachpan Manao, Badhte Jao : Spearheaded by the EkStep Foundation , this initiative focuses on maximising the early childhood period (0 - 8 years) across India. For International Day of Play, they launched the #HourOfFreePlay challenge in collaboration with UNICEF, advocating for every child's right to play. While play should be part of children's lives every day, the call to action on June 11th is to include adults by encouraging them to pause whatever they’re doing from 5 pm to 6 pm and engage in an Hour of Free play (meaning activities led by children). Anthill Creations: Based in Bengaluru, this non-profit organisation builds safe, sustainable, and inclusive playgrounds using upcycled materials like tyres and oil drums. To date, Anthill Creations has constructed about 380 playgrounds across 22 states, demonstrating a scalable model of low-cost, high-impact community engagement. Kilikili: Another commendable effort is by Kilikili , an NGO based in Bengaluru, which aims at developing inclusive public play spaces in Bengaluru that would enable children with disabilities to secure their right to play alongside children without disabilities. Kilikili brings together multiple stakeholders – the local municipal corporation and parents, volunteers, disability rights organisations, citizen’s groups, resident’s associations, special and regular schools. Jabalpur’s child-focused urban planning: The city of Jabalpur is pioneering a new approach in urban planning with a focus on children’s needs. The city's officials are working on a play “master plan" that aims to ensure that every child has access to play opportunities within 500 metres of their home. This initiative is part of the broader “Nurturing Neighbourhoods Challenge” under the Smart Cities Mission, which aims to create child-friendly neighbourhoods in Indian cities. PepsiCo India's Gatorade 'Turf Finder': In collaboration with Leo Burnett India, Gatorade is set to launch Turf Finder , a platform designed to help people find available playing spaces in India’s crowded metropolitan areas. Starting in Mumbai and expanding to other major cities like Bengaluru, the platform addresses the acute shortage of recreational spaces in urban settings. The role of parents and guardians in play Parents and guardians are pivotal in guiding play. A study by the American Academy of Pediatrics (2007) revealed that children whose parents actively engage in their play activities show improved language skills and social development. Challenges to play Despite its benefits, access to play is not universal. Urbanisation and socioeconomic factors often limit play opportunities. The Global Play Alliance (2022) states that 30% of urban children worldwide lack access to safe play spaces. India's vast diversity and rapidly growing urban areas present challenges in ensuring adequate play spaces for children. Government surveys highlight a concerning deficit with 40% of schools across the country lacking a playground, a figure that rises dramatically in states like Bihar and Odisha, where the absence of playgrounds affects 65% and 70% of schools, respectively. This lack of facilities is contributing to significant health issues among children. Future of play As per LEGO , on a societal scale economies are set to lose out on big social and economic benefits if early childhood development and play is not prioritised. A recent report by The Royal Foundation Business Taskforce for Early Childhood estimated that investing in early childhood in the UK could add up to £45.5 billion (~INR 4 lakh crore) to the national economy each year. Simply put, playing is natural, healthy and part of being human - but it is also fundamental to personal and societal progress. This has long been recognised by the international community. Indeed, the UN Convention of the Rights of the Child, which almost all countries in the world have signed, recognises the right to play. And earlier this year, in a nod to the importance of this universally human activity, the UN General Assembly adopted an International Day of Play. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Tourette Syndrome: Symptoms, causes, management & support
A comprehensive guide to understand Tourette's in children and adults < Back Neurodiversity Tourette Syndrome: Symptoms, causes, management & support A comprehensive guide to understand Tourette's in children and adults MMS Staff 7 Jun 2024 4-min read Tourette Syndrome is a nervous system condition characterised by involuntary sounds and movements, called ‘tics’. While the core symptoms remain the same throughout life, how Tourette's syndrome presents itself can differ between children and adults. Tics typically appear between ages 5 and 9. ADHD and OCD are more prevalent in children and adults with Tourette’s. Signs and traits of Tourette Syndrome Tics are the defining characteristic of Tourette syndrome. These are sudden, brief bursts of movement or sound that can range from mild to severe. In some cases, severe tics can make it difficult to communicate, do daily activities. This might affect overall well-being. Types of tics: Motor tics: These involve involuntary movements of different body parts. Simple motor tics: These are quick and repetitive, affecting a limited number of muscles. Examples include blinking, head jerking, shrugging, or twitching the nose. Complex motor tics: These involve more coordinated movements of several muscles. Like touching or smelling objects repeatedly, copying someone else's movements, hopping, or making obscene gestures. Vocal tics: These are involuntary sounds a person might make. Simple vocal tics: These are brief, simple sounds like grunting, coughing, throat clearing, or barking. Complex vocal tics: These are more elaborate vocalisations. Like repeating your own words or phrases (echolalia), repeating what someone else says (coprolalia), or using swear words (copropraxia). Understanding tics: Tics can vary in terms of how often they happen (frequency), how strong they are (severity), and what kind of tic they are (type). Factors such as illness, stress, anxiety, tiredness, or excitement can make tics worse. They can even occur during sleep. Tics can change throughout a person's life. Often, they worsen in the early teenage years and improve as one transitions into adulthood. Before a tic happens, some people might feel an uncomfortable sensation in their body, like an itch, tingle, or tension. Performing the tic can actually relieve this feeling. Some people can suppress a tic for a short time, but it takes a lot of effort. Myths vs facts: Demystifying tics and Tourette Syndrome Myth: Everyone with Tourette syndrome yells swear words all the time. Fact: Only about 10-15% of people with Tourette syndrome experience coprolalia, the involuntary use of swear words. Myth: Tics are caused by bad parenting or a lack of discipline. Fact: