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Centre partners with institute for early integration of accessibility into education < Back Disability, News, Education IIT KGP to offer course on disability accessible design Centre partners with institute for early integration of accessibility into education MMS Staff 15 Jul 2024 2-min read Civil engineering students at Indian Institute of Technology Kharagpur (IIT-KGP) will soon have the opportunity to study accessible building design, thanks to a new partnership between the Centre’s disability affairs department and the institute. This course - currently an elective - will be available to students in the sixth and seventh semesters starting from the 2024-25 academic session. Two professors from the institute’s Department of Architecture and Regional Planning, Subrata Chattopadhyay and Haimenti Banerjee, are reportedly working on developing the Accessible Built Environment course, along with the Department of Empowerment of Persons with Disabilities (DEPwD). The course will cover such topics as smart and inclusive habitats, accessibility and infrastructure-driven liveability, and inclusive urban planning. The Centre subsequently plans to introduce the course in 27 other institutes, including other IITs. Presently, the course will carry 30 credits, and it aims to integrate accessibility into education early so that future engineers can incorporate it into their building designs. Accessible infrastructure - the need of the hour - still remains a distant dream in India despite the Rights for Persons with Disabilities Act of 2016 (RPwD Act) mandating all existing public buildings become accessible within five years of the passing of the act. Over the next three years, the course will be an elective at IIT-Kharagpur and will likely become a mandatory subject thereafter. Rajesh Aggarwal, Disability Affairs Secretary, emphasised the importance of this initiative, stating, “The objective is to integrate accessibility into education early so that students incorporate it into building design.” Previously, IIT-Kharagpur collaborated with the National Institute of Urban Affairs (NIUA) on the Building Accessible Safe and Inclusive Indian Cities (BASIIC) initiative. In addition to IIT-Kharagpur, the disability affairs department is in discussions with the Council of Architecture to include this subject in their curriculum as well. A senior official from IIT-Kharagpur highlighted the need for this course, saying, “Constructing accessible buildings needs experts and it is important that our future infrastructure builders have professional training about the same.” This initiative is part of the government’s Accessible India 2.0 campaign, which aims to achieve universal accessibility for persons with disabilities (PwDs). The Accessible India campaign focuses on making buildings and transport systems across the country accessible for people with disabilities. Under this campaign, access audits were conducted on 1,671 buildings across 48 cities, and retrofitting work has been sanctioned for 1,314 buildings, with 623 buildings already retrofitted in 20 states. The norms for retrofitting, as specified in section 44 of the Persons with Disabilities Act, include creating ramps in public buildings, modifying toilets for wheelchair users, and installing Braille symbols in elevators. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

This Pride month, our community reflects on embracing both neurodivergence and queerness < Back Community, Neurodiversity, LGBTQIA+ The significance of Pride for neurodivergent LGBTQIA people This Pride month, our community reflects on embracing both neurodivergence and queerness MMS Staff 21 Jun 2024 3-min read Every June, Pride Month celebrates the diversity and strength of the LGBTQIA+ community. But within this collective coming together, it's important to remember that Pride could mean different things for different people. The essence of Pride is the diverse voices and lived experiences it represents and stands by, particularly for those at the intersections of multiple identities — such as neurodivergence, disability and LGBTQIA+. To fully honour the spirit of Pride, we need to embrace an intersectional approach that acknowledges and addresses the varied and complex realities of the entire community. And so we asked our community to share what Pride means to them, as neurodivergent and LGBTQIA+ folx. Here’s what #MuchMuchSays : Embracing my neurodivergence and queerness. Unmasking with people who feel like home! 💖 Saving my spoons by not engaging with people who are judgy, ableist or dull my sparkle ✨ - @aditigangrade_ Learning how both these parts of me overlap and create an unique experience for me. Finding a community with more neuro-queer folx. Trying to understand ways to better support myself in allistic spaces. - @ usri.be _ing In theory, I 💯 support everything Pride stands for. I’m queer, nonbinary and autistic. Neuroqueer is also how I describe myself. I advocate for neurodivergent LGBTQ+ people in my job, and I live the values of Pride year-round. But I live in San Antonio, Texas, where Pride is celebrated outdoors in the 100 degree F summer heat. That heat is dangerous for me because of my fibromyalgia and because of the meds I take. Even when the parade starts at 9 pm, it usually hasn’t cooled off that much. - @stardust_silkys Embracing yourself and everyone for who they are. Love my autism and my LGBTQ+ identity. Love has no limits. - @_irigeorge_iridizontas Celebrating love with understanding inclusive people (I'm in a straight marriage, but I love love and it should always be celebrated!). Showing my respect to those who have suffered from discrimination just for wanting to be loved and understood x - @debworth88 There are lots of ways of existing as a happy healthy human that isn’t the standard path society tells us are the norm - @peachnpumpkin Being actually included by queer groups 🥰🥰🥰 - @yagamilight3000 As a straight and cisgendered autistic man, I feel connected to other people who I think are also neurodivergent. I believe that the areas of the brain where sexual orientation and gender identity exist are their own distinct neurotypes. When someone isn’t straight or cisgender, those neurotype ares are the result of neurodivergent brain structures. While I don’t have the experiential empathy of being someone of the LGBTQIA+, I share a more generalized experience of not being what everyone wanted me to be and being misunderstood throughout my life; it’s from this that I can draw up empathy for LGBTQIA+ people. The must be treated with dignity, respect, compassion, understanding and visibility. - @bradcotter002 A proof that it is NOT illegal or “sinful” to love sby of your own gender or both!! 🥳🍾🎊🎉🏳️🌈💜💙 #itsokaytobegay 😎🌈 - @mariksen Rainbows and parties 🌈 🌈🌈😂 I don’t need a special month to live the “pride lifestyle”. - @_katbls_ Almost all of my neurospicy friends are queer.. theyre inextricably linked. There is pride in accepting our neurodivergence and our sexuality and gender identities. Its just another thing to celebrate and be proud of. To stand up for and speak out about. Let our voices be heard - @hanami_dango_ Pride is more than a celebration; it's a pivotal moment of visibility and acceptance for those who often navigate multiple layers of marginalisation. By listening to the voices of the neurodivergent LGBTQIA+ community and implementing inclusive practices, we can ensure that Pride is an empowering experience for everyone involved. PS: Our Community series stories are unedited for grammar or spelling, and posted as received on our socials. The original comments can be found on our Instagram . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Nick Herd from Canada to make history at landmark disability conference COSP17 in New York < Back Disability, News Down syndrome actor-activist to be first disabled guest editor at UN News Nick Herd from Canada to make history at landmark disability conference COSP17 in New York MMS Staff 10 Jun 2024 2-min read Global disability advocate Nick Herd is set to make history as the first-ever guest editor for UN News. This development comes as the world convenes for the 17th session of the Conference of States Parties (COSP17) to the Convention on the Rights of Persons with Disabilities (CRPD) in New York over June 11th, 12th and 13th. Herd, a passionate advocate for disability rights, said he is excited to use his platform to amplify the voices of people with disabilities around the world, in this story published on the UN News portal yesterday. This year's COSP17 focuses on critical themes including jobs, technology, and humanitarian responses in times of crisis, all viewed through the lens of disability inclusion. "I'm most looking forward to connecting with others and meeting people who care about the same things I do," Herd said, highlighting the importance of accessibility and inclusion, throwing back to how discussions at last year's COSP emphasised making things easier for people with disabilities. Herd, a member of the L'Arche community in Toronto - which “(works) with others to build a world where everyone belongs” - says: "Technology plays a crucial role in enhancing my life… from social media to communication apps, it lets me connect, communicate and comprehend information more easily." Herd also shared personal stories about how his work as a creative director, actor, and artist has been enriched by technology. Discussions at COSP17 will tackle significant challenges faced by people with disabilities, exploring issues such as how to overcome barriers to employment, ensure access to essential services during crises, and leverage technology for inclusion. Herd, whose animated film "Freebird" was long-listed for the 94th Academy Award, talks about how people with disabilities can excel in the workplace, stressing the importance of inclusion, collaboration, and self-expression in the job market. He highlights the vulnerability of people with disabilities in conflict zones, drawing from his experience with L'Arche communities in areas like Haiti and Ukraine. "Living a dignified life means having all the rights that make us human," Herd said. Encouraging everyone to join the conversation at COSP17, Herd added: “Let's work together to make sure everyone has the rights and opportunities we deserve. Tune in to the UN News live blog on Tuesday, June 11th, at 8 am to follow Herd's coverage. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The rise of Vitiligo representation in media is smashing conventional beauty standards < Back Health, Gender, News Celebrating World Vitiligo Day: Stories of Indian creators with Vitiligo The rise of Vitiligo representation in media is smashing conventional beauty standards MMS Staff 25 Jun 2024 4-min read Millions of people worldwide live with Vitiligo, a condition characterised by the loss of skin pigment. This condition causes the skin to turn white or appear lighter than one's natural skin tone due to the destruction of melanocytes, the cells that produce melanin. On World Vitiligo Day, we celebrate the stories of creators with vitiligo who use their platforms to spread awareness and promote self-love, showing the world that beauty comes in all forms. But before that, a quick fact. According to this study done by the National Institutes of Health (NIH), the prevalence of vitiligo in India ranges from 0.25% to 4% among dermatology outpatients, with higher rates reported in certain regions like Gujarat and Rajasthan, reaching up to 8.8%. Despite this, there remains a significant lack of awareness and representation, leading to social stigma and psychological challenges for those with the condition. Many people with vitiligo face ostracization, bullying, and severe social and psychological impacts, particularly young women who are pressured to meet conventional beauty standards. However, representation and inclusivity in the media and fashion industries are slowly beginning to change perceptions. In recent years, the media has begun to embrace a more inclusive and diverse representation of beauty, prominently featuring individuals with vitiligo. This shift marks a significant departure from the past, where vitiligo was often stigmatised and misunderstood. Influencers like Winnie Harlow have played a crucial role in this transformation, using their platforms to challenge conventional beauty standards and inspire others. Harlow's rise to fame as a model with vitiligo has opened doors for many others, showcasing the unique beauty and resilience of those with this skin condition. Television shows, fashion campaigns, and social media platforms are now more frequently highlighting the stories and experiences of individuals with vitiligo. This increased visibility helps to normalise the condition and educate the public, paving the way for more acceptance and understanding. Campaigns by major brands, such as the inclusive beauty initiatives by Dove and CoverGirl , have also contributed to this positive trend by featuring models with vitiligo in their advertisements. But despite these advancements, there is still a long way to go. Continued efforts to amplify the voices of people with vitiligo in the media are essential for dismantling stereotypes and promoting a broader definition of beauty. By celebrating diversity and advocating for inclusivity, the media can play a powerful role in changing perceptions and supporting those with vitiligo to live their lives without fear of discrimination or prejudice. Here are the stories of six remarkable Indian creators who are redefining beauty standards and breaking down the stigma associated with vitiligo. Mamta Mohandas The last decade has been incredibly challenging for South Indian actress Mamta Mohandas , as she battled Hodgkin’s lymphoma, a type of cancer. True to her style, when she shared her journey with vitiligo, it was with a poetic and hopeful tone that embraced her condition. In a selfie shared with her two million followers, she wrote, “Dear sun, I embrace you now like I have never before. So spotted, I’m losing color… I rise even before you every morning, to see you glimmer your first ray through the haze. Give me all you’ve got for I will be indebted, here on out and forever by your grace.” Aastha Shah Aastha Shah is a Mumbai-based content creator who has captivated audiences with her empowering messages of self-acceptance. Diagnosed with vitiligo at 8, Aastha faced many challenges, including societal judgement and a difficult medical journey. “For years, I struggled with feeling beautiful because of my vitiligo. Today, I walked the red carpet at Cannes, not in spite of my vitiligo but because of it. I want to show everyone that beauty comes in all shades and patterns,” says Aastha. She boasts a following of one million on social media, where she shares her journey and motivates others. Aastha recently made history as the first Indian with