Tourette syndrome is a neurological disorder, likely with a genetic component. There's no link to upbringing or a person's character. Myth: People with tics can easily control them if they try hard enough. Fact: Tics are involuntary, though some people can suppress them for a short while with significant effort. This suppression often leads to a stronger tic later, and might be severely uncomfortable for the person. Myth: Tics are a sign of intelligence problems. Fact: Tourette syndrome has no bearing on intelligence. Many people with Tourette syndrome are highly intelligent and successful. Myth: Tics only affect children. Fact: While tics often start in childhood, they can persist into adulthood. However, symptoms often improve as individuals transition into adulthood. Myth: Tics are contagious. Fact: Tics are not contagious. You cannot "catch" Tourette syndrome from someone else. Myth: Everyone who has tics has Tourette syndrome. Fact: Tics can be a symptom of other conditions as well. Tourette syndrome is a specific diagnosis with stricter criteria, including both motor and vocal tics lasting for more than a year. Myth: Stress causes tics. Fact: Stress can worsen existing tics, but it doesn't cause them. The underlying cause of Tourette syndrome is still being researched. Myth: People with tics are always frustrated or angry. Fact: While some people with tics may experience frustration due to their symptoms or negative biases, Tourette syndrome itself is not a mental health disorder and doesn't dictate emotions. How to interact with someone with Tourette Syndrome Sometimes social interactions can be exhausting for people with Tourette’s because of negative biases, ableist comments, and a general lack of awareness among people. Here are some things to remember if you want to be mindful of the experiences of someone who has Tourette’s: Tics are involuntary: Tics are uncontrollable movements or sounds. Scolding or asking someone to stop their tics is not cool. Focus on the person: Treat the person with Tourette’s just as you would anyone else. Engage in conversation, share interests, and build a rapport based on who they are, not their tics. Avoid prying: Skip questions like "What's wrong with you?" or "Can you control that?" These can be insensitive and embarrassing. Open communication: If appropriate, consider explaining Tourette syndrome to a child with TS. This can help them understand their own body and feel less anxious. Also try and sensitise their peers and friend circle. Empathy and support: Help the person with Tourette’s feel comfortable and accepted. Avoid stares or making them feel like their tics are a burden. Managing tics: Stress reduction techniques: Offer support through relaxation techniques like deep breathing or mindfulness. These can help manage stress and potentially reduce tic frequency or intensity. Focus on solutions: If someone with TS has tics that could cause harm, focus on collaborative solutions. This might involve finding fidget toys or adapting activities to reduce risk. Remember: Everyone experiences Tourette’s differently. Be patient, understanding, and create a space where the person with TS feels comfortable being themselves. Disclaimer: This article is intended for general awareness and understanding only. It is not written by medical professionals and should not be considered as medical advice. For professional diagnosis or treatment, please consult a qualified healthcare provider. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Navigating disability, domestic violence & climate crisis in a Delhi slum
What soaring temperatures, health issues, and systemic neglect can do to those on the margins < Back Climate, Disability, Health Navigating disability, domestic violence & climate crisis in a Delhi slum What soaring temperatures, health issues, and systemic neglect can do to those on the margins Puneet Singh Singhal 20 Jun 2024 5-min read In the narrow, winding lanes of a Delhi slum, where the sun is relentless and the ground is scorched, a story unfolds — one that many will find hard to grasp let alone endure. I grew up in these sweltering corners, living with dyslexia, dyspraxia, and a stammer, all while being the lifeline for my chronically ill mother. We’ve survived domestic violence, yes, but we’re also survivors of an increasingly hostile world — socially, environmentally, and mentally. When environmental crises devastate lives You may read about the heatwaves or monsoon floods, but do you feel them? Can you feel the sweat trickling down your spine as you desperately search for a drop of water? Can you sense the despair, almost tangible, as you watch your mother’s health deteriorate with each passing minute? Living through a Delhi heatwave, in a fragile home with no escape from the oppressive heat, feels like being trapped in an oven. The sun becomes an unforgiving foe, and the air turns into a suffocating shroud. During one unbearable summer, our neighbourhood faced an acute water crisis. Imagine being parched but having not a single drop to drink. Every breath became a laborious task; each moment felt endless. My mother’s existing health issues worsened terribly. Dehydration ravaged her body, while her chronic ailments flared up with newfound intensity. As for me, the heatwaves weren’t just a weather event; they were a neurological, physiological, and psychological disaster. My dyspraxia symptoms intensified, making everyday tasks — like lifting a glass of water — an exhausting struggle. The constant stress and anxiety from watching my mother suffer and feeling helpless to alleviate her pain took a severe toll on my mental health, leading to heightened levels of stress and anxiety. Dealing with a broken healthcare system When you’re fighting to save a loved one’s life while also grappling with disabilities, every second feels like an eternity. The journey to the hospital was a nightmare. Public hospitals were our only hope, but they were dreadful. Doctors and nurses did their best but were woefully under-equipped to handle the flood of patients. Can you fathom the helplessness I felt when I stammered while trying to explain my mother’s rapidly worsening condition? Time and again, I was met with impatient stares or pitying glances, neither of which helped our dire situation. The agony of being trapped in that atmosphere — where you’re just a number, a statistic — is indescribable. The urgent need for climate-resilient, inclusive healthcare Here’s the gut-wrenching truth: if healthcare infrastructure continues to ignore the heightened vulnerabilities of people with disabilities, we’re not just failing as a society; we’re perpetuating suffering and loss. Our healthcare systems need to be fortified with climate-resilient policies and infrastructures. Wheelchair ramps and Braille signage aren’t luxuries; they’re necessities. Doctors need training to understand the unique challenges that environmental disasters pose to individuals with disabilities. It’s not just about ramps and signs; it’s about creating a space where the most vulnerable can feel safe, especially when the world outside is falling apart. Statistics highlighting the impact According to a 2021 climate report heat waves will last 25 times longer 2036 through 2065 in India if emissions push towards a global temperature rise of 4°C under business-as-usual global emission scenarios. The Lancet Countdown on Health and Climate Change reports that annual heat-related mortality of people older than 65 years is projected to increase by 370% above 1995 – 2014 levels by 2041 – 60 under a scenario compatible with limiting global temperature rise to 2°C, and by 433% under a scenario in which no further mitigation occurs, assuming no further adaptation. By 2081 – 2100, these mortality levels are projected to increase by 683% and 1537% for the two scenarios, respectively. According to this Indian Express article, in Delhi, the world is most likely to temporarily breach the 1.5 degree Celsius limit in the next five years. Each year between 2024 and 2028 is predicted to be between 1.1 degree Celsius and 1.9 degree Celsius higher than the pre-industrial average. Specific healthcare system gaps The public healthcare system in Delhi, and much of India, is severely underfunded. Hospitals often lack essential medical supplies and have insufficient staff to handle patient inflows. For people with disabilities, the challenges are even more pronounced. There are limited provisions for accessible healthcare facilities, and medical staff often lack training in disability-inclusive practices. For instance, during our hospital visits, we encountered long waiting times and inadequate attention to my mother's specific health needs. The lack of air conditioning in many public hospitals exacerbates heat stress for patients and staff alike. Moreover, the absence of accessible communication tools, such as sign language interpreters or text-to-speech devices, creates additional barriers for people with disabilities. Concrete steps for addressing healthcare gaps Investment in infrastructure: Increase funding for public healthcare to improve infrastructure, ensuring hospitals are equipped to handle extreme weather conditions. This includes air conditioning, adequate water supply, and accessible facilities. Training for healthcare professionals: Implement comprehensive training programs for healthcare workers on disability-inclusive practices and climate resilience. Accessible communication: Develop and deploy accessible communication tools in hospitals, such as sign language interpreters and text-to-speech devices, to aid patients with disabilities. Community outreach: Establish community health programs to educate residents about coping mechanisms during extreme weather events and to provide first-response medical aid. Potential measures for climate action Urban planning: Develop urban areas with better heat mitigation strategies, such as green spaces, reflective roofing, and improved water management systems. Early warning systems: Enhance early warning systems for heatwaves and floods to give vulnerable communities ample time to prepare and evacuate if necessary. Sustainable practices: Promote sustainable agricultural and industrial practices to reduce the urban heat island effect and ensure a stable water supply. Policy advocacy: Advocate for policies that prioritise climate resilience in healthcare planning and funding. More than just numbers Statistics can be cold and detached, but stories like mine are filled with raw emotion. The vulnerability, the desperation, the feeling of being caught in an unending cycle of despair — they bring a certain urgency that numbers alone cannot. So here it is, a candid snapshot of what it’s like to live at the devastating intersection of disability and climate-induced healthcare challenges. It’s a cry from the depths of my soul and from the hearts of countless others, who, like my mother and me, are battling more than just social and economic disparities. As we desperately seek solutions for climate change, let’s remember that the first step towards true climate justice is acknowledging and acting upon the exacerbated healthcare challenges faced by the disabled and vulnerable. Let’s strive to build healthcare ecosystems where no one is left to suffer, simply because of who they are or where they come from. The battles we fight today go beyond us; they’re a plea to humanity to wake up, take notice, and act — before it’s too late. Puneet Singh is a disability inclusion advocate and an accessibility professional. He is a person with dyslexia, dyspraxia and stammering. He is the co-founder of Billion Strong, curator of Green Disability and a Bevisioneers fellow. Connect with him on LinkedIn . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Why India’s 2026 Census could be a turning point for disability rights
After 14 years, India’s Census is finally catching up with its disabled population < Back Disability, Health, News Why India’s 2026 Census could be a turning point for disability rights After 14 years, India’s Census is finally catching up with its disabled population MMS Staff 9 Jun 2025 4-min read In April 2026, India will conduct its long-overdue national Census — 14 years after the last one. And for the first time ever, the Census will recognise all 21 categories of disabilities listed under the Rights of Persons with Disabilities (RPwD) Act, 2016. A history of invisibility When the last Census was held in 2011, the government only acknowledged 8 types of disabilities. As a result, millions of disabled people across India were effectively excluded from the official record. And when you're not counted, you’re not planned for. India has consistently maintained that only 2.2% of its population is disabled. But global estimates by the WHO and UN agencies suggest that closer to 16% of the world’s population lives with a disability. The gap is massive. And it’s not just statistical — it's political, social, and deeply personal. Why is our official number so low? The reasons are many: – A limited definition of disability – Social stigma and fear of disclosure – Lack of awareness around invisible and intellectual disabilities – The sheer inaccessibility of self-reporting tools, especially in rural areas But the biggest reason? We haven’t designed systems that actually want to know the truth. Why data matters Over the last four years, we – Aditi & Aalap – have travelled across the country attending disability conclaves, public policy events, the Purple Fest in Goa, and countless inclusion panels. At nearly every event, one word echoes louder than the rest: data. Advocates, government officials, and corporate partners all agree — without accurate data, there can be