vitiligo to walk the red carpet at the 77th Cannes Film Festival. Prarthana Jagan Prarthana Jagan , a model and social media influencer based in Bangalore, developed vitiligo at the age of 11. She faced severe bullying and social isolation due to her condition, which greatly affected her self-confidence. Prarthana wore makeup to conceal her vitiligo for many years until a life-changing surgery in 2016 helped her embrace her natural skin. “I stepped out bare-skinned into the sunlight and I just can’t express what I felt on that day. I felt sunlight on my bare skin after years. It was just a moment of self-reflection,” Prarthana recalls in a post on her Instagram. Prarthana now shares her story on Instagram and YouTube, inspiring others to embrace their unique appearances. She has modelled for Elle and Grazia and works with Blunt Model Agency, continuing to raise awareness about vitiligo. Jasroop Kaur Singh Jasroop Kaur Singh , a London-based British-Indian model and influencer, creatively expresses her journey with vitiligo through her artwork. Jasroop combines her passion for art with advocacy, creating pieces that highlight the beauty of vitiligo. Despite facing bullying and social isolation growing up, she found confidence in herself and has worked with Vogue, Burberry, and other high-end fashion brands. Kirpal Bhogal Kirpal Bhogal is a London-based content creator and advocate for vitiligo awareness. Known for his vibrant personality and stylish content, Kirpal uses his social media presence to educate others about vitiligo and promote inclusivity. His efforts have garnered a supportive community that celebrates individuality and encourages open conversations about skin conditions. Ranjani Ramakrishnan Based in Chennai, India, Ranjani Ramakrishnan is a motivational speaker and digital creator who has been very vocal about her journey with vitiligo. Diagnosed at age 11, Ranjani struggled with self-acceptance but came to embrace her unique appearance. She now works with brands promoting inclusivity and models for Another Life Collective . Shantanu Gosavi Shantanu Gosavi , an Ahmedabad-based model and influencer, uses his platform to challenge stereotypes about vitiligo. A graduate in Textile Design from NIFT Gandhinagar, Gujarat, Gosavi is trained in Kathak and works as a freelance textile designer, photographer and model. He began his modelling journey with local brands, and now collaborates with photographers and fashion brands. The stories of these creators serve as a reminder that beauty is diverse and multifaceted. On World Vitiligo Day, we celebrate their stories and dedication to spreading awareness and representation. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Honouring the legacy of Helen Keller on her birth anniversary < Back Disability Deafblind Awareness Week: Significance, history and advocacy Honouring the legacy of Helen Keller on her birth anniversary MMS Staff 24 Jun 2024 2-min read Deafblind Awareness Week (June 24 - June 30) is a week dedicated to raise awareness about individuals with multi-sensory impairments, also known as deafblindness. This week focuses on learning about the lived experiences of those who are deafblind, challenging misconceptions, celebrating achievements, and finding ways to support and advocate for the deafblind community. It also coincides with Helen Keller ’s birthday on June 27th, honouring her legacy as a pioneering disability advocate. Understanding deafblindness Deafblindness is a disability characterised by the combined loss of sight and hearing, which significantly impacts daily life. Being deafblind does not necessarily mean complete deafness and blindness. Most people who are deafblind have some degree of both sight and hearing. There are two main types of deafblindness: Congenital Deafblindness: When a person is born with both sight and hearing impairments. Acquired Deafblindness: When a person develops sight and hearing impairments later in life, often due to illness, injury, or age-related factors. People with deafblindness can lead fulfilling and successful lives with the right support and resources. Life with Deafblindness People with deafblindness use various methods to communicate and interact with their environment, such as tactile signing, braille, assistive technology, and support service providers. Celebrating Helen Keller Deafblind Awareness Week marks Helen Keller’s birth anniversary, June 27th. Helen Keller was an influential author, educator, and disability rights advocate. Born in 1880, Keller lost her sight and hearing at 19 months old due to an illness. With the help of her teacher Anne Sullivan, Keller learned to communicate using tactile sign language and braille. She was the first deafblind person to earn a Bachelor of Arts degree. Keller travelled worldwide, delivering lectures, working to improve the lives of individuals with disabilities. Advocating and supporting the Deafblind community Here are some ways you can advocate for and support individuals with deafblindness: Learn about deafblindness and share accurate information to help dispel myths and raise awareness. Advocate for accessible public spaces, transportation, and digital content to ensure inclusivity. Encourage educational institutions and workplaces to implement accommodations and inclusive practices, creating opportunities for individuals with deafblindness. Offer your time and resources to organisations that support the deafblind community. Push for the development and availability of assistive technology that enhances independence and communication for those who are deafblind. Listen to the experiences of the deafblind community and help amplify their voices in public discussions and advocacy efforts. Deafblind Awareness Week is also a time to celebrate the remarkable contributions to society that individuals with deafblindness have made in various fields such as education, arts, advocacy, and technology. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

A candid conversation with two siblings about rivalry, breaking societal norms, and understanding each other < Back Gender, Neurodiversity Sisterhood with Neurodivergence: Shreya & Roshni’s lived experience A candid conversation with two siblings about rivalry, breaking societal norms, and understanding each other Swara Swami 23 Aug 2024 11-min read Shreya (33, she/ her, neurodivergent) and her sister Roshni (30, she/ her, allistic) speak to Much Much Spectrum about their growing up years. Interviewer: Can you both share a little bit about yourselves and your relationship as sisters growing up and how has your bond evolved over the years? Shreya: Well, I think I should start with the story of this picture. When Roshni was just born, she was on Amma's lap. Actually she's supposed to be on Amma's lap, but I have pushed her away and she's crying and I have taken my place on my mother's lap and I'm feeling very happy about it. So essentially that kind of sums up our childhood. We used to fight a lot. Because that's what siblings do. But we also used to chill a lot together and play on the computer and have Shrewsbury biscuits while we did it. So we had a lot of these rituals, like making midnight snacks together and things like that. But we also fought a lot. But when I moved to Ahmedabad to do my master's, I think that is when we became really close when we started living in different cities. Roshni would come and visit me and stay with me on campus and then in the various other cities I have lived in. So I think that is when we became super close and we both are the first person we go to. At least for me, she's the first person I go to with any major issue. We are very similar yet very, very different people. So I think it is a little complementary and also we have a lot of shared interests. So we definitely bond on that. Roshni introduced me to Taylor Swift. We, in general, all of us enjoy food that is one of the things we bond over. And dogs, books. Yes. A lot of books. Interviewer: Roshni, do you also have something to share about your relationship with Shreya? Roshni: I definitely agree with most of the things that she has said. We were not very close while growing up because I'm the younger sister. Distance makes the heart grow fonder, so I genuinely feel like we had those special special moments when we would be cooking together, rather, Shreya would be cooking and I would be cleaning. Before I became a teenager, things were quite different. I was a little bit scared of her, but we got very, very close and actually became friends after she moved out. Shreya: I forgot to say that I was not nice to Roshni when we grew up. I thought, “Oh, you must bully your younger sister. And it was… not nice. It's an important thing to mention because there are not really very great templates around there for sibling relationships, which are not opposing genders. Roshni: On that note, as Shreya mentioned in the picture, she has pushed me off. You can see I'm crying. And she's very, very happy. Interviewer: Could you tell us about your neurodivergence discovery and the journey? Shreya: It was mostly me reading up. I would say it is thanks to the Internet, but because I was reading a lot about the Autism Awareness Month and I read up a couple of articles and I thought that those behavioural traits in adults correlated to our father. I spoke to Roshni about it, and when we spoke to Amma about it, we were like, ‘Oh my God, this makes sense.’ But this was a year before I asked to be assessed and then I didn't think about it. But it was like a niggling thing in the back of my head. Then I started correlating that behaviour across generations of my family. So then I asked my therapist if she could do an assessment and she was like, sure. And I didn't know what to think going in. And I was like, I don't know why I'm asking for this because do I even deserve to take this? What is this? What am I thinking? So then when the results came, it surprised both of us. I think also my therapist, because she'd been my therapist for four years. Once I got assessed as being autistic, I read up a lot and that also made a lot of sense to me. I understood a lot about my childhood and I read a bunch of books, starting with ‘Aspergirls’ by Rudy Simone and then ‘Unmasking Autism’ by Devon Price. I would share all of this with Roshni and Amma and they would be like, yes, okay, this makes a lot more sense. About a year or so later, I took on the ADHD assessments and that also came about and I was like, this is very true. Interviewer: So Roshni, how has Shreya's discovery/ diagnosis changed your dynamic with her? Roshni: I think this conversation is when I think I really started thinking about autism. And so many years of the last few years have been spent in just educating myself. I am also a music educator. I work in a private capacity, so I do work with a few children with diverse needs. So her assessment really, really did help in a professional sense for me to kind of work with the kids that I do, but, wow, sorry, I'm… I feel like I'm blabbering. Shreya: No, you're not. It's okay. It's completely fine. What you're saying is very relevant. Roshni: I think the biggest thing in the beginning was to educate myself and read up more, so whatever material and resources Shreya was sharing, I was making it a point to read them. It really did make a lot of sense. I think she tried to point it out to me, do you remember when this happened when I was younger or this happened? I was like, no, but I was younger than her. So I barely remember, you know, her experiences and meltdowns, so to speak. But it really made a lot of sense the way she is. Since then, I think I've just wanted to be her advocate, especially, you know, in our immediate family because not everyone is as proactive about educating themselves. I think I'm a lot more sensitive to how she is feeling, especially any sort of overstimulation. I feel like when she's around, it's like my ears are also picking up these frequencies. I need to ensure that, for example, at home when we are sitting together and watching TV anytime the volume spikes, the volume is reduced to ensure that she's feeling okay. Interviewer: Shreya, do you have something to share also? Shreya: No. Oh, I would just say that it has just become, I think, better because the understanding is now deeper. And I feel like I can be a very confusing person to be around for a lot of people, but I feel like the assessment has helped understand some of it. This may be something that Roshni has been doing for a long time, but I feel like now she is… someone you can rely on without having to explain too much when you are overstimulated in, say, family gatherings or generally just sitting at home and watching TV. So that aspect really helps because there are very few people in my immediate family or immediate surroundings who actually understand it. So it is nice to not have to open your mouth and explain it. Interviewer: So how do you both support and care for each other? Shreya: We were visiting family in Delhi in December. And it was super social for about a few days. And the last day I just, I could barely talk. I was like, I'm done. I'm done with this world. So Roshni really took on even talking to the cab guy and telling him where we had to go. And there were some physical tasks to be done. She kind of took it on. She also got me coffee. A lot of that is a big way that she has, I think, shown care towards me. I don't want it to be like Roshni is in service to me constantly, but I feel like I also like it when I'm staying with her. Then I make her chai and meals because for me doing things is showing love and care. Roshni: I think if you have ever met Shreya, especially in a house setting, it doesn't matter whose house it is, you'll definitely have multiple cups of chai, which she will make, and there will be at least one snack. Whatever is there in the kitchen, she'll make something. And that is her love language. It has always been, I think, like all of the midnight snacks also. She bakes, she cooks, for it doesn't matter who comes through the door. Actually, most people. With us also, there are weekly FaceTime calls. Sometimes we call each other and give each other the most random updates. And sometimes we just exist on FaceTime together for about 15 minutes to an hour. She is my council, she is my lighthouse. I feel like the reason why I knew I could marry my partner is because Shreya had approved of him. Any major decisions in life, I feel like I need to run by her because she has a very x-ray type scan view of things. And it's great to have such a clear voice sometimes telling you what you might not want to hear or see. So that way I feel like that's how we care for each other. Shreya: When Roshni’s partner is not there, we are just each other’s extended plus ones. And Roshni is also nicer to people than I am. So it's nice to go with her to family functions. People are nice to me