no meaningful development. When a community isn’t counted, it becomes easier to exclude them from policies, budgets, infrastructure, and everything else that defines full citizenship. The private sector knows this well. Corporations spend billions collecting data to determine what to make, how much to make, where to sell it, and to whom. When that kind of basic insight is missing for millions of disabled people in India, how can anything — access, employment schemes, therapy programs, public toilets — ever be built at scale? Right now, the entire ecosystem runs on donations and goodwill. While that generosity deserves recognition, it’s simply not enough to sustain livelihoods for a population this size. What we need is structured, state-supported, and scalable change — and that begins with knowing who we’re building for. What’s changing in 2026 Here’s what’s new and significant about the 2026 Census: All 21 disabilities listed under the RPwD Act will be officially recognised Indian Sign Language (ISL) will be used as an official mode of communication during the Census Census Question No. 9 has been updated to be more inclusive of varied disabilities Government and NGO-led awareness drives will focus on increasing self-reporting and community-level participation It still won’t be perfect. Many disabilities like Bipolar disorder, ADHD, endometriosis, Fibromyalgia, Long COVID, Chronic Fatigue Syndrome (ME/ CFS), Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), Lupus/ Rheumatoid Arthritis (RA), among others remain outside the RPwD Act. And invisible disabilities continue to be misunderstood. But it’s a start — a start that means today’s children with disabilities won’t have to grow up hearing the dehumanising ‘R-word’. Until 2016, India’s official language for classifying intellectual disabilities included the term “mental retardation.” This language wasn’t just outdated — it was deeply hurtful, rooted in colonial and medicalised frameworks that stripped people of dignity and personhood. The RPwD Act of 2016 finally replaced this with more respectful and rights-based terminology: “intellectual disability” and “specific learning disabilities.” This change wasn’t just symbolic. It set a new tone for how institutions — schools, hospitals, census departments — describe and relate to disabled people. What this means for the next generation is powerful: children and families will no longer have to see that slur stamped on their identity papers, school records, or government forms. They won’t have to carry the burden of a word that for decades has been used to insult, isolate, and diminish. More than numbers At the end of the day, this is about people. It’s about the right to be seen and heard in the story of a nation. Because how do you plan for a country when you don’t even know who lives in it? The 2026 Census is our chance to change that. It’s an opportunity to give India’s disabled population something they’ve long been denied — not just visibility, but value. Once we have the numbers, the picture will become harder to ignore. Budgets can be argued for. Laws can be passed. Cities can be designed. Lives can be improved. Data is not the end goal. But it’s where the work begins. And it’s high time India got to work. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Disabled job seekers disadvantaged by AI bias in hiring
Recent study reveals how AI ranks resumes with disability-related credentials lower < Back Work, Disability Disabled job seekers disadvantaged by AI bias in hiring Recent study reveals how AI ranks resumes with disability-related credentials lower MMS Staff 23 Jun 2024 5-min read The use of artificial intelligence (AI) tools such as ChatGPT in resume screening is becoming increasingly common among recruiters. And a recent study by researchers at the University of Washington has uncovered a significant issue: AI tools can be biassed against resumes that imply a disability. This finding has profound implications for disability inclusion and rights, as it highlights how technological advancements can inadvertently reinforce existing prejudices. The study and its findings This research, presented at the 2024 ACM FAccT (Conference on Fairness, Accountability, and Transparency) investigated how ChatGPT ranked resumes with disability-related credentials. Led by Kate Glazko, a doctoral student at the UW's Paul G. Allen School of Computer Science & Engineering, the study found that resumes with disability-related accolades — such as the "Tom Wilson Disability Leadership Award" — were consistently ranked lower than identical resumes without these credentials. Worse - when the AI was asked to explain its rankings, it revealed biassed perceptions of disabled individuals. For example, a resume with an autism leadership award was said to have "less emphasis on leadership roles," pushing the stereotype that autistic individuals are not capable leaders. Attempting to mitigate bias The researchers attempted to mitigate this bias by customising the AI with instructions to avoid ableism. While this approach reduced bias for five of the six disabilities tested (deafness, blindness, cerebral palsy, autism, and the general term "disability"), only three disabilities saw an improvement in rankings compared to resumes without any mention of disability. "Ranking resumes with AI is starting to proliferate, yet there's not much research behind whether it's safe and effective," said Glazko, the study's lead author. "For a disabled job seeker, there's always this question when you submit a resume of whether you should include disability credentials. I think disabled people consider that even when humans are the reviewers." Fair point. "In a fair world, the enhanced resume should be ranked first every time," said senior author Jennifer Mankoff, a UW professor in the Allen School. "I can't think of a job where somebody who's been recognized for their leadership skills, for example, shouldn't be ranked ahead of someone with the same background who hasn't." When researchers asked GPT-4 to explain the rankings, its responses exhibited explicit and implicit ableism. For instance, it noted that a candidate with depression had "additional focus on DEI and personal challenges," which "detract from the core technical and research-oriented aspects of the role." "Some of GPT's descriptions would colour a person's entire resume based on their disability and claimed that involvement with DEI or disability is potentially taking away from other parts of the resume," Glazko said. "For instance, it hallucinated the concept of 'challenges' into the depression resume comparison, even though 'challenges' weren't mentioned at all. So you could see some stereotypes emerge." Implications for disability inclusion and rights These findings are troubling for several reasons. First, they reveal that AI tools can reinforce biases, undermining efforts to promote disability inclusion and rights. If AI tools are used to screen resumes, disabled candidates may be unfairly disadvantaged, even if they possess the necessary qualifications and leadership skills. Second, the study underscores the broader issue of how technological advancements can replicate and amplify real-world biases. AI systems learn from existing data, which often contain historical biases and ableist notions. Without careful oversight and correction, these systems can push, and even worsen existing, discriminatory practices. Challenges disabled people face in finding meaningful employment Disabled individuals face numerous barriers when seeking employment, including: Biassed hiring practices, discrimination, and being faced with stereotypes about disabilities. Many workplaces are not fully accessible, creating physical and technological barriers for disabled employees. There are often fewer job opportunities made available for disabled individuals, particularly in competitive fields. Employers may be unwilling or unable to provide necessary accommodations, such as flexible working hours or assistive technologies. Negative attitudes and misconceptions about disabilities can affect workplace interactions and professional development opportunities. Tips for employers to promote fair and inclusive hiring To ensure fairness and inclusivity in hiring and promoting, employers can take the following steps: Provide bias training for hiring managers and staff to recognize and counteract biases. Write inclusive job descriptions that emphasise essential skills and competencies rather than unnecessary physical requirements. Ensure that job application processes are accessible to all candidates, including those with disabilities. Offer reasonable accommodations during the hiring process and in the workplace. Use diverse hiring panels to reduce individual biases and ensure a variety of perspectives in the hiring process. Clearly define and communicate the criteria for hiring and promotion, focusing on skills, experience, and potential rather than assumptions about disability. Provide ongoing support and development opportunities for disabled employees to thrive in their roles. Implement feedback mechanisms to allow disabled employees to voice concerns and suggest improvements. The nullification of disability inclusion and rights The use of biassed AI in resume screening effectively nullifies inclusion efforts towards communities that have historically been marginalised and their identities stigmatised. Disabled individuals already face numerous barriers in the job market, and AI tools that perpetuate age-old bias just adds another layer of discrimination. Something we don’t need at all. This issue is particularly concerning given the increasing reliance on AI in hiring processes. A fair scenario would include resumes that highlight leadership skills and achievements — whether related to disability or not — be ranked based on the candidate's qualifications and potential. The fact that AI tools can diminish the value of disability-related credentials is a reminder that technological solutions must be developed and implemented with a strong emphasis on fairness and inclusivity. Ensuring fairness in AI To address these issues, it is crucial for developers, researchers, and companies to prioritise fairness in AI development. This includes: Conducting regular audits of AI systems to identify and correct biases. Ensuring that training data includes diverse representations of disabled individuals and their achievements. Providing clear guidelines to AI systems on avoiding ableism and other forms of discrimination. Incorporating human oversight in the resume screening process to catch and address biases that AI may miss. By taking these steps, we can work towards a future where AI tools contribute to, rather than hinder, disability inclusion and rights. Ensuring that technological advancements promote fairness and equality is essential for building a more inclusive society. More information: Kate Glazko et al, Identifying and Improving Disability Bias in GPT-Based Resume Screening, The 2024 ACM Conference on Fairness, Accountability, and Transparency (2024). DOI: 10.1145/3630106.3658933 This article was originally published on Techxplore.com Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Best responses to - “But you don’t look autistic”
The global autistic community shares how they respond to dismissive and ableist comments < Back Community, Neurodiversity Best responses to - “But you don’t look autistic” The global autistic community shares how they respond to dismissive and ableist comments MMS Staff 8 Jun 2024 5-min read Have you ever disclosed your autism to someone, only to have them drill holes in your head with their eyes and give you the classic, "But you don't look autistic" refrain? Though seemingly harmless, this line is more than just a misunderstanding. It shows a deep lack of awareness about the vast spectrum of autistic experiences. For many autistic people, comments like these are hurtful. When our autism goes unrecognized, it leads to a lack of crucial support. We might struggle in social situations or sensory overload without receiving the help that can make a huge difference. Not to mention this also takes its toll on our mental health. Imagine constantly being told a core part of you isn't valid, or being asked to prove your neurodivergence. Makes you feel isolated, confused and even depressed. We've said before, we'll say it again - Autism is a neurological difference, not a physical appearance. Autistic people exist in all shapes, sizes, and personalities. So, the next time someone throws that outdated comment your way, be prepared to respond with confidence and a touch of humor! How? Read on - Our amazing community shared some fantastic responses to "But you don't look autistic". We've written their comments down alongside their Instagram profiles. Oh! I have detachable wings and left them at home today - @ alt.life .immycool Sorry, I'm sharing my autism with a friend right now, so it might be diluted - @charlielittlechild It's so clear to see if you know Autism - @jackie_steed Decides who?! - @karolincze That’s an inside thought Karen … - @aglaematl You don't look like a burden - @le_randomiseur How about now? hand flaps "maybe you can only see it under a black light? - @cantstanja Your observation skills are rather poor, dear. Might I suggest some glasses to help you see my autism? - @yagamilight3000 Do you want me to say “thanks”…? - @karolincze We can't all be Rain Man or the Good Doctor, Karen. - @olivia.shorthair And you don’t look ignorant but here we are - @emhope98 Alright so have you ever heard about specific interests? Mine is [followed by a five minute monologue about very precise information]. Do I look more autistic to you now? If not, you might question your own spectrum. - @lelune_akemi Yes I do! Whether you say I do or not I still do and it will never change! So go away! - @magically_made_photography Shall I flap my wings a bit for you? - @arcanadi You might want to learn what "invisible" meant, would you like a dictionary? - @lelune_akemi Here, try on my glasses. - @jadenikita1998 This is what I say, “Stop, Stop right there. I do not need you to tell me this. I love being autistic, it's so freeing. This diagnosis is a good thing, not a bad thing. I love you, but this isn't a good comment to say to me. Please be happy for me.” - @lightningdragon1 Oh darling, and you don't look like someone who understands the full spectrum of fabulousness! But here we are, defying expectations and slaying stereotypes, one sequin at a time! - @officialqueemo I put whatever object is closest and put it on my head, and then say "how about now?" 