also, obviously, but I feel like they're a little scared of me. But everyone is always nice to Roshni, so it's nice to be around her. But I think we balance each other out. There's a fair amount of overstimulation that happens for Roshni also. We have left a lot of weddings and gone to cafes and restaurants and just sat there. Interviewer: Despite being the elder sister, Shreya, you mentioned that your sister is often seen as the older one because of her presentation. Tell us more about the differences in your presentation. Neurodivergent people are often considered way younger than their age because of how we present. How do you both feel about this? Shreya: First of all, we both wear big glasses and we both have short hair. And we both speak in a similar manner. So lots of people also say that we look similar. But I think this really stood out to us once when we were in Chennai visiting some relatives and somebody was like, ‘Oh, I'm pointing to Roshni asking if she's the older one’, which was very strange and she's gotten annoyed and that has just increased in occurrence since then. But because I also almost always have coloured hair, I don't know if people are seeing that and seeing things because of it. And now I have a lot of tattoos. But I don't know why that points to making me look younger. But yeah, it's strange because I'm like, what are the markers of it? Roshni: Yeah, I think it could be, I mean, some people also think it's the height thing. I'm fractionally taller than Shreya. In the beginning I used to get a little annoyed. Because I was like, ‘Oh my God, but look at my face.’ I have such a baby face, but I don't care about it anymore. It's fine. Shreya: That is true. Roshni: Yeah, and I think the way we dress also has something to do with it. I am quite boring in my fashion on a day to day basis. Like when Shreya is around, things get brightened up as a proxy effect, I guess. But because she's always, she expresses herself sometimes through her clothing and the hair colour. The last one of the weddings we went to in 2021 or 22, some people asked Shreya that, and she had a bunch of green hair at that time. It was green, right Shreya? Shreya: Whose wedding? Roshni: This was Varun's wedding. Shreya: Varun's wedding? Roshni: Yeah. Shreya: I had some coloured hair, but it wasn't green. I think it was purple or pink. Life stage wise, as per traditional societal life stage, I am not married and I don't have kids and I'm 33 and there are very few people I know my age who are like this, which is very strange in India. But I feel like that also shows. And the tonality of talking. But I feel like this may also play into why people think I am younger in general. It doesn't make sense. Interviewer: Can you both share a message to families/ siblings where one is neurodivergent and the other is not. Roshni: I'll just repeat what I said earlier, which is, educating oneself is the most important thing you can do as the first step. If anyone in your family is assessed, provide support in whatever way is possible. And, I once brought this up in therapy actually, I don't know sometimes how to help my sister or how to advocate for her. I feel like in some situations it's very sticky and the best piece of advice she's ever given me is to just ask her what she wants. So I think educating oneself and ensuring that you are asking questions and giving the support that a person needs and not just kind of preemptively giving them support based on what you think they need. Shreya: Asking, as you said, but also being willing to listen. Because I feel like when a neurodivergent sibling says something, a lot of what we say is very, very surprising to people because of the experiences, because if everyone has experienced the same thing, the way people experience it can be very, very different. So I feel like sometimes being generally better at listening and believing the other person that, okay, yeah, this is what they got out of the situation… I think that really helps. But I feel like if someone has grown up with a neurodivergent sibling in any case, they would always know that there are a lot of things that their family does, or that they would do as siblings, that are not usual and that are anyway designed to cope with the other person's neurodivergence. So like you have already been living with it. Now when we think about our family and we realise we are so strange, all of us, and we all do these things also that are so strange. And I realised when I talk to my friends' families that they don't have naturally strange families. So… these things. So, just embrace it and believe in the other person. That's all. Shreya is a media professional and podcaster. You can check out her podcast 'At Odds' here . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Incident at "special needs" Dehradun school exposes gaps in protection of neurodivergent children < Back News, Neurodiversity, Parenting Autistic brothers raped, burnt with cigarettes at boarding school Incident at "special needs" Dehradun school exposes gaps in protection of neurodivergent children MMS Staff 3 Jun 2025 4-min read A disturbing incident in Dehradun, Uttarakhand, has brought the urgent need for robust child protection and neurodivergent safety in India to the forefront. Two autistic brothers, aged 9 and 13, from Moradabad, Uttar Pradesh, were allegedly raped and physically assaulted at an unlicensed boarding facility. A staff member has been arrested, and the incident has exposed significant regulatory failures in special care institutions across the nation. The alleged abuse against autistic children came to light last Friday when the boys' mother visited them at the school, a facility presented as a boarding option for autistic children with special needs. Upon seeing their mother, both children reportedly disclosed an ordeal that began shortly after their admission in April. Horrific details of the alleged abuse emerge The mother had admitted her sons to the school following her husband’s death, seeking a care solution that would allow her to manage her job. She located the special needs school online. Her recent visit, however, uncovered the alleged abuse. The children identified the accused as Monu Pal (also known as Sonu), 29, from Ghazipur, Uttar Pradesh. They alleged he used an iron rod to beat them, burned them with cigarettes to instill fear and silence, and subjected them to molestation and rape. This grim testimony highlights the critical need for comprehensive caregiver background checks in India. Police action and ongoing investigation The mother immediately filed a formal police complaint. Superintendent of Police, Dehradun City, Pramod Kumar, confirmed that a case was registered under sections 64(2) (rape) and 115(2) (voluntarily causing hurt) of the Bharatiya Nyaya Sanhita (BNS), along with relevant sections of the Protection of Children from Sexual Offences (POCSO) Act. Monu Pal, who resided at the school’s boarding facility, was arrested and jailed. Kumar stated, “The accused, who was staying at the school’s boarding facility, was tracked down. He was arrested and sent to jail.” He added: “We seized the DVR of CCTV cameras installed inside the boarding facility, which was opened three months ago in a four-room residential building. We are also trying to contact the parents of the other two children staying with the two victims.” Police facilitated interviews with the two brothers, utilising translators from the Child