😅 - @ audhdantics Well of course not. You can’t see Autism. whispers it’s inside my brain! - @trainerhalsitemshop Is this due to my confidence or hotness levels being at least 137x higher than yours? - @eldritchvampireofthefaewild YOU CAN SEE ME?! - @ andie.ink Really? I must have left my 'Autistic' uniform at home - @booleanhunter AHA… my disguise is working” *walk away laughing evilly - @the_other_abby2007 Oh because I don’t make blunt statements? - @halicope You should see me on a full moon—all of my ‘tism bursts out in full force then. 🌙 - @joannareese7 Well you don’t look allistic but here we are - @neuronandrosepsych Well, I am and I am proud of it! - @revajain__ takes a bow - @infamousswfan That's not really the compliment you think it is - @anjalir283 No? Oh you do!" (Let them wonder for a bit) Then say "See, that's just as weird as saying I don't". - @babette_2000 That's just all the plastic surgery I had 🤣 - @meranaphi Well you don't look normal, but here we are - @ausomecharlie I don't have enough time or crayons to explain the impact of your comment - @monera_ooo I know you're trying to be kind, but it's not where you can see it... it's in my brain! - @themindofmariavivienne I have horns which I file everyday before I leave - @theboywhogrewupasanaspie 1. What am I supposed to look like? 2. In-depth explanation of what masking is 3. Horror story about ABA, if applicable 4. Well you don’t look like a jerk, but here we are. 5. Because I’m not a six-year-old boy? Shocking. /s 6. Yes I do, you just don’t know what you’re looking at. 7. I literally only told you because you caught me doing X autistic thing. 8. That’s not a compliment. 9. Are you sure? start stimming and staring off into space 10. Well you don’t look neurotypical! See how weird that sounds? 11. Sorry, I left my Rain Man costume at home. - @aureliaundertheradar I don't get it. Please explain." (Same as the response to racist/sexist/etc 'jokes') - @creatingwhilelearning But do I SMELL autistic?” Always confuses the hell out of them. Some people actually then say “Ah I see what you mean!” as in, it’s as ridiculous as saying autistic people all smell a certain way. Others don’t get it. So I let them continue to be baffled 💅🏽 - @sniffyjenkins you don't look stupid… - @hollylaike I show true colours only during full moon - @preeti.sharma_27 Hang on, let me just do some autism for you - @comfaclothing I'm undercover. - @kotoku_denjiro I put on the invisible cloak! - @manishachandini You don’t look rude either, but I guess we can’t judge a book by its cover - @thealyssaproject Shit, I must be overdue for my autism-causing vaccine booster - @wdc_nathan Laugh very loudly and leave - @purramids I was wondering if the new mask was working. Turns out it works both ways. You can’t tell I’m autistic and I can’t tell how much of your brain you have left. - @lauraliteatime Remember, the best response depends on the situation and your comfort level. You are autistic, and that's perfectly okay! Some final thoughts: Don't feel obligated to justify your diagnosis (whether you have one or not cuz self-diagnosis is obv valid) Educate politely, but don't feel like you have to be a teacher Embrace your individuality. Being autistic is a strength, not a weakness Let's break down the stereotypes and celebrate the beautiful diversity of the autistic community. With a little understanding and humour, we can create a more inclusive world As always, we'd love to hear from you. Share your favorite responses to "But you don't look autistic" in the comments below. Check out the original post here . Remember, if anyone ever tells you they can't see your autism, you can always tell them you left your invisibility cloak at home. 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- Much Much Spectrum | Coldplay’s new single ft sign language wins hearts globally
Chris Martin and co’s latest “feelslikeimfallinginlove” celebrates love, representation, and environmental responsibility < Back News, Disability, Climate Coldplay’s new single ft sign language wins hearts globally Chris Martin and co’s latest “feelslikeimfallinginlove” celebrates love, representation, and environmental responsibility MMS Staff 4 Jul 2024 4-min read Seems like Coldplay has captured the hearts of millions yet again with their latest single, ‘Feels Like I’m Falling in Love.’ An ode to vulnerability and connection, the song - a Max Martin production - is the first release from Coldplay’s upcoming album Moon Music, set to drop on October 4. A historic setting for a modern message The music video for “feelslikeimfallinginlove” was shot at the ancient Odeon of Herodes Atticus in Athens, Greece. Directed by Ben Mor, who previously collaborated with the band on ‘Hymn For The Weekend’ featuring Beyoncé, the video features a blend of history and modernity. Fans were invited via the band’s social media to witness the shoot, making the experience inclusive and memorable. A step toward sustainability Upon its release, Moon Music will be available in various formats that adhere to new sustainability standards. Each vinyl copy will be made from nine recycled plastic bottles, and the CD version crafted from 90 percent recycled polycarbonate. These efforts are expected to reduce CO2 emissions in production by at least 78 percent and avoid the use of over five metric tonnes of virgin plastic. Representation matters The video for “feelslikeimfallinginlove” stars Natasha Ofili, who is well-known for her role as Principal Karen Vaughn in Ryan Murphy’s Netflix series The Politician. Ofili, who is Deaf, took charge of the video’s story and creative direction, incorporating her own American Sign Language (ASL) interpretation of the song throughout the video. Her performance is further enriched by the participation of Deaf members from the Venezuelan Sign Language section of El Sistema Venezuela’s Coro de Manos Blancas (White Hands Choir), supported by the Dudamel Foundation. One fan commented on their