Welfare Committee (CWC) and assistance from the State Commission for Protection of Child Rights (SCPCR). CCTV footage from the boarding house has been secured as evidence, aiding the Dehradun child abuse investigation. Unlicensed operations uncovered: a systemic failure The Chairperson of the SCPCR, Geeta Khanna, revealed significant operational irregularities. According to Khanna, the unlicensed boarding school was being run by a woman without the necessary legal permits. It housed autistic children, including the victims, who reportedly slept on bunk beds in the same room as the accused. This lack of authorization underscores severe flaws in special needs school regulations in India. Khanna further stated, “A woman was running a special school for persons with disabilities, and first of all, it did not have the necessary permissions to operate such a facility. Recently, they hired the accused, Sonu, but his police verification was not done, and we could not find any appointment letters.” It was also disclosed that the woman operated a separate ‘prep school’ for special children nearby, which had 15 students, four of whom opted for the boarding facility. The trust allegedly operating these facilities was registered in Delhi but had failed to inform local authorities about either. Khanna indicated that Monu Pal was hired on May 16, with the alleged abuse commencing soon after. The sexual harassment allegations have led to the closure of the illegally run boarding school. The investigation is ongoing. The identity of the victims has been withheld in accordance with Supreme Court directives. A deeper crisis: Ensuring safety for Neurodivergent lives Every time news of such horrific abuse against autistic and neurodivergent individuals surfaces – whether in India, or across the globe – it chips away at our hope for a truly inclusive and safe world for neurodivergent people. These stories are not isolated incidents; they are symptomatic of a pervasive societal failure to protect those who are often misunderstood and marginalised. The heartbreaking truth is that no place, no country, feels entirely safe for neurodivergent children and adults. While accountability is pursued, the deeper questions remain: How could this happen? And more importantly, how do we prevent child abuse in special needs facilities? This agonising incident, among many others, underscores the critical need for constant vigilance and robust support systems for neurodivergent children and adults, especially when placed in institutional care. We don’t know how many more institutional abuse stories like this go untold. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

Dealing with mental health struggles, well-meaning ableism, finding community & self-acceptance < Back Neurodiversity, Gender, Health Life with Tourette Syndrome as an Indian woman - Manisha’s story Dealing with mental health struggles, well-meaning ableism, finding community & self-acceptance Manisha Manoharan 7 Jun 2024 9-min read Trigger warning: This blog post contains sensitive content related to suicide and mental health challenges. The content may be distressing or triggering for individuals who have experienced similar struggles or who are currently facing mental health issues. If you are experiencing thoughts of self-harm or suicide, or if you are in crisis, please seek immediate help from a mental health professional, counsellor, or emergency services in your area. You are not alone, and support is available. As much as I am a movie buff, it makes me very anxious every time I want to watch a movie in a theatre. Because, as the film progresses, so do my tics. And the concerned stranger in the neighbouring seat always makes it a point to check in on me to see if I am choking myself to death. As always, I explain to them that I am not dying. And that I have Tourette Syndrome which causes my body to twitch and have ‘tics’. Then my neighbour goes on to tell me about how they had never heard of something like that and ask me why I wouldn’t just “control” my tics because it was distracting to them. Trust me. If I could, I would. But I can’t. So, I won’t. You know why? Because Tourette Syndrome can be very painful and debilitating. The more I try to control or suppress my tics, the worse they get. Would you rather want me to constantly feel pain in my body so you can relax? Imagine getting bitten by a thousand fire ants all at once and fighting the urge to scratch the bites. That’s exactly what it feels like when trying to suppress a tic. I could still try to suppress them but that would make me more anxious and stressed, intensifying my tics which eventually wears me out. And tiredness just amplifies the cycle! And it hurts physically, emotionally, and mentally. Tourette’s hurts So, this Tourette’s Awareness Day, observed annually on 7th June, I want to talk about my journey with Tourette’s and how wide-spread awareness of this debilitating condition can go a long way in supporting people like me. What is Tourette Syndrome? It is a neurological condition characterised by repetitive, involuntary movements and vocalisations called tics which commonly start during their childhood, around the ages of 6-8 years. There are different types of tics: vocal tics such as grunting, coughing, sniffing, sighing; simple motor tics like rapid eye blinking, winking; and complex motor tics such as head jerking, neck twisting, shoulder shrugging, and abdominal wall jerking. And no. It is not contagious. You will not “catch tics” from me if you are seated beside me or involved in any relationship with me. Some people have tics where they uncontrollably swear, and this condition is known as coprolalia. Unfortunately, whenever Tourette’s was represented in mainstream media, most often, the focus has been on coprolalia even though research states that only 1 in 10 people with Tourette’s have this condition. This has also contributed to creating a negative bias on people with Tourette’s which in turn affects their personal and professional lives. The cause of Tourette’s is yet to be determined. However, there is plenty of research that suggests that the occurrence of Tourette’s is linked to genetics and pregnancy-related complications. My family believes in the myth that it is past-life karma and/or a generational curse. To each their own. And I? I honestly couldn’t care less why I have Tourette’s. All that matters to me is what I do with this lived experience. I had my onset of tics when I was about 6 years old, thanks to a neighbourhood boy who believed I was infatuated with him because I kept winking at him uncontrollably and I had no awareness of that! My ophthalmologist wrongly attributed my strange behaviour to excessive television-time which then led to my parents taking away the one element of joy in all our lives — the television. But that did not discourage me as I continued to wink uncontrollably at a space that once held the magic box that taught me about the world outside. It was only in early 2021 that I understood and acknowledged that what I had was not merely a bunch of odd-looking physical movements. What I had had a name — Tourette syndrome. Growing up in a country like India where if you do not conform to the conventional standards of normalcy, beautiful or healthy, especially if you are a girl, you are considered an abomination. A burden to the family that chose to bring you into this world. Although my parents are postgraduates in science and medicine, Tourette’s