YouTube channel: “One reason why I love Coldplay so much: They make music for everybody.” Another fan wrote: “I’m a sign language teacher and my uncle is profoundly deaf from birth. I’ve grown up signing and have friends that are deaf. This video is so so beautiful and encapsulates the strength and emotion of sign language. Thank you Chris, Johnny, Will and Guy for not only being the best band ever with the most beautiful music, but for also genuinely caring and loving people. I know you guys probably won’t see this but I need you to know how much you’ve impacted my life and supported me through some dark times. You’re not appreciated enough for your talents and big hearts. Love you loads.” A global impact Coldplay frontman Chris Martin recently wowed fans in Singapore by incorporating sign language into his performance. This act of inclusion resonated deeply with the band’s Gen Z fans and sparked a wave of admiration for him across social media platforms. Coldplay’s efforts towards accessibility underscore the importance of representation in entertainment. By engaging with diverse communities and addressing social issues such as disability, the band sets a powerful example for youth worldwide. Add to that their commitment to sustainability, which inspires fans to embrace these values in their own lives. Something more role models need to consider doing. Looking ahead As Coldplay continue their European tour and prepare to headline Glastonbury for a record fifth time, their influence on music and social advocacy seems to be on a steady rise. With Moon Music, the industry is ushering in a new era of conscious creativity, where entertainment meets social responsibility. Watch the video below - Lyrics I know that this could hurt me bad I know that this could feel like that But I just can’t stop Let my defences drop I know that I was born to kill Any angel on my windowsill But it’s so dark inside I throw the windows wide I know La-la-la-la-la-la-la-la-la I know La-la-la-la-la-la-la-la Still I don’t let go And fields of flowers grow Oh It feels like I’m falling in love Maybe for the first time Baby it’s my mind you blow It feels like I’m falling in love You’re throwing me a lifeline This is for a lifetime, I know I know that in this kind of scene Of two people there’s a spark between One gets torn apart, one gets a broken heart I know La-la-la-la-la-la-la-la-la I know La-la-la-la-la-la-la-la Still I don’t let go And fields of flowers grow Oh It feels like I’m falling in love Maybe for the first time Baby it’s my mind you blow Feels like I’m falling in love You’re throwing me a lifeline This is for a lifetime, I know Feels like I’m falling in love You’re throwing me a lifeline Oh now for the first time I know I’m not alone Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Disabled NEET candidates face challenges with college admissions
Inconsistencies in India's assessment system prevents disabled representation in STEM fields < Back News, Disability, Education Disabled NEET candidates face challenges with college admissions Inconsistencies in India's assessment system prevents disabled representation in STEM fields MMS Staff 13 Jun 2024 3-min read In India, the road to becoming a medical professional is - to say the least - rigorous, demanding superlative academic excellence and resilience. But for candidates with disabilities, the challenges often go beyond academic difficulties; they deal with systemic inequities obstructing their rightful access to education. Today, Times of India carried a report on Lakshay Sharma, a visually impaired NEET-UG (National Eligibility cumulative Entrance Test) 2023 candidate, scoring an impressive 548 out of 720, which should have been a straightforward ticket to medical school under the disability reservation. But he was rejected during the counselling process at a hospital where he was incorrectly deemed ineligible for disability reservation due to perceived 0% vision. Simply speaking, they incorrectly assessed him as having no vision at all when in fact Sharma had valid disability certificates from JP Hospital, Bhopal, and AIIMS, New Delhi stating the contrary. It took an intervention from the chief commissioner for persons with disabilities (CCPwD) to straighten this out, ordering a reassessment at another eye centre, which correctly identified him as 40% disabled, confirming his eligibility for the reserved seat. Recurring challenges and advocacy for standardisation This is hardly a one-off incident. A lot of NEET candidates with disabilities face similar bureaucratic and medical oversights every year. Laxmi Chaudhary and Usman, two other disabled candidates, had similar experiences at hospitals only to be deemed eligible after reassessments. This highlights a pattern of inconsistency in the assessment process mandated by the National Medical Commission (NMC). Disability rights activists, along with disabled candidates, are now advocating for a standardisation of the disability assessment process, putting extra emphasis on the need to implement stringent guidelines that ensure fairness and accuracy in disability evaluations. Understanding the Unique Disability ID (UDID) certification process The Unique Disability ID (UDID) system was introduced in India in 2016 to streamline the identification and verification of persons with disabilities. The UDID serves as an identity document that contains relevant details about a person’s disability and/ or health condition, with the aim to eliminate the need for multiple documents and make it easier for card holders to avail benefits. To obtain a UDID, an individual must undergo a medical examination at a designated medical centre approved by the government. In the assessment, the medical board evaluates the type and extent of disability (usually determined in percentage), and a card is issued based on the findings from the test. This ID (called the UDID) has been put in place to allow for transparency and uniformity in the process of certification across the country. Proposals for reform Dr Satendra Singh, renowned disability rights activist and a person with disability, suggests the following reforms to safeguard the rights of disabled candidates: Video recording of assessments: To ensure transparency and accountability in assessments, all evaluations must be video recorded. Inclusion of doctors with disabilities: The presence of medical professionals who are themselves disabled on assessment panels can ensure more empathetic and accurate evaluations. #NothingAboutUsWithoutUs Penalties for non-compliance: Institutions deviating from standard protocols in the UDID certification process should face strict penalties. Historical challenges in STEM for disabled individuals Disabled people have long faced difficulties in pursuing careers in STEM (Science, Technology, Engineering, and Mathematics) fields. These challenges aren't just limited to physical accessibility; they include discriminatory attitudes as well as a lack of supportive resources that are essential for learning and working in these disciplines. The systemic barriers show up in various ways such as inadequate adaptive technology, insufficient training for faculty to address diverse needs, and a pervasive culture of low expectations from disabled students. To pave the way for true inclusivity, educational institutions, government bodies, and the multiple stakeholders in the medical space need to refine their approaches not just by limiting the extent of their involvement in these matters to merely compliance with legal requirements, but actively supporting and empowering all students. Disclaimer: the above image is AI generated and used for representational purposes only. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Dear mom, thank you for celebrating my Autism