has always been something of an extraterrestrial phenomenon for them to comprehend. They have always loved me the most and do their best to protect me from the prying eyes of society, in hopes that there will be a cure to this someday. Here’s the thing – Tourette’s has no cure. So, I had to do what I did best – masking my tics and letting loose when I was on my own, with arms and legs flailing around like an inflatable tube man, because the people around me found my tics “awkward”. That made things worse. It destroyed my mental health, made me constantly feel like an imposter, and left me feeling that the real me wasn’t worthy of love and acceptance. The worst of all the evils was that I had no understanding of Tourette’s myself to make sense of why I was the way I was. I believed something was wrong with me and needed to be corrected and gave into the weight of people’s unsolicited advice and remarks that buried me alive. “Have willpower and you can control it!” “Don’t let your tics get the better of you. You MUST control it!” “There is nothing called tics. It is just all in your head!” “You don’t need therapy. You need an exorcism!” “You are ugly and demented. No wonder you are seeking attention with your tics!” “You need to be more religious. God is punishing you for not performing your rituals.” “Lose weight and your tics will vanish!” “No one will want you or love you if you have tics.” From self-proclaimed life coaches to neurologists, I went around trying to find answers but everywhere I went, I hit a dead end. When my mental health plummeted in 2014, I was recommended to see a psychiatrist who put me on a cocktail of drugs, possibly to numb my brain. Did it help? I don’t think it did because all I could remember was feeling extremely drowsy with my emotions caught in the crossfire of suppressed neuronal activity. On a fateful day, after a nervous breakdown, I wilfully overdosed myself on the pills. Developed a second-degree heart block, with tubes down my nose pumping activated charcoal. I was hospitalised for a week, being chastised by every other person who assumed to have a right to tell me about how ungrateful and foolish I was in trying to take my life. The tubes down my nose flushed out the toxins along with the last ounce of hope that was hanging by a thread. Somehow it seemed to have missed everyone’s spectrum of thoughts and judgements that I wasn’t giving up on life because I felt hopeless. Rather, I was crying out in pain loudly, for the world to hear. It was a cry for help. For someone to show me even the tiniest ray of light in a world where darkness seemed to drown me. In hindsight, I realised that the only person who could save me then and make me the woman that I am today was myself. But I did not do that alone. I was blessed with an inner circle that accepted me for who I was, loved me, pushed me to be better, and comforted me when the world seemed to be against my existence. It was the faith they had in me that gave me the courage to make the bravest move of my life – moving to the UK. Why is Tourette Syndrome Awareness important? Despite the unbearable cold, the lack of sunshine for most months, and the constant struggle to sustain myself financially, I have found my freedom and the strength to be myself in the UK. I tic wherever I want, whenever I need to. It isn’t my tics or my bodily appearance that people here base their perception of me on. For the first time in my existence, I felt like I could breathe freely. I didn’t have to mask or drain myself at the quest of being someone else. I could be my authentic self. That got me wondering, why the UK was able to give me what I could never receive from my own family and people. It is because of the higher levels of awareness and efforts at breaking the myths and stigma around Tourette’s in the UK that helped more people to accept and embrace people like me. In the words of the American actor, Dylan McDermott, “Once you understand that someone has Tourette’s and they can’t help their tics, it takes away the distraction. And you can engage your compassion. You feel for them. You embrace them.” Let me give you another example. Lewis Capaldi in an interview talked about his Tourette’s, just a few weeks before his concert in Frankfurt in 2023. At the concert, he started experiencing severe tics and stopped mid-song. Do you know what the audience did? No, they did not boo him off the stage. Instead, the entire audience made a powerful gesture to assist him by singing the rest of the song for him till he could feel better. That is what happens when there is awareness created around this debilitating condition. I agree not everyone with Tourette’s is a celebrity with a massive fan following. But ensuring that their environment and the people in it are aware of their condition can significantly enhance the life experience of people with Tourette’s. This also facilitates inclusion and dispels the myths and stigma associated with the condition because 75% of people with Tourette’s say they feel compelled to hide or mask their tics out of the fear of stigma and discrimination. It’s not just tics. Tourette’s has a number of co-occurring conditions or comorbidities that include attention-deficit hyperactivity disorder (ADHD), obsessive compulsive disorder or behaviours (OCD/B), and autism spectrum disorder (ASD), whereas some of the common coexistent problems include anxiety, depression, substance abuse, eating disorders, difficulty sleeping, sensory processing difficulties, and executive dysfunction. And research states that people with Tourette Syndrome and/or Chronic Tic Disorder show an increased risk of suicidal deaths and attempts. Despite these challenges that Tourette’s brings, people who live with it are just as amazing as you and me. In all shapes, sizes, moods, and all of their tics. All they need is someone who has the decency to be humane and empathetic to understand them; to accept them for who they are. Not everyone has the luxury of having an inner circle to rely on or move to a different country to seek freedom like I did. Not everyone dares to speak up in a society that doesn’t accept you if you are different. And not everyone receives a second chance after trying to take their own life. And, that is why more people need to know about this debilitating condition so they can open their minds and hearts to accept their own for who they are. Our country shouldn’t be a threat for people like me to live in. It needs to be the nurturing motherland that we pine for. We owe it to them all – every single soul battling a disability, visible or invisible. Tourette’s or not, if we cannot engage with each other with empathy, we have failed as a race of so-called advanced beings. Manisha Manoharan (she/her) is an Indian woman living in the UK. She identifies as a Neurofabulous Touretter (have Tourette's, ADHD, anxiety and chronic depression, and potentially on the ASD spectrum) You can follow Manisha here . Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks < Back Gender, Neurodiversity Why autistic women and girls often go undiagnosed The gender gap in autism diagnosis: Why so many autistic girls slip through the cracks Aditi Gangrade 18 May 2024 3-min read Autism Spectrum Disorder (ASD) has long been associated with boys. This misconception, fueled by outdated research and societal biases, leads to a concerning reality: autistic girls are diagnosed four times less often than autistic boys according to a 2017 study by the Autism Research Centre [Baron-Cohen et al., 2017]. This disparity has significant consequences, delaying access to crucial support and hindering their ability to thrive. Understanding the reasons behind this underdiagnosis or misdiagnosis is critical to providing equitable and inclusive healthcare systems for autistic women and girls. Masking the difference: One key factor is "social camouflaging." Driven by a strong desire to connect, autistic women and girls develop exceptional abilities to mimic social behaviors. Imagine this: you spend your life feeling like a chameleon, meticulously blending into your surroundings. You observe social interactions, mimicking what seems "normal" even though it feels foreign. This constant performance can be exhausting, but it's the only way you know how to navigate a world that doesn't quite make sense. That, in a nutshell, is what life can be like for many autistic women and girls. Research by Dr. Sarah Cassidy suggests that autistic girls are more likely to engage in social camouflaging than boys, further complicating diagnosis. Beyond the Stereotypes: Traditional diagnostic tools, shaped by research primarily focused on autistic boys, often miss the diverse ways autism presents in people across the gender spectrum. These tools might emphasize restricted interests in specific topics or repetitive behaviors like flapping hands. However, autistic individuals might have a wide range of interests, and repetitive behaviors can manifest in more subtle ways like intense focus on routines or organization. This mismatch between symptom presentation and diagnostic criteria, coupled with societal conditioning that leads girls and women to internalize their struggles, can lead to missed diagnoses. The Internal Storm: Many autistic women experience their challenges internally. Sensory overload might manifest as anxiety or meltdowns behind closed doors. Social difficulties can translate into depression or a constant feeling of social awkwardness rather than outward outbursts. This internalization makes it difficult for others to recognize the underlying cause of these struggles, further delaying diagnosis. A study published in the Journal of Child Psychology and Psychiatry [Lai et al., 2011] found that autistic girls are more likely to experience internalizing symptoms like anxiety and depression compared to autistic boys. This underdiagnosis has a profound impact on the lives of autistic women. Studies suggest they are more likely to experience mental health challenges, unemployment, and social isolation. The Impact of a Delayed Diagnosis: A late or missed diagnosis has significant consequences. We might struggle with social relationships, navigating social situations, experience chronic anxiety, or have difficulty managing daily routines. This can lead to feelings of isolation, depression, being misunderstood, inadequacy, low self-esteem, and a sense of not belonging. Research published in the Journal of Autism and Developmental Disorders [Chown et al., 2019] found autistic women are twice as likely to report experiencing an eating disorder compared to neurotypical women. Difficulties with social communication and challenges adapting to workplace environments can make it difficult for autistic women to find and maintain employment. A study by the Autism Self Advocacy Network [Autism Self Advocacy Network] found that autistic adults are four times more likely to be unemployed compared to the general population. Breaking the Cycle: So, what can be done? Awareness is key: Learn about the diverse presentations of autism in females. Organizations like the Autistic Self Advocacy Network [ASAN] and IHeartAspies provide excellent resources. Advocate for Inclusive Diagnostic Tools: Research efforts should focus on understanding autism across the gender spectrum. This can lead to more comprehensive diagnostic tools that capture the diverse experiences of autistic women and girls. Promote Self-Advocacy: Encourage girls and women who suspect they might be autistic to seek evaluation and support. Resources from organizations like the Autistic Women's Network [AWN] can be helpful in this journey. Challenge Societal Expectations: Break down stereotypes surrounding autism, and promote understanding of how it can manifest differently in women and girls. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS

The Super Mario Bros actor in an open letter has urged for diverse representation at the Emmys < Back News Actor John Leguizamo urges TV Academy for inclusive representation The Super Mario Bros actor in an open letter has urged for diverse representation at the Emmys MMS Staff 12 Jun 2024 2-min read Emmy-winning actor John Leguizamo has issued an appeal to the Television Academy through an open letter published in The New York Times, urging for increased representation of diverse talents at the Primetime Emmy Awards. As the organisation behind the revered Primetime Emmy Awards, the Academy has a pivotal role to play in shaping perceptions of inclusivity and representation in media. Leguizamo, not one to shy away from advocacy, leveraged not only the printed word but also the digital sphere to amplify his call. Sharing images of the letter on social media, he tagged his contemporaries including Whoopi Goldberg, Anya Taylor-Joy, Missy Elliott, and George Takei as well as streaming platform Netflix in a bid to garner wide-reaching support. Highlighting discrepancies In his social media post accompanying the letter, Leguizamo points out a stark disparity: “White people are only 58.9% of the population but overrepresented in top positions across the board.” He notes the disproportionate influence this group holds in critical sectors such as technology, banking, and entertainment, underscoring his argument with the need for an industry that reflects the true demographic makeup of the country. “America is better when it is inclusive. It is more profitable. It is more creative!” he states. Challenging the status quo In his letter, Leguizamo urges the entertainment industry to move beyond superficial commitments to diversity and inclusivity. He writes, “Dear Hollywood, please let this be the year we finally embrace change. The year we truly find equity and see artists of colour represented across not just one category but ALL categories.” He critiques the industry's reluctance to translate the rhetoric of diversity into real action, highlighting the excellence of hundreds of artists of colour who are often overlooked due to systemic biases. An opportunity for real change The timing of Leguizamo’s letter aligns with the upcoming 76th Primetime Emmy Awards scheduled to air September 15 on ABC. This also gives an opportunity for the Television Academy to respond to the growing demands for equity and representation. Inspiring future generations Leguizamo concludes his letter with a forward-looking message, hoping to inspire future generations of minority and underrepresented artists and imagining a world where these artists can see themselves reflected on the Emmy stage: “If they can, maybe I can, too.” For now, all eyes are on the Academy to see how it responds to Leguizamo's call for change. His efforts have the potential to catalyse a significant shift in how talent is recognised and celebrated, paving the way for a media environment that reflects its diverse audience. Much much relate? Share it now! WhatsApp Facebook X (Twitter) LinkedIn Copy link < Back SHORTS