An open letter by one of our readers to their mom < Back Parenting, Neurodiversity Dear mom, thank you for celebrating my Autism An open letter by one of our readers to their mom Shaily (they/them) 25 May 2024 2-min read Dear Mom, I want to take a moment to share how much your love and support have meant to me. Growing up autistic wasn't always easy, but you made sure I had the best possible environment to thrive. Your efforts to understand and support me were invaluable, and I want you to know just how much they've shaped my life. You knew that understanding autism was key to helping me, so you dedicated yourself to learning about it. You took the time to understand my unique traits and how autism manifested in me. Instead of trying to change me, you celebrated my individuality and embraced the fact that being autistic is a part of who I am. That acceptance meant everything to me. Communication was another area where you truly shined. You realized that I had different ways of expressing myself and you adapted. Whether it was using visual supports, social stories, or technology, you found ways to help me communicate comfortably. Your patience and willingness to meet me where I was made all the difference. You also understood how overwhelming sensory overload could be for me. You created sensory-friendly spaces at home with dim lighting, soft textures, and noise reduction. These spaces became my sanctuary where I could recharge and feel safe. Your thoughtful design of our home environment showed how much you cared about my comfort. Your advocacy was relentless. Whether it was at school, during extracurricular activities, or in public spaces, you made sure my needs were met. You fought for accommodations and ensured I had the support necessary to succeed. Your determination paved the way for my growth and development, and I can't thank you enough for that. Routines and structure were crucial for me, and you recognized that. You established predictable schedules and clear expectations, which provided stability and reduced my anxiety. Knowing what to expect each day helped me navigate life with greater ease. Social interactions can be tough for someone like me, but you facilitated opportunities that were tailored to my comfort level. You encouraged friendships with understanding peers and organized inclusive activities. Thanks to you, I was able to develop social skills and form meaningful connections. You also taught me the importance of self-care. You modeled healthy coping strategies and encouraged me to engage in activities that brought me joy. You made sure to take care of yourself too, which was crucial for maintaining a positive and supportive environment at home. Above all, your unconditional love and support have been the foundation of my growth. Your belief in my abilities, even during the toughest times, gave me the courage to embrace my autistic identity with confidence. Your support has been my constant source of strength. Thank you, Mom, for everything you've done and continue to do. I hope other autism parents learn from you. I wish there was better support for you too. With all my love, Shaily Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
- Much Much Spectrum | Govt approves trans officer’s chosen name & gender for records
Landmark decision grants official recognition to chosen identity, a milestone for transgender rights < Back Gender, LGBTQIA+, News Govt approves trans officer’s chosen name & gender for records Landmark decision grants official recognition to chosen identity, a milestone for transgender rights MMS Staff 11 Jul 2024 2-min read In a groundbreaking move, the Government of India has approved a transgender civil service officer's request to remove his deadname from official records and replace it with his chosen name. On Tuesday, July 9, the Ministry of Finance issued an order approving the name change of Indian Revenue Service (IRS) officer M Anukathir Surya. Deadname refers to the name a person used before their transition while chosen name refers to the person’s name after their transition. Anukathir Surya, an officer of the 2013 batch of the Customs and Indirect Taxes (C&IT) department, currently serves as Joint Commissioner in the office of the Chief Commissioner (AR) of the Customs Excise & Service Tax Appellate Tribunal (CESTAT) in Hyderabad. This development marks a milestone in his career and a progressive step toward inclusivity within government institutions. Surya's journey in civil service began as an Assistant Commissioner in the Central Board of C&IT in Chennai. He was promoted to Deputy Commissioner in 2018, and in 2023, he joined CESTAT in Hyderabad. Surya hails from Tamil Nadu and holds a Bachelor's degree in Electronics and Communication from the Madras Institute of Technology. In 2023 he completed a Postgraduate Diploma in Cyber Law and Cyber Forensics from the National Law Institute University, Bhopal. This development comes nearly a decade after the Supreme Court's landmark ruling in the NALSA case, which recognised the third gender. Emphasising that gender identity is a personal choice and that transgender individuals must not be denied basic human rights, the Court’s ruling stated: ‘The Constitution has fulfilled its duty of providing rights to transgenders. Now it's time for us to recognize this and to extend and interpret the Constitution in such a manner as to ensure a dignified life for transgender people.’ The judgement noted: If a person has changed his/ her sex in tune with his/ her gender characteristics and perception, which has become possible because of the advancement in medical science, and when that is permitted in medical ethics with no legal embargo, we do not find any impediment, legal or otherwise, in giving due recognition to the gender identity based on the reassigned sex after undergoing